My Health Story Now Live in Your App Store

By |2022-06-09T20:53:03+10:00June 9th, 2022|Help, My Health Story, Professional|

I, Soula, the way I live and the type of person I am, and my story were fundamental to appointments and essential to my treatment. In addition, I realised my health experience was unique and needed to be understood. Professionals are understanding this a lot more now. On educational health networks, I see this 'tip' all the time now: People with invisible illnesses are more than their diseases And on professional forums, I read how lost practitioners are as to how to help people living with ongoing illnesses (which also explains why so many of us are enduring long-term illnesses!). So are you ready to navigate? Are you ready to put your unique experience forward and be better understood? Then, your story is the most essential part of this change. And if you need some guidance, I'm happy to zoom in if you need online training sessions, or you can email me a 'how do I...' question, and I'll film the answer for you.

Pain Revolution Local Pain Educator Directory

By |2022-05-05T12:31:54+10:00May 5th, 2022|Help, Professional|

To my Australian followers, there is a Local Pain Educator Directory now online on the Pain Revolution website. The goal of this new directory is to create a resource that professionals and consumers can use to seek out someone well versed in pain. The directory provides the location and a short bio of the Local Pain Educator and enables searching by occupation, services and specialisations.

Rebrand Announcement: My Health Story

By |2022-06-09T16:36:29+10:00February 14th, 2022|Blog, Help, Manage, My Health Story|

I was so close to throwing the PainTrain My Health Summary idea out the window when COVID-19 hit.  There was no way I could be positive about pushing on with my little train startup while a pandemic was approaching. But as it turned out COVID-19 catapulted telehealth behaviour and with that came increased interest in health tech and a newborn... the digital patient!  My creative communication experience always encouraged me down this complex path – I found healthcare primitive! The way people manage their health and the way appointments are managed has not changed for eons. If you live with an ongoing medical condition, we know now that it takes teamwork to manage it and you have to be responsible for your own health information (or it all gets documented incorrectly!). Clearly, I believe that we need to step up and manage our health and all things relating to it. We especially need to do this because we all have such lengthy stories to tell! So on that note, here's my big news from my humble little train which is now planning to go way beyond its destination... if you help me, there's a lifetime subscription in it for you!

And The Elephant in the Room is…

By |2022-02-20T12:02:28+11:00February 2nd, 2022|Blog, Help, Professional|

'Pain is a unique experience' we've all heard it, and by now, most of us believe it. But, after viewing my personal genetic report, I'm now sure that pain is a unique experience.  Perhaps it's not even pain for some of us. It's not for me! This genetics investigation exposed the elephant standing by my side the last 15 years – actually, it's been with me all my life but it took an accident to begin its stampede! Official diagnosis – not pain; it's inflammation.  And it always has been! 

Presenting My Pain Management Story and Vision at the Murray City Coast Country GP Training

By |2022-06-09T16:36:29+10:00December 3rd, 2021|Advocacy, Blog, Events, My Health Story|

It was wonderful sharing my story and vision at the Murray City Coast Country GP Training. AND especially presenting on a stage and in actual physical life to 50 general practitioners (GPs) who [...]

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