/Manage

Pain Revolution Names PainTrain a ‘Best Resource’

By |2018-07-22T14:33:23+00:00July 22nd, 2018|Blog, Help, Manage, Pain Train|

PainTrain has followed Pain Revolution very closely over the years and its this research with Soula's experience that has driven the PainTrain concept. We love having your support all the way Soula! Your voice is so needed and loved, and your [...]

My Health Record vs PainTrain My Health Summary

By |2018-07-22T14:06:28+00:00July 22nd, 2018|Help, Manage, Pain Train|

Um, actually, they aren't in competition. They are two very different online resources. There's no turning a blind eye or choosing to stay away from this technology change as it is affecting you right now and there is a decision you need to make within three months about your autogenerated account on My Health Record. Are you staying in or opting out? I opted out. And not because I think My Health Record is a poor concept – it's a great idea! Remember I've made a type of online health summarising resource myself because I realise how important it is to organise your health information and communicate more efficiently with your health team/s.

Upcoming Appointment with my Pain Specialist

By |2017-12-17T12:37:25+00:00October 5th, 2017|Blog, Help, Manage, My treatment, Pain Train, Professional|

In just a few days I will be seeing Dr Christelis. I’ve had one follow up appointment since my sacral stim implant. It’s not that the stim has miraculously sorted my chronic pain issue, and not that I haven’t had [...]

Self Management: Acceptance, Commitment & Sacrifice

By |2017-12-11T11:16:26+00:00July 22nd, 2017|Blog, Living, Manage, My treatment|

(Image: Written Within* by Elizabeth Banfield hand burnished linocut, kozo tissue, thread ©2017) My sacral stim and I have known each other for a full 17 months now, so I felt it was the right time to make some comments and reflect, [...]

Pain God, I’ve founded a better way to do things

By |2017-12-17T12:37:26+00:00July 12th, 2017|Blog, Manage, Pain Train, Professional|

Embracing the health care system's push for self managed care I find it difficult to sit still (pun intended), when I can see a way to make a change for the better and to help others. In the case of Pain Train, it was actually creating something that didn't even exist in the chronic pain world. The Gods we look upto had nothing to offer in this area - it didn't exist. So I repeated my story, as you did/do a few million times during the few million appointments. Exhausting! Not to mention impossible. How are patients and their teams meant to manage (you know the thought, surely God doesn't expect me to repeat myself, again!)? Yes, the Gods do expect you to repeat yourself. How else can they help you? Well, there's an easier way for both of you/us!

Pain Down There online resource

By |2017-12-11T10:04:24+00:00May 6th, 2017|Learn, Manage, News, Professional Resources|

You might recall me plugging the Pain Down There DVD – an extensive resource for women created by Robert Echenberg, Karen Liberi, Alexandra Milspaw, and Stephanie Yeager. Now the team have taken this a step further, turning the DVD into [...]