Roll up – get your $10 ticket! After years of building My Health Story (MHS), my online system and app have been selected for Melbourne Design Week, [...]
Every year I think something amazing will happen during National Pain Week. But every year, nothing amazing ever does. We all wait for answers, but either the answers don't come, or they prove more tiresome. Worst of all, the answers are a direction to a lonely zone – the figure-it-out-yourself zone! So, figure it out myself; I will this year! I'm making National Pain Week AMAZING by writing the end of this story.
Making the invisible visible You'll hear this wonderful reference in my chat with Giulia – to make what is invisible visible is one of her four goals while in the position of CEO at PainAustralia. I found Giulia incredibly down-to-earth and easy to connect with. Of course, with six children, you instantly know she understands pain (and is highly able!!), but her admission that she had never thought of the pain she experienced as chronic really struck me.
(Image: Soula Mantalvanos, founder My Health Story features in Women in Business, Bellarine Times International Women’s Day special edition 2023) Feature, Women in Business, Bellarine Times International [...]
I'm an author of What Injured Workers With Complex Claims Look For in Online Communities: Netnographic Analysis, now published in one of the world's best medical journals.
Congratulate me! I have been awarded expert mentoring with Buzz Web Media and Women With Wit’s – Lee Ussher under the Australian Government’s Boosting Female Founders Initiative (BFFI) for PainTrain [...]
Over some years and after a third time being banned in some way or form from an official pain organisation's social media, I now feel encouraged to make a point - advocacy is not a business. I began this website to advocate for people living with chronic pain and share helpful resources to avoid the impact of misdiagnosis on their lives. I aimed and achieved gratitude on a global scale, which has fed me. I also started this website to connect people living with chronic pain to professionals who understood them very well and could possibly treat them. I've asked none of these amazing professionals to pay me to be included on this website – we're all working for the same cause, right? This was never intended to be a business. What I'm seeking is more respect and understanding for the voluntary position of the advocate. So let's pull the bandaid off and frankly define it: Advocacy is costly and time-consuming. It earns us no income; it causes pain and uses a significant portion of the little and precious uptime we get and, advocates are also much greater than their cause. I repeat; advocacy is no business.
Let’s not! We shouldn’t be here! pudendalnerve.com.au is coming up to its 10th anniversary. About this time a decade ago, and after seeing my diagnosing physiotherapist, who [...]
Wisdom, experience and compassion are all qualities to describe Dr E. Just wait ’til you hear him speak! This extraordinary gentle human has had a very long professional [...]
Mandy and I initially met in 2014 when she sent me an email. Ping, in my inbox just like that! Mandy sent a most inspiring filled message. Aside from [...]
