Talking Health Tech

By |2021-08-27T10:15:20+10:00August 27th, 2021|Learn, Professional Resources|

In my attempt to implement PainTrain My Health Summary (PainTrain MHS) formally into the healthcare industry, I'm now heading past what feels like planet Pain Management and toward the Health Tech solar system. It is exciting! There are movers and shakers here, and I'm standing at the Talking Healthtech (THT) station. THT was founded by Peter Birch. Peter worked in management roles in healthcare organisations for over 15 years; big ones and small ones, innovative startups and slow-moving beasts, he's seen all different kinds. Pete has experienced the exciting developments and the frustrating stagnation of all the ups and downs in health. Now, I'm not saying chronic pain researchers aren't movers and shakers, but I feel like I'm static in their world, just repeating my story over and over. 'Lived experience' is becoming as tiresome as 'journey'. Now there's 'Narrative Medicine', which are all great descriptors, but the effect of those words on people living in pain right now feels still? How many times can we repeat the same information? We get it, practitioners hear it; pain is complex, and you need to listen to the patient more... but can you fix it now, please?  I'm hopeful my new world will lead to some kind of collaboration or new opportunity. It undoubtedly has led to significant new connections, one of whom is Dr Valerio Vittone, a PhD in Biochemistry, Molecular Biology & Virology. In other words, a specialist in personalised DNA based nutrition, health & lifestyle advice! So stay tuned; my DNA kit is in the mail! We know the need to progress healthcare is a serious one – but if you consider it took a pandemic to get telehealth functioning, it's scary!

Artists Living With a Disability Go Bush

By |2020-10-24T10:48:34+11:00October 24th, 2020|Blog|

Support for artists is rare. Understanding and value for the arts, in general, is rare and if you are an artist with a disability... well, you fall off the media platform altogether. So, what's especially great about Nas Campanella's story about this artists' residency is that it relays the important message of creativity as a form of catharsis and management for invisible chronic health issues. And the artists get to explain. 

My Lyrica Closure

By |2020-09-12T15:50:18+10:00September 12th, 2020|Blog, Learn, Professional Resources|

Life's pace is vastly slower if you are living with chronic pain. Anticipated outcomes from things like new treatments, explanations about causes of pain, pain research, realisations about personal ideas relating to my own experience all take months, years and even over a decade to arrive. Yesterday was the day I finally received some closure about the wicked Lyrica. There's been a build-up of medication reporting this past year but none of it hit the spot like The Project's report. I love the reporting on this show – it's one of the few programs that brings me to the TV. While watching last night, I got that bullseye feeling: I'm not crazy! How often does a person living with pain come to this blissful realisation? Not often enough I can tell you.

Four Corners Examines Insurers Contracted to run Australia’s Largest Workers Compensation Schemes

By |2020-07-31T11:28:09+10:00July 26th, 2020|News, system, Work / System, Workcover|

Four Corners Be sure to watch and share the program. (Excerpt from www.abc.net.au Posted Thu 23 Jul 2020, 6:06pm) “Immoral and unethical”: The financial scandal and human cost of Australia’s failing workers [...]

«Χρόνιος πόνος: η ύπουλη ασθένεια που κλέβει τη ζωή χιλιάδων ανθρώπων»

By |2019-09-26T17:14:15+10:00September 26th, 2019|Advocacy, Blog, Online, Pain Train|

(Excerpt from Neos Kosmos feature story, Chronic pain: the treacherous disease that steals the lives of thousands, MAΡΙΑ ΚΑΜΠΥΛH 25 September 2019) Η συγκλονιστική συνέντευξη – κατάθεση ψυχής της ομογενούς Σούλας Μανταλβάνου, που [...]

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