About my website2021-10-08T10:52:57+11:00

Hello! Welcome to my website, pudendalnerve.com.au

I hope you’re not in ongoing pain but if you are, this website was created to provide resources to people who are experiencing chronic pain and/or trying to manage it.

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My Story

  • Pain Revolution March 8
  • PPA Launch - Soula, Lorimer and Anne-Florence
  • GPADD
  • Team Soula and Theo
  • Soula today
  • Sitting on the Fitball

My name is Soula, and I literally fell into the land of pelvic chronic pain – specifically Pudendal Neuralgia (PN), on March 1, 2007 when a fitball I was sitting on burst and I fell to a concrete floor. At the time, I was working at ooi, my art & design studio that I run with my husband Theo.

Since 2007, I’ve learned alot about chronic pain – especially that you can manage it. I want people to learn from my experience because I believe my ongoing chronic pain could have been avoided. I was undiagnosed for 4.5 years and that was THE biggest trigger to my chronic pain experience.

You’ll need to learn alot about yourself and make some serious changes to your life (hopefully temporary and minimal) in order to be the best possible version of the new you.

I am an artist and now I also consider myself an advocate for people with chronic pain and Australian injured workers.

It’s been an overwhelming emotional journey since 2007. As well as the endless hunt for treatment that might lead to recovery, I have:

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Life Blogs

Pain Train featured in the AMA Victoria’s VICDOC magazine

February 16th, 2018|Categories: Help, Pain Train, Print, Professional, Read|

Pain management has come to me in various forms. It’s a pretty special feeling that my 11 years of experience with chronic pain may be useful for learning and inspiring change in the way pain is managed and the way patients and professionals communicate. Pain Train is essentially a new language for [...]

Published and about to be heard!

March 7th, 2012|Categories: Advocacy, Creativity, Online, Work / System, Workcover|Tags: , , |

Thank you Graphis, The International Journal of Visual Communication, for publishing my political poster.

Australia's WorkSafe system needs a serious update for the sake of Employers, Workers and Tax Payers. I'm hoping to get enough views to be published in the Graphis Annual and send a personally signed copy to our WorkSafe Minister.

PainTrainMHS: Patient-Controlled InformationSharing Instrument

July 29th, 2021|Categories: Help, Pain Train, Professional|Tags: , , |

When viewing my enormous health timeline (pictured), I feel like I've put the information and experience somewhere – it makes it authentic and validates it. Few people validate our experience of living with chronic pain. But this is a way I can validate it and value it. I want others to validate and respect it too. PainTrainMHS helps me do that when I present the information. Showing this to various practitioners and hearing their responses means a great deal to me. It also means a great deal that they grasp an in-depth understanding of my experience. No GP referral letter will ever include this much detail. I always find important information about me has been left out of the letter. All these feelings and activities are part of my pain management strategy – it's not all just about treatment, it's also so much about what I manage day-to-day, and there is so much detail in that day-to-day management. What I also see looking at my timeline is how my appointments have gone from red (bad) to blank (neither here nor there) to green (good). My experience is shown precisely and all it took was a glance. Have a look at how lost I was in the first few years... it was awful!!!!

Welcome to My Sanctuary Space

January 23rd, 2021|Categories: About, Living|Tags: , , , , , |

Chronic pain management is tough! And it's also different for each person who lives with and manages it. I wouldn't be much of an advocate if I didn't welcome you inside my sanctuary space and show you a teeny glimpse of how I approach daily life – especially when I've promised to bring you video [...]

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