self management

/Tag:self management

Upcoming Appointment with my Pain Specialist

By | 2017-12-17T12:37:25+00:00 October 5th, 2017|Blog, Help, Manage, My treatment, Pain Train, Professional|

In just a few days I will be seeing Dr Christelis. I’ve had one follow up appointment since my sacral stim implant. It’s not that the stim has miraculously sorted my chronic pain issue, and not that I haven’t had [...]

Takes more than an app to explain pain

By | 2017-12-17T12:37:25+00:00 September 2nd, 2017|Blog, Learn, Pain Train, Professional Resources|

Body in Mind posted this excellent research from Marina Pinheiro and Gustavo Machado about the abundant health apps out there; What App is Good for My Back? Pulse+IT also recently posted their story, There’s a bad app for That. There [...]

Video: Why I Made Pain Train

By | 2017-12-17T12:37:25+00:00 August 14th, 2017|About, Help, My treatment, Pain Train, Personal|

Soula shares her frustration with pain management and how it lead her to founding Pain Train. In this short video Soula also provides her insight on how people experience pain as well as the personal difficulties she faced communicating her [...]

Self Management: Acceptance, Commitment & Sacrifice

By | 2017-12-11T11:16:26+00:00 July 22nd, 2017|Blog, Living, Manage, My treatment|

(Image: Written Within* by Elizabeth Banfield hand burnished linocut, kozo tissue, thread ©2017) My sacral stim and I have known each other for a full 17 months now, so I felt it was the right time to make some comments and reflect, [...]

Pain God, I’ve founded a better way to do things

By | 2017-12-17T12:37:26+00:00 July 12th, 2017|Blog, Manage, Pain Train, Professional|

Embracing the health care system's push for self managed care I find it difficult to sit still (pun intended), when I can see a way to make a change for the better and to help others. In the case of Pain Train, it was actually creating something that didn't even exist in the chronic pain world. The Gods we look upto had nothing to offer in this area - it didn't exist. So I repeated my story, as you did/do a few million times during the few million appointments. Exhausting! Not to mention impossible. How are patients and their teams meant to manage (you know the thought, surely God doesn't expect me to repeat myself, again!)? Yes, the Gods do expect you to repeat yourself. How else can they help you? Well, there's an easier way for both of you/us!

Patient to Practitioner Access: Too Much?

By | 2017-12-11T09:45:22+00:00 May 30th, 2017|Blog, Learn, Professional Resources|

It all started with emails. I bet most medical professionals felt alarmed as email communication began with patients. Wasn’t the existing scenario suitable enough? Call the receptionist – make several attempts to get through, rattle off suitable dates, wait for [...]