Home/Tag: living

COVID19 – Welcome to Life Limitation Paradiso!

By |2020-04-29T10:30:53+10:00April 28th, 2020|About, Living|

I've been waiting a while before writing about the current state of the world and its effect on me, my life and the chronic pain. I've been feeling quite confident with a kind of 'meh' attitude about the daily routine. I've been sleeping like a baby and if I remove the financial stress from the situation, I'd have to say, I'm having a jolly time! As the silence began to build outside a few weeks ago, I found myself listening to the news hourly – that was about the only thing that changed for me when COVID19 stopped the world. It'll be dawning on you... I've had a lot of experience with 'isolation'! I've been living a scaled-down life for much of my last 13 years. Living a life within a 1-3 km radius and not seeing family, friends or living as freely as I like has been my PhD study topic! Profession: Isolation specialist and physical distancing Queen. In fact, without the physical demands of working, seeing family, friends and socialising, my physical ability has increased and the pain levels have even dropped a little! I walk twice a day! And I'm also sharing puppy training duties as well. Yes, we welcomed Olive to our home – a medium size Labradoodle (pictured with me being picked up). This decision to welcome a new fur child is evidence of mine and Theo's isolation experience. Did someone say, 'plan to stay home'? We've got this! Theo's and my conversation went like this; 'Honey, given we won't get to go away this year and it's going to be financially impossible to afford a holiday, why don't we move our plans forward to welcome a dog?' 'It's a great idea, we'll be distracted and it's the perfect time to train a puppy too'. We know what it means to tuck in, stay tucked in and to have to occupy yourself for a very long time.

It’s Been a While… So How am I?

By |2019-10-11T11:40:16+11:00October 6th, 2019|Blog, Living|

Being resourceful is what makes the difference — it is so hard working life out. But Theo and do it. We burrow down and we make it happen. There's no choice... or rather there was but I didn't want a fulltime WorkSafe paycheck. Of course, I think about that. And of course, I often call myself stupid for declining it – I was safe! I had that full-time paycheck for the rest of my life. But creativity and sharing the day with Theo is so precious to both of us. Even with the complexities and risks, it appears to be the only way Theo and I can live. For this, I am grateful! So I'll stop complaining now and go on with what I've been doing and what I am achieving. It's all good! I'm moving. Life is in forward motion after being so still for so long – a decade at least!

Venezia!

By |2018-09-09T15:53:21+10:00September 9th, 2018|About, Blog, Living|

There was no rushing to catch transport! And the sounds of Venice are soothing and happy. In the morning we woke to the sounds of the local's footsteps and the sounds of them working along the canal. Local chatter in the street, dogs barking and of course, the church bells. Sounds impact a person with a chronic illness. My mind was at peace, it felt rested, all was calming and gentle.

Self Management: Acceptance, Commitment & Sacrifice

By |2017-12-11T11:16:26+11:00July 22nd, 2017|Blog, Living, Manage, My treatment|

(Image: Written Within* by Elizabeth Banfield hand burnished linocut, kozo tissue, thread ©2017) My sacral stim and I have known each other for a full 17 months now, so I felt it was the right time to make some comments and reflect, [...]

Who am I going to be – Soula ‘a’, ‘b’ or ‘c’?

By |2016-06-12T21:54:35+10:00June 12th, 2016|Living, My treatment|

My new stim’s changed everything. I’m grateful. Can you imagine if the whole process (from trial to permanent implant) hadn’t change anything? In addition to the stim changing everything, I’m living a whole new life that Theo and I attempted [...]