Hello Happy Ears, Hello Better Night’s Sleep
Who would have thought it? But these wobbly, jelly-like babies (officially known as Happy Ears) are helping me get a great night's sleep. At first, I thought the sound caused by putting [...]
Keeping up my Stamina
I was going to title this blog Fatigue, but after reviewing it repeatedly, I decided to title it Stamina instead. It took me years to get to 'managing'. Now I have transitioned to pacing. As stated in my previous post, I'm living now. I'm not in a passive state watching and being attacked by an unpleasant experience. It wasn't easy getting to the state of 'management'. There are so many 'have to' activities – we can't avoid these. When I explain my 'have to' activities such as showering, making a coffee, sitting/standing all day, dressing, etc., people look at me bewildered, but you'll get me. Until this fight is experienced, one can't understand that day-to-day activities can strip your energy and count as 'activity'. It feels insane when faced with this realisation. But I have found a way...
Say Goodbye to Covid-19 Lockdowns
That would be like me saying ‘goodbye flares’ in my undiagnosed years. You just don’t get to make those decisions when you don’t have explicit knowledge about the beast you are dealing [...]
A Chat with Deb Thompson
A most essential chat – person (living with pain)-to-person (living with pain). As well as having a lived experience of pain in common, Deb and I also share a love for [...]
FeetUp (Then Take a Seat)
My endless efforts to find a way to get back into regular yoga practice keep falling on their head. Pardon my pun... but I am hopeful FeetUp may help with that problem. Prior to living in the land of pelvic pain, I lived in the land of bliss practising yoga regularly – four times per week! For 45 minutes I was part dog, part warrior, a cat, a cow, even a pelican at times. I became a tree, saluted the sun and enjoyed many various poses. To end my routine, I'd slide up into shoulder stand (8 minutes), then send my toes passed my head in plough pose (for another 8 minutes) before unravelling to a corpse in Savasana pose. That was before I went for a walk!
Foam! I Found Foam!
Foam! I Found Foam! Am I excited today! As I progress this path of pain, I retain my non-negotiable pointers – one of which is my need for my custom made seating aid. I would love to ditch this damn thing from under my backside and from my clutch every time I go out for a seated event, but it's just too valuable for my capacity. Figuring out the big 'dangers in me' (remember we talked about DIMS and SIMS?) has been key to my pacing forward.
My New Friend, Freddie
I’ve never had much success with inflatables. However, Freddie is a little different – he’s got structure and he’s not so wobbly. If you’ve sat on one of [...]
Travel tips for Liz
Traveling isn’t an easy task, even for those with full capacity and no health issues. So when ‘Liz’ contacted me for tips, I thought I could reply here so that you all [...]
Chugging Around the Globe
I’ve met some exceptional people online who have helped educate me about chronic pain and helped with my pain management. I don’t hesitate to write and connect with people but only if [...]
Resources for Treating Chronic Pain by the Pain Specialists Australia (PSA) …MY pain team!
Forgive my bossiness but this post comes from a desperate experience that I lived for 4.5 years. That’s a long time for someone with increasing chronic pain levels and not much hope. [...]