Soula shares her frustration with pain management and how it lead her to founding Pain Train. In this short video Soula also provides her insight on how people experience pain as well as the personal difficulties she faced communicating her [...]
Chronic Pain Info is a Facebook group/page. A place to come and learn, share, vent and meet other likeminded individuals who share similar health conditions and concerns. Rachata Brown wrote: How to understand us... people who are dealing with the pain. 1. People with chronic pain seem unreliable (we can’t count on ourselves). When feeling better we promise things (and mean it); when in serious pain, we may not even show up. 2. An action or situation may result in pain several hours later, or even the next day. Delayed pain is confusing to people who have never experienced it. 3. Pain can inhibit listening and other communication skills. It’s like having someone shouting at you, or trying to talk with a fire alarm going off in the room. The effect of pain on the mind can seem like attention deficit disorder. So you may have to repeat a request, or write things down for a person with chronic pain. Don’t take it personally, or think that they are stupid. 4. The senses can overload while in pain. For example, noises that wouldn’t normally bother you, seem too much. 5. Patience may seem short. We can’t wait in a long line; can’t wait for a long drawn out conversation.
Members paint with brushes held in their mouths or feet as a result of a disability sustained at birth or through an accident or illness that prohibits them from using their hands.