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Trust me, I’m a patient: pain education for professionals from a lay perspective

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Lay member, British Pain Society Patient Liaison Committee

A young woman with arthritis talking about the rising tide of hostility to disability claimants says: ‘People think I’m faking. I’ve lost friends over it. Pain is invisible and hard for people to understand.’ How many of us could say that we have never thought that someone reporting pain is faking or, at the very least, making too much fuss? This is the society in which we live: intolerant of the pain of others. From childhood onwards we are told to stop whingeing and are often not believed when we report pain. Adults can be intolerant of their partner’s pain and in the workplace colleagues seldom treat kindly weakness of any sort.

These preconceptions and attitudes to other people’s pain are what professionals may have grown up with and may subconsciously bring to the clinical setting. Pain education for professionals should focus not only on the methods of treatment available but equally on the impact of pain and the need to listen to and believe the patient’s story. Pain is what the patient says it is and if he or she has come to you for help, there will be very few instances in which pain relief must be withheld whilst a diagnosis is sought. And yet, often pain management is not addressed until all the avenues of diagnostic tests, scans and specialist opinions have been explored. Students need good communication skills and empathy, and they should be encouraged to think about their own attitudes to pain and how these might affect their professional practice. They should learn that there are very few conditions for which pain relief must be withheld until a diagnosis is made. For the majority of people adequate pain relief can be achieved before a diagnosis is made.

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Bridge for Pelvic Pain 2nd Annual Pelvic Pain Seminar

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2nd Annual Pelvic Pain Seminar

Learn about chronic pelvic, sexual and genital pain, and integrative treatments.

Presentations by doctors, physical therapists, counselors,health and
wellness experts and patient advocates.

*New this year: Afternoon break-out sessions for patients and caregivers.

Register early as space is limited!

Date & time:
Saturday September 30, 2017
Registration and light breakfast 8:30AM-9:00AM
Seminar 9:00AM-4:30PM

Location:
Tim Gill Center for Public Media
315 E Costilla Street Colorado Springs, CO 80903

RSVP, Speaker List and Tickets:
available on our Event Page at www.bridgeforpelvicpain.org

Bridge for Pelvic Pain Presents: 1st Annual Pelvic Pain Seminar

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Full agenda and topics available at www.bridgeforpelvicpain.org

Colorado Springs, CO, United States

This seminar will be an immersion in learning about chronic pelvic pain from diagnosis and treatment to the patient perspective encompassing a mind, body and spirit connection. In this full day event attendees will learn about chronic pelvic pain, integrative treatments and modalities from doctors, physical therapists, counselors, health and wellness experts and patient advocates. While the seminar is geared toward doctors, PTs, integrative healthcare providers and medical students, the information and presentations will also be of value to patients,their significant others and caregivers.
Keynote Presenters: Continue Reading

Arthritis & Osteoporosis WA, Making Sense of Pain June 26 – 27, 2015

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Calling all Health Professionals
“MAKING SENSE OF PAIN”
Our fourth inter-disciplinary workshop

Register now.
Early bird registrations close on 12th June!

Presenters & RegistrantsWe offer health professionals a unique opportunity to update their knowledge and skills and to effectively transfer them into their clinical practice setting.

Our experienced team, which comprises “pain champions” together with experienced clinicians and researchers, present a unique learning experience conducted in a user-friendly environment.

Date: Friday 26th – Saturday 27th June, 2015.

Presenters: Ms Melanie Galbraith (Physiotherapist), Assoc-Professor Vance Locke (Academic Psychologist), Ms Jane Muirhead (Occupational Therapist), Dr John Quintner (Physician in Rheumatology and Pain Medicine), Ms Mary Roberts (Clinical Psychologist).

Pain champions: to be announced

Venue: Wyllie Arthritis Centre, 17 Lemnos St. SHENTON PARK WA

[N.B. This workshop is fully catered and FREE on-site parking is available.]

