Are you ready to punch the next healthcare professional you see who asks, 'Tell me your story'? Are you sick of asking for your health information, searching for it, collating it, or sending bits and pieces of yourself all over the place?
Get ready to listen, learn and return to a better quality of life. I 100% believe that had I met Anne-Florence in the first six months after my accident, I would not have endured chronic pain. And this is why I'm confident Anne-Florence will help you return to your whole, fabulous, painless self - or as closest as possible. What she did for me after meeting me at my worst was nothing short of a life-saving boost. And a realignment. She popped me on the path to recovery, and even more than that, she reached me on a personal level, aiding my return to life with ideas relevant to me. I'm thrilled about telehealth and global communication options because they mean she's always there for me! And now, Anne-Florence is there for you too!
Soula Mantalvanos (me!) as a guest contributor on MoreGoodDays. If you're living with fibromyalgia, you'll know first-hand how the experience forces you into constant symptom tracking. What’s this niggle? Is this [...]
Every year I think something amazing will happen during National Pain Week. But every year, nothing amazing ever does. We all wait for answers, but either the answers don't come, or they prove more tiresome. Worst of all, the answers are a direction to a lonely zone – the figure-it-out-yourself zone! So, figure it out myself; I will this year! I'm making National Pain Week AMAZING by writing the end of this story.
Woohooo! The startup world is beginning to thrive with people who want to impact healthcare using their negative experiences. These people want to help others, change the quality of care and make sure you get better faster. One of these great people is Neala Fulia, and I am excited to have the chance to introduce More Good Days (MGD), a new online digital healthcare company Neala founded dedicated to helping individuals find relief from chronic pain - specifically fibromyalgia. I'm also excited that MGD has become a Friend of My Health Story (MHS), which signifies a shared commitment to improving the quality of care for all of us. It's what we all deserve and what has been so slow in coming.
(Photograph Ivan Kemp) Do you like this picture of me? When I see this photo of myself, I see someone proud and accomplished. My posture reflects inner [...]
Self-management is hard, chronic illness is overwhelming. Chronic illness robs you of your independence and control, leaving you feeling defeated and mentally and physically drained. Add to the endless appointments required; now, we also have to be considerate of healthcare systems under pressure. Guess who gets the short end of the stick? We pay with our lives. Perhaps healthcare systems were destined to burst their stitches because healthCARE was never built to care for people; it was made to keep people relying on it. That's not care. Can taking more ownership of our health make a difference?
(Image: Soula Mantalvanos, founder My Health Story features in Women in Business, Bellarine Times International Women’s Day special edition 2023) Feature, Women in Business, Bellarine Times International [...]
In 2011 when I built pudendalnerve.com.au, the internet was starved of helpful communities and resources. It was the very reason my advocacy began. I didn't want anyone to be as lost as I was on my search for important health information. There were few online portals where people could connect, and the only health information available was through science journals – no individual could understand them! Health orgs that did have a web presence seemed not to have a dialogue with the consumers they claimed to exist for. Thank goodness that's changing, but we still have a way to go as the usual questions remain; What is chronic pain? How can we manage chronic pain and its symptoms and effects? What are the best treatments, and why is there such a lack of understanding? etc This is where Nerita Lewis comes in with her idea to democratise healthcare with Jaspen.
Near impossible! Slowing yourself down when you’re feeling great is a pathetic concept for a person living with chronic illness. It’s not like you ever go very [...]