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On Neurostimulation

By |2021-03-25T14:51:24+11:00March 23rd, 2021|About, My treatment|

Neurostimulation has been key in my management of pain. It's also satisfied my wish to find a way to be as self-sufficient with my management as I possibly can be. My first stim was a peripheral stimulation unit (leads under the skin) and that was implanted in 2011. I still have this unit as a backup. In 2015 I had a sacral stim implanted but that fizzed (in my opinion) within three years. So in 2019 I had the sacral stim removed and replaced with a spinal cord neurostim. WARNING: In the video, I talk about my experience and have a few Xrays pop up to demonstrate a little detail. If you're the squeamish type you may not want to see the images – they are small, however. Read key blogs about my stim implants experiences and adventures:

Pain management is unique to all of us and the key to navigating the complex journey (I believe) is gathering as much information as possible. I hope this vimeo is of great help.

A Chat With Anne-Florence Plante

By |2021-03-09T21:02:30+11:00February 22nd, 2021|About, Learn, My treatment, Personal resources, Pudendal Neuralgia|

I can't really think of a better way to mark my 14 year anniversary with chronic pain than to present this wonderful (loooong) chat with my diagnosing physiotherapist, Anne-Florence Plante. I will clarify firstly that Anne-Florence's official title is not Soula's physiotherapist but rather her qualification is Senior Clinician Physiotherapist. Not only did Anne-Florence Plante diagnose me but this awe-inspiring human is the reason pudendalnerve.com.au exists. We have stayed in touch on and off over the years which has been wonderful and now, given my move to video advocacy it was only fitting that my first two chats were with Theo and Anne-Florence. Since 2011 when I first published this website, many of you have written to me to ask about the physiotherapy Anne-Florence Plante provided that not only led me out of a 4.5-year search for an explanation to the pain I was experiencing but that ended up guiding my future treatment and pain management. I'm so happy to be able to share this informative conversation.  What we talk about in this chat (with lots of other detail in between): 1:05 Diagnosis 1:36 Pudendal Neuralgia 4:50 Appointment approach today 16:00 Anne-Florence's Formal training 20:05 Isolating pelvic pain 23:40 Educating people & practitioners 27:30 Navigating the journey 30:34 An explanation 36:20 Do I still have Pudendal Neuralgia 37:12 Management 43:00 Et Voila! 44:26 PainTrain – My Health Summary

Out With the Sacral, In With the Spinal (part 3)

By |2021-03-22T21:10:29+11:00February 17th, 2019|My treatment|

It will take one whole year until stim and I get to know each other. I've done this twice before, I know! There are programs to explore, capacity to pace, and sitting to try without the aids. I want to hop in a train and a tram, and hop off in the city without an agenda and limits. I want to catch up with my dearest friends, some whom I've not seen since I left Melbourne. We've been living off parcels, emails and the phone, and that really hurts.

Under Anaesthetic, However…

By |2019-01-23T14:45:10+11:00January 24th, 2019|About, Blog, Funnies, My treatment|

While you read this, I'm in total bliss under full anaesthetic having my spinal stim implanted and my sacral stim (which fizzed) removed. I've popped this poem in my head, and now yours too in the hope that Brain Plasticity, in all its madness as clarified so perfectly in Michael's poem and illustration, works its nonsense on me.

Spinal Cord Stim Trial Day 6

By |2018-12-13T12:45:01+11:00December 13th, 2018|About, Learn, My treatment, Professional Resources|

I'm not exactly enthused about health admin. There's already enough admin and digital filing to do in life. But I've found that my PT health summary is saving me, not only admin time, but alot of stress having to remember details of my experience. I've included a self portrait for my specialist today!

I Turned a Corner

By |2018-06-03T11:07:03+10:00May 27th, 2018|About, Blog, Learn, My treatment, Personal resources|

Theo and I continue to establish our new life in Queenscliff and are enjoying the many wonderful new aspects of our new lifestyle. We're also learning to manage the sacrifices. It makes me feel I've turned a corner. Home Then Actually, a couple of weeks ago, I literally did turn a corner. After staying in Melbourne for a special family lunch, during the evening we also managed to catch up with old friends on our old pavement. I kind of felt a little emotional pang when I turned into the city end of Gertrude Street and saw the magnolias enjoying the Autumn evening light and the little drizzle that was beginning. Very steadily pacing my drinks, the night saw us hop around our old favorite spots. The life turn happened when I stepped out of the Everleigh and instead of turning right to head 'home', Theo and I turned left to head to a city hotel. We were going to sleep at this hotel, wake up in the morning and return to Queenscliff. Theo had to work... Sunday. I don't often have overwhelming emotional moments. I really deal with life's activities quite well. I mean, who would I think I was expecting a perfect life run, right? 'Suck it up!' But this was one of those overwhelming emotional moments and it was damn hard. I knew what it was. I knew that overdue moment since we left 'home' had finally caught up with me. I fully comprehended that we had said goodbye, and life had moved us on. I lapped up every step away from my previous home as the rain fell on/off and the concrete took in all the glittery, yellow, autumn Melbourne evening lights. I bid abiento to each magnolia as I walked up the street. I also lapped up the arms that were around me and the huge hug that Theo and I stopped to have to mark our moment. Home Now

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