For details and to Register or contact:
Melanie Galbraith, MelanieG@arthritiswa.org.au or
John Quintner, jqu33431@bigpond.net.au

View information about previous workshops

Interactions Between Injured Workers and Insurers in Workers’ Compensation Systems: A Systematic Review of Qualitative Research Literature.

Author:
(Excerpt from Interactions Between Injured Workers and Insurers in Workers’ Compensation Systems: A Systematic Review of Qualitative Research Literature.)

Finally, some research into claims management from the Institute for Safety Compensation and Recovery Research (ISCRR), Monash University by Kilgour E1, Kosny A, McKenzie D, Collie A.

Abstract

Introduction Work-related injury is a major public health problem and a worker’s recovery can be shaped by their interactions with employers, healthcare providers and the workers’ compensation system.

Most research on the effects of compensation has concentrated on examining outcomes rather than considering the compensation process itself.

There has been little attention paid to the interactions between stakeholders and only recently has the client’s view been considered as worthy of investigation. This systematic review aimed to identify and synthesize findings from peer reviewed qualitative studies that investigated injured workers interactions with insurers in workers’ compensation systems. Method A search of six electronic library databases revealed 1,006 articles. After screening for relevance, 18 articles were read in full and a search of those bibliographies revealed a further nine relevant articles. Quality assessment of the 27 studies resulted in a final 13 articles of medium and high quality being retained for data extraction. Results Included studies focused mainly on experiences of injured workers, many of whom had long term claims. Findings were synthesized using a meta-ethnographic approach. Six themes were identified which characterised the interactions between insurers and injured workers.

The majority of interactions were negative and resulted in considerable psychosocial consequences for injured workers. Positive interactions were less frequently reported and included respectful, understanding and supportive communication and efficient service from insurers.

Conclusion Findings from this synthesis support the growing consensus that involvement in compensation systems contributes to poorer outcomes for claimants. Interactions between insurers and injured workers were interwoven in cyclical and pathogenic relationships, which influence the development of secondary injury in the form of psychosocial consequences instead of fostering recovery of injured workers. This review suggests that further research is required to investigate positive interactions and identify mechanisms to better support and prevent secondary psychosocial harm to injured workers

The Pelvic Pain Library

Author:
The Drawing Wall At Ooi

Here is my attempt to gather all references I’ve come across or that I refer to on my website for Chronic Pelvic Pain. Clearly nowhere near all the references that exist but at least one ‘library’ location with a bundle of great material (and one organised website!). If you’ve come across a resource that you think should be included, please contact me and if you are an author and have an update or other information to provide, I’d love to hear from you.

I know how frustrating it is to have to sift through pages and pages of the internet, I thought this could be of help to pain sufferers who simply don’t have the up time.

And a huge thanks to everyone who replied and supplied me their updated material. Obviously I plan for this page to grow and somehow I will keep it in some kind of legible order. Currently in alpha order by author and title of their publications, perhaps as it grows, we can list by subject. Continue Reading

$6 Billion woman and the $600 Million Girl

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$6Billion woman and the $600Million Girl)

the PELVIC PAIN report

“Pelvic pain, while common, is often a hidden burden to the lives of many women. With emerging national and international knowledge about pain and the heavy toll it poses on individuals and society, it is timely that this report ‘The $6 Billion Woman and the $600 Million Girl’ raises pelvic pain to public attention as an important health issue. This call for action is overdue in a much neglected area of health and healthcare impacting the lives of so many women and girls in our community.” Dr Christine Bennett, MBBS FRACP Master Paed. Professor and Dean, School of Medicine, Sydney. The University of Notre D

This report is an Australian initiative to address human and fiscal burdens associated with conditions causing pelvic pain. It provides solutions to improve women’s health services and outcomes. The intended audiences for the Pelvic Pain Report are state and federal governments, funders, clinicians, consumers, allied health care professionals, researchers and research funders.

