/Tag: personal story

It’s Been a While… So How am I?

By |2019-10-11T11:40:16+11:00October 6th, 2019|Blog, Living|

Being resourceful is what makes the difference — it is so hard working life out. But Theo and do it. We burrow down and we make it happen. There's no choice... or rather there was but I didn't want a fulltime WorkSafe paycheck. Of course, I think about that. And of course, I often call myself stupid for declining it – I was safe! I had that full-time paycheck for the rest of my life. But creativity and sharing the day with Theo is so precious to both of us. Even with the complexities and risks, it appears to be the only way Theo and I can live. For this, I am grateful! So I'll stop complaining now and go on with what I've been doing and what I am achieving. It's all good! I'm moving. Life is in forward motion after being so still for so long – a decade at least!

The Universal Language of ‘Pregnant’

By |2019-08-16T12:17:08+11:00August 16th, 2019|Blog|

'I couldn't help but feel that when it comes to bringing a life into the world, we've got things down pat — socially and medically. The supports are there and the stigma isn't. Yet, when it comes to preserving that life, our report card doesn't look anywhere near as good — socially or medically. The supports aren't there, and the stigma well and truly is.'

Robert Wanek, Creating awareness for Chronic Prostatitis and Pelvic Pain Conditions

By |2017-12-11T16:44:12+11:00January 20th, 2014|Learn, Personal resources|

My name is Robert. I'm a 20 y.o. athlete. I've been suffering from Pelvic Pain for 6 months. I hope my blog can bring awareness and support to this poorly understood subject.

Interpretive Dance about living with IC & Pelvic Pain

By |2017-12-11T15:23:40+11:00April 15th, 2013|Creativity, Film, Online|

An incredibly effective form of communication for Internal Cystitis (IC) and Pelvic Chronic Pain. Certainly captures everything I’ve felt and everything I hope; release those chains! And how true that they are depicted with such weight. Absolutely loved this. Donna [...]

The Princess in the Tower

By |2017-12-11T10:16:56+11:00April 30th, 2012|Learn, Professional Resources|

This website is dedicated to increasing awareness of Complex Regional Pain Syndrome, or CRPS, formerly known as Reflex Sympathetic Dystrophy or RSD, particularly long-term CRPS/RSD, which is so rarely spoken of. Most websites focus on RSD of 3 to 9-12 months that is still treatable with hope of remission. Long-term RSD is where the patient has had the condition for over that time frame, sometimes as long as decades have passed. While this is one focus, we hope to help anyone with chronic pain.