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Next stop: Traditional Chinese Medicine with Raffaele Vavala

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Acupuncture6Although I’ve tried acupuncture many times before, I’ve never felt as much of a response as I am feeling now after my four sessions with Raffaele Vavala. It’s possible my body wasn’t ready for it, being in ‘the thick of it’ until about a year ago my onion was just too big!  But I also believe some practitioners do have more of a gift than others and Raffaele is gifted!

The consultation methods make great sense to me. My scans have been considered, but my tongue, palms and pulses on both wrists do all the pain and story telling. These body parts describe a system that is quite debilitated after dealing with the years of Chronic Pain, an issue Raffaele understands in-depth. So when I speak of sounds hurting, activity accumulating into a flare up fire-ball, fluid retention, my legs unable to move with extreme heat conditions, the desperation for Western intervention in the form of an implant and nerve blocks, my exhaustion that arrives with the pain and ‘protects me’ by encouraging me to sleep, the inability to focus, reach out and ‘just move that thing’ or carry out a simple task, the ability to create seeming too exhausting, Raffaele understands… ALL OF IT.  He reminds me of my diagnosing physio, and for once I’m the one staring in disbelief at their look of complete understanding for me (when other practitioners screwed up their faces or frowned at my statements). Continue Reading

Health Organization for Pudendal Education (HOPE)

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HOPE is probably our best online resource for PN, the forum in particular is full of great advice and information from practitioners and patients, around the world including of course, Australia/NZ.

HOPEBracelets

HOPE is a charitable organization that offers support and information to patients who have pudendal neuropathy (PN), pudendal neuralgia (PN), or pudendal nerve entrapment (PNE).  If you have come to this website it is probably because you are in pain or you know someone who is in pain.  Our goal is that after coming here you will be able to develop a plan of action that will help you get your life back.

Visit the website: www.pudendalhope.org or sign up to the forum

Chronic Pain Info group on Facebook

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Chronic Pain Info facebook page

Chronic Pain Info is a Facebook group/page. A place to come and learn, share, vent and meet other likeminded individuals who share similar health conditions and concerns.

This is a post from one member (Rachata Brown) from the “recent posts from others” area of the site…

How to understand us… people who are dealing with the pain.
1. People with chronic pain seem unreliable (we can’t count on ourselves). When feeling better we promise things (and mean it); when in serious pain, we may not even show up.
2. An action or situation may result in pain several hours later, or even the next day. Delayed pain is confusing to people who have never experienced it.
3. Pain can inhibit listening and other communication skills. It’s like having someone shouting at you, or trying to talk with a fire alarm going off in the room. The effect of pain on the mind can seem like attention deficit disorder. So you may have to repeat a request, or write things down for a person with chronic pain. Don’t take it personally, or think that they are stupid.
4. The senses can overload while in pain. For example, noises that wouldn’t normally bother you, seem too much.
5. Patience may seem short. We can’t wait in a long line; can’t wait for a long drawn out conversation. Continue Reading

Mouth and Foot Painting Artists

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Welcome to the Australian web site of the Mouth and Foot Painting Artists (MFPA). Formed in 1956, the MFPA is an international, for-profit association wholly owned and run by disabled artists to help them meet their financial needs. Members paint with brushes held in their mouths or feet as a result of a disability sustained at birth or through an accident or illness that prohibits them from using their hands.

Read more on the MFPA official website

My list of practitioners

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The most supported I’ve felt is when I’ve come across a practitioner who listens and wants to work with me specifically. I mean really take note of what’s going on and want to learn themselves too. Chronic pain is still so difficult to understand, and of course I can’t recommend or even suggest that my experience might be a solution for someone else but I can provide the contact details for ‘team Soula’.

Stage 1: The Search
Dr Harry Crock, retired
Mr Roy Carey, East Melbourne
Professor Michael Quinn The Women’s, The Royal Women’s Hosptial, Parkville
Pond Massage Water Wellness P/L, Collingwood
Pam Frost, Massage therapist, Inspiral Bodywork, Fitzroy

Stage 2: Implant
Dr Kathy Yu, Melbourne Sports Medicine Centre, Melbourne
Pam Frost, Massage therapist, Yoga Healing Centre, Fitzroy
Professor Teddy, Neurosurgeon, Precision Neurosurgery, Melbourne
Marilyn Lock, Knowbody Studios (Holistic physiotherapy), East Melbourne
Pam Frost, Massage therapist, Inspiral Bodywork, Fitzroy

Stage 3: Diagnosis
(All stage 2 practitioners)
Robert Postlethwaite, Psychiatrist, Freemasons Medical Centre, East Melbourne
The Women’s – Anne Florence Plante, Physiotherapist, RWH Physiotherapy department, chronic pelvic pain clinic
Dr Peter Courtney, Melbourne Pain Group, Glen Waverley
Pam Frost, Massage therapist, Inspiral Bodywork, Fitzroy

Stage 4: Treatment
Dr Peter Courtney, Melbourne Pain Group, Glen Waverley
The Women’s – Anne Florence Plante, Physiotherapist, RWH Physiotherapy department, chronic pelvic pain clinic
Raffaele Vavala, Traditional Chinese Medicine, 4a Mitchell Street Northcote
Pam Frost, Massage therapist, Inspiral Bodywork, Fitzroy

Related Posts
My pre pain life…
My family, Theo, Origin of Image & Zephyr…
The big bang injury…
The way relief started…
The way relief continued…
Diagnosis: Physiotherapy at The Women’s…
Building Blocks…
Next stop: Traditional Chinese Medicine…
Soula’s PN Weather Update…
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Definitions of pain

What is Pudendal Neuralgia (PN)?
Most simply put PN is Carpal Tunnel in the pelvis/buttocks. Compression of the Pudendal Nerve occurs after trauma to the pelvis and is aggravated with pressure. The pain is often described as a toothache like pain, with spasms, sensations of tingling, numbness, or burning. It can be very debilitating.

What is Neuropathic pain?
Neuropathic pain is the result of an injury or malfunction in the peripheral or central nervous system. The pain is often triggered by an injury, but this injury may or may not involve actual damage to the nervous system. More…

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