(Excerpt from $6 Billion woman and the $600 Million Girl)

Addressing pelvic pain must be a cornerstone of that commitment.

The purpose of this report is to identify the issues in diagnosis and management of pelvic pain, and to provide some solutions to in3luence the future health outcomes for Australian women and girls. Working with Government, Medical Colleges, af3iliated organisations, societies, faculties and those affected by pelvic pain conditions can assist in the implementation of the recommendations that will guarantee bene3its to individuals, the business sector, and society at large. The recommendations have been proposed after strong input from women and girls with these conditions. This has been obtained through the 25 years experience of patient advocacy organisation Endometriosis New Zealand, Australian womens’ case histories, and current Australian and New Zealand social networking comments.

Read more…$6 Billion woman and the $600 Million Girl

Pelvic Pain Steering Committee:

Deborah Bush QSM
CEO and Founder Endometriosis New Zealand,
Advocate for women’s health, and development of innovative health service provision.

Dr Susan Evans
Gynaecologist, Pain Medicine Physician,
Specialist in pelvic pain.
www.pelvicpainsa.com.au
Pelvic Pain SA on Facebook

Professor Thierry Vancaillie
Gynaecologist, Pain Medicine Physician,
Specialist in pelvic pain.
www.whria.com.au

Me, a case study! Pudendal Neuralgia-Masters Coursework

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Pudendal Neuralgia Presentation by Alesha Sayner

The condition and existing barriers to management and practice

My understanding of a ‘syndrome’ is that it seems to remain myth-like until serious research is undertaken and repeatedly produces the same findings in many patients. The Research for Pudendal Neuralgia is minimal worldwide, almost non-existent in Australia. Although specialists and therapists are documenting their work Pudendal Neuralgia can’t seem to penetrate its existence in Western Medicine’s Bible, and so it is unrecognised, misunderstood or ignored.

So when my physiotherapist at The Women’s Hospital mentioned Alesha Sayner and I heard she was compiling a presentation for her Masters specifically about Pudendal Neuralgia, I jumped at the opportunity to hand over all my experience knowing this is exactly what the issue desperately needed. I was even more enthusiastic that Alesha was interested in documenting WorkCover’s understanding (not) and treatment (not) for injured worker’s with the issue.

Thank you Alesha Sayner and The Women’s Hospital for this huge first step, so crucial to Australian sufferers of Pudendal Neuralgia, such therapy for me too! Continue Reading

The Pudendal Neuralgia Masters

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This post has been updated, please visit Pudendal Neuralgia treaters around the world or continue to read this and all the lovely comments from the amazing Pudendal Neuralgia family.

International Pudendal Neuralgia specialist locations

I can’t adequately define the moment I was diagnosed, it’s just too difficult to explain the 4.5 year scattered hunt that ended with a few seconds and just two words!

Empathy and understanding however, are two words that do explain what I felt when seeking approval to use the research and names of the Pudendal Neuralgia Masters (as I like to call these specialists). Honestly, if words, thoughts and care from complete strangers could heal me I would have been healed twice over by now. These Masters really touched my heart (unfortunately not my stubborn Pudendal Nerve, but all in good time!).

I wanted to share these comments, especially for anyone suffering with Pudendal Neuralgia as I feel its important that we all know who these incredible human beings are and that they are endlessly working towards our cure and international awareness every day. The other important thing is to know where they are. Continue Reading

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Definitions of pain

What is Pudendal Neuralgia (PN)?
Most simply put PN is Carpal Tunnel in the pelvis/buttocks. Compression of the Pudendal Nerve occurs after trauma to the pelvis and is aggravated with pressure. The pain is often described as a toothache like pain, with spasms, sensations of tingling, numbness, or burning. It can be very debilitating.

What is Neuropathic pain?
Neuropathic pain is the result of an injury or malfunction in the peripheral or central nervous system. The pain is often triggered by an injury, but this injury may or may not involve actual damage to the nervous system. More…

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