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Pelvic Pain: The Ultimate Cock Block

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Dr. Susie and I have established quite a fab connection over the past year or so.

We teamed up to help people with chronic pain with our own various ways – Dr. Susie providing her professional knowledge (and awesome down to earth approach), and I providing my patient input (Dr. Susie loves my Pain Train).

I jumped at Dr. Susie‘s invitation to write the foreword for her book, Pelvic Pain: The Ultimate Cock Block – in fact it was an honor and a pleasure.

From what I hear through my site, men have a more difficult task navigating chronic pain and speaking up about their issues – yes, much tougher than we have it ladies!

So to my dear male followers, don’t hesitate! You can get this book right now on Amazon and be on your way to managing pelvic pain.

And to Dr Susie, thank you so much for writing this much needed resource and for inviting me to be a part of it.

About the book

Pelvic Pain: The Ultimate Cock Block: A no bullsh*t guide to help you navigate through pelvic pain

You woke up one morning expecting a hard on, but instead, all you felt was dick pain. You’re thinking maybe it was a weird sex position or that sports injury from the other day. ‘‘No biggie, it’ll go away,’’ you think to yourself. Continue Reading

Visual Pursuits book review on Art & Chronic Pain – A Self Portrait

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I’ve mentioned before I live in an art hub of Melbourne. I’ve also made it clear how much I love my community and how much the people living beside me have helped me manage my pain by energising me with their friendship, their creative work and some most distracting conversation.

These inspiring creatives (across all forms of art media), make me feel at ease, even as my painful-Soula-self. Whether in pain, feeling (or not) up to outings, when I appear leaning and sitting in all sorts of positions, and in some cases requiring their help to carry things home, or leave them behind for Theo to pick up later, I always feel accepted and loved, and that makes me so damn happy!

So, when one of those divine people, Marguerite Brown, reviews my book, I feel quite chuffed. In fact more than chuffed, honoured, that she spent her time to write a review in her own beautifully articulated words and publish it on her amazing blog, Visual Pursuits.

For anyone considering purchasing my book, or if you already have, I recommend Margue’s insight, it’s a brilliant review. Here’s a snippet:

In Art and Chronic Pain – A Self Portrait, artist Soula Mantalvanos shares her experience with chronic pain, which has been a debilitating presence in her life for almost seven years. Soula suffers from Pudendal Neuralgia, a painful nerve condition that developed following an accident where a fit ball that she was sitting on burst, causing her to drop violently to the concrete floor beneath.

Early on in the book Soula describes that split-second, and the devastating effects that followed. A highly active yoga-loving woman before the accident, throughout the book Soula gives a deeply personal account of the psychological, emotional and physical impacts of living with chronic pain for so many years.  These negative effects were compounded by the fact that her condition Pudendal Neuralgia baffled her doctors, and took four and a half years to even diagnose.

Soula weaves her story through a spare yet effective use of text, combined with evocative imagery that gives visual form to one of the most insidious aspects of chronic pain, its complete invisibility to the outside world.

To convey the loss of control over her physical being that has been presented by Pudendal Neuralgia, the artist commissioned a marionette in her own likeness by marionette maker Colleen Burke.  The result is an exquisitely crafted and hauntingly realistic version of herself in doll-like form. Soula paints, draws and collages representations of the marionette at various points throughout the book.

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The book: Art & Chronic Pain – A Self Portrait

Author:

SelfPortraitBookDustJacketYes, I’ve found another medium to express my pain and you can own your own copy of it!

I didn’t see the point of creating a long description of my living with pain, sharing my tips, turning journal entries into a pain story. Afterall, first and foremost, before the person in pain, I am an artist… so my book had to contain many pictures and few words, just 32 pages in fact, but I believe it’s a complete story. It doesn’t hold the solution for PN but it’ll allow you to explain it to someone else, leave it on the coffee table, and it will be light enough to carry around.

Art Chronic Pain Soula Mantalvanos-01

Above all I created it to express my experience so far and so that it is a bit of a companion to another PN family member. The idea was for the reader to feel empathy in a world where no one seems to understand, and to ease the pain as you look through it.

Continue Reading

David Butler and Lorimer Moseley discuss the first five years of Explain Pain

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Do I have the Explain Pain book? Of course I do.

From YouTube:

Explain Pain has been a huge stepping stone for patients and clinicians – not only in understanding pain but being able to communicate the concepts to others. Over 5 years on, and the book is still unprecedented in its layout, descriptive illustrations and incredible bank of information. Backed entirely by scientific evidence, Explain Pain is a recommended text at many universities but also read and enjoyed by everyday people in pain.

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Definitions of pain

What is Pudendal Neuralgia (PN)?
Most simply put PN is Carpal Tunnel in the pelvis/buttocks. Compression of the Pudendal Nerve occurs after trauma to the pelvis and is aggravated with pressure. The pain is often described as a toothache like pain, with spasms, sensations of tingling, numbness, or burning. It can be very debilitating.

What is Neuropathic pain?
Neuropathic pain is the result of an injury or malfunction in the peripheral or central nervous system. The pain is often triggered by an injury, but this injury may or may not involve actual damage to the nervous system. More…

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