About my website2022-01-02T22:06:01+11:00

Hello! Welcome to my website, pudendalnerve.com.au

I hope you’re not in ongoing pain but if you are, this website was created to provide resources to people who are experiencing chronic pain and/or trying to manage it.

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My Story
Blogs

My Story

  • Pain Revolution March 8
  • PPA Launch - Soula, Lorimer and Anne-Florence
  • GPADD
  • Team Soula and Theo
  • Soula today
  • Sitting on the Fitball

My name is Soula, and I literally fell into the land of pelvic chronic pain – specifically Pudendal Neuralgia (PN), on March 1, 2007 when a fitball I was sitting on burst and I fell to a concrete floor. At the time, I was working at ooi, my art & design studio that I run with my husband Theo.

Since 2007, I’ve learned alot about chronic pain – especially that you can manage it. I want people to learn from my experience because I believe my ongoing chronic pain could have been avoided. I was undiagnosed for 4.5 years and that was THE biggest trigger to my chronic pain experience.

You’ll need to learn alot about yourself and make some serious changes to your life (hopefully temporary and minimal) in order to be the best possible version of the new you.

I am an artist and now I also consider myself an advocate for people with chronic pain and Australian injured workers.

It’s been an overwhelming emotional journey since 2007. As well as the endless hunt for treatment that might lead to recovery, I have:

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Life Blogs

PainTrain My Health Summary is growing up – I need your help

January 21st, 2022|Categories: Blog, Help, Participate|Tags: , |

PainTrain My Health Summary is growing up and I would love your insight to guide me through this very important growth spurt. As you might know, I founded PainTrain MHS to help people living with chronic pain and their health team/s communicate more effectively and more easily. The online health world has changed since 2014 when I [...]

Upzeez: Supportive Baby Change Table

December 28th, 2021|Categories: Blog, Help, Professional|

Upzeez Baby Change Table – how amazing is this?! I've met the most wonderful brains in my tech for healthcare circles. This resource came from guildofentrepreneurs.com – yes, there is such a community. Where would we be without entrepreneurs? It'd be a pretty sad future. And I'm particularly proud to have a little entrepreneurialism in me [...]

Off you go 2021…

December 16th, 2021|Categories: Blog|Tags: , |

I'm so hopeful for 2022 because I can now so confidently say, 'I can't make it IRL, can we zoom?' without apology or explanation. And, this year it also got a whole lot easier to slap down my cushion in the middle of a full restaurant... and sit on it. It's also become easier for others to understand why I couldn't be somewhere and it became hilarious listening to people rave about online shopping (hello, we've been doing it for years, even before it was all setup online officially). I bet you can rattle off many examples of feelings of inclusiveness – even the word inclusiveness managed to pop up on this website for the first time, where until now, all we could talk about were our exclusions and how foreign we felt within the world.

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