personal story

/Tag:personal story

Robert Wanek, Creating awareness for Chronic Prostatitis and Pelvic Pain Conditions

By | 2017-12-11T16:44:12+00:00 January 20th, 2014|Learn, Personal resources|

My name is Robert. I'm a 20 y.o. athlete. I've been suffering from Pelvic Pain for 6 months. I hope my blog can bring awareness and support to this poorly understood subject.

Interpretive Dance about living with IC & Pelvic Pain

By | 2017-12-11T15:23:40+00:00 April 15th, 2013|Creativity, Film, Online|

An incredibly effective form of communication for Internal Cystitis (IC) and Pelvic Chronic Pain. Certainly captures everything I’ve felt and everything I hope; release those chains! And how true that they are depicted with such weight. Absolutely loved this. Donna [...]

The Princess in the Tower

By | 2017-12-11T10:16:56+00:00 April 30th, 2012|Learn, Professional Resources|

This website is dedicated to increasing awareness of Complex Regional Pain Syndrome, or CRPS, formerly known as Reflex Sympathetic Dystrophy or RSD, particularly long-term CRPS/RSD, which is so rarely spoken of. Most websites focus on RSD of 3 to 9-12 months that is still treatable with hope of remission. Long-term RSD is where the patient has had the condition for over that time frame, sometimes as long as decades have passed. While this is one focus, we hope to help anyone with chronic pain.