Hello, welcome to my website!
I hope you’re not in ongoing pain but if you are, this website was created to provide a positive outlook for people who are experiencing chronic pain.
Created in 2011 this website was made for people like you. I want you to know that what you might be feeling right now is not forever and that you can change your situation.
I couldn’t hold my mobile phone or a glass of water without triggering my nervous system. Yet, here I am… working part time, with very low pain levels and symptoms and a returned quality of life – I even founded My Health Story, a health tech platform to help people with chronic illness.
Who am I?
My name is Soula and I live in Australia. I literally fell into the land of pelvic chronic pain – specifically Pudendal Neuralgia (PN), on March 1, 2007 when a fitball I was sitting on burst and I fell to a concrete floor.
At the time, I was working at ooi, a design company that I own with my husband Theo in our beautiful Collingwood warehouse. I was also an exhibiting artist until pain put an end to that for a few years.
Since my accident in 2007, I’ve learned a lot about chronic pain – especially that you can manage it (I know what you’re thinking, you’re wrong, you really can).
I want people to learn from my experience because I believe the ongoing issue I now live with was totally avoidable. I was undiagnosed for 4.5 years and that was THE most tragic part of my accident.
Do you believe in yourself? Do you find yourself thinking, ‘hey, I know more about my experience than my health carers do? That’s because it’s true.
Sure, chronic illness is confusing and complicated and it fatigues you so you can’t think but know that underneath all that is the information you need to get better.
Are you prepared to learn a great deal about yourself and make changes to your life?
This is the road back to YOU. And some of you will return to a 100% version of you and others will return to a new version of YOU. But know that you will get there.
Despite what you’re feeling right now and despite thoughts like, ‘my pain is different’, ‘this is more serious’, ‘no one can help me’, I encourage you to take a huge breath and get ready to drive because you are leading the way forward. Yes, you!
Since my diagnosis 4.5 years after my fall, I’ve been able to find treatment that is slowly chipping at the glacier.
For me, this includes;
I was living with unbearable pelvic chronic pain that made me feel like I had my finger stuck in a powerpoint. I was sleeping my life away and, when not sleeping, in so much pain it was impossible to achieve much at all.
I was existing, not living.