If it weren't for my sense of humour, I'd be well and truly dead a long time now. I thought I'd kick off 2019 with something Theo found that is (not, IS, not, IS) so funny. Wishing you all stitches of laughter for 2019... xx Theo & Soula
As long as WorkSafe and their Agent keep treating me unfairly and refuse to support me in the way that I am entitled, I’m going to keep my reports coming! What have they done now? [...]
I'm not exactly enthused about health admin. There's already enough admin and digital filing to do in life. But I've found that my PT health summary is saving me, not only admin time, but alot of stress having to remember details of my experience. I've included a self portrait for my specialist today!
You all know how the song goes, ‘Miss Polly had a dolly who was sick, sick, sick…’ In fact, most of us would know it and know it really well. I consider myself to be some kind of role model [...]
No, not me! I feel I’m in a little control… But this, is exactly what I was thinking about after my GPADD18 presentation, wouldn’t it be great to host events such as GPADD18 for patients? [...]
Researchers at the University of Tasmania would love to hear from women (and their partners) who experience various forms pf persistent pelvic pain. The research is aimed at increasing the understanding of the impact of persistent pelvic pain [...]
There was no rushing to catch transport! And the sounds of Venice are soothing and happy. In the morning we woke to the sounds of the local's footsteps and the sounds of them working along the canal. Local chatter in the street, dogs barking and of course, the church bells. Sounds impact a person with a chronic illness. My mind was at peace, it felt rested, all was calming and gentle.
I'll deem my efforts a success. I managed. I learned a bundle. I made something of the chronic pain experience. And I believe I provided some insight. I arrived at Yarra Valley Lodge on Thursday night and left Sunday early morning to manage the presentation, question time and a short attendance at the dinner on Saturday evening. So that's 3 night's sleep (and one nap Saturday afternoon) to get the focus I needed, and so I could appear in a way that I felt reflected my most Soula self. The presentation (below) took weeeeeeeeks to put together! Something that would have taken me a few short days previously. That might sound alot of sacrifice to many of you but with this approach, my pain levels remained low (if not off) and on my return to Queenscliff, I could resume my part time work and the week ahead as per normal. It worked, I'm pacing up! I do have a niggle though. We're not learning fast enough. We're not listening hard enough. I left disappointed I hadn't achieved enough.