About my website2021-12-05T11:39:00+11:00

Hello! Welcome to my website, pudendalnerve.com.au

I hope you’re not in ongoing pain but if you are, this website was created to provide resources to people who are experiencing chronic pain and/or trying to manage it.

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My Story

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My Story

  • Pain Revolution March 8
  • PPA Launch - Soula, Lorimer and Anne-Florence
  • Team Soula and Theo
  • Soula today
  • Sitting on the Fitball

My name is Soula, and I literally fell into the land of pelvic chronic pain – specifically Pudendal Neuralgia (PN), on March 1, 2007 when a fitball I was sitting on burst and I fell to a concrete floor. At the time, I was working at ooi, my art & design studio that I run with my husband Theo.

Since 2007, I’ve learned alot about chronic pain – especially that you can manage it. I want people to learn from my experience because I believe my ongoing chronic pain could have been avoided. I was undiagnosed for 4.5 years and that was THE biggest trigger to my chronic pain experience.

You’ll need to learn alot about yourself and make some serious changes to your life (hopefully temporary and minimal) in order to be the best possible version of the new you.

I am an artist and now I also consider myself an advocate for people with chronic pain and Australian injured workers.

It’s been an overwhelming emotional journey since 2007. As well as the endless hunt for treatment that might lead to recovery, I have:


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Life Blogs

Presenting My Pain Management Story and Vision at the Murray City Coast Country GP Training

December 3rd, 2021|Categories: Advocacy, Blog, Events, Pain Train|Tags: , , , , |

It was wonderful sharing my story and vision at the Murray City Coast Country GP Training. AND especially presenting on a stage and in actual physical life to 50 general practitioners (GPs) who were keen to learn about chronic pain. I've now participated in a few of the Murray City Coast Country (MCCC) GP Training sessions with the [...]

VICE: An Interview About Intimacy with Pudendal Neuralgia

November 24th, 2021|Categories: Advocacy, Blog, Online|Tags: , , , |

I’ve been wanting to give a personal account on intimacy and chronic pain but never quite knew how to approach it properly. I was so grateful when Mark Hay’s email arrived. At first, Theo and I thought about using pseudonyms for the story but given Vice’s professional approach and brilliant translation of [...]

This Website is 10 Years Old – Let’s Celebrate!

October 9th, 2021|Categories: Advocacy, Blog, Online|Tags: |

Let’s not! We shouldn’t be here! pudendalnerve.com.au is coming up to its 10th anniversary. About this time a decade ago, and after seeing my diagnosing physiotherapist, who set me to the task, I began building a website. I planned for this site to serve a few people struggling to find a diagnosis [...]

Portraying Pain’s Invisible Characteristics

October 9th, 2021|Categories: Blog, Creativity|Tags: , |

I thought you might like to see some of the artwork I’ve created over the past two years. It’s been slow but I’m really happy with this body of work. Being unable to travel, I’ve switched back to the topic that glares at me every day. The invisible quality of pain is [...]


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