Keeping up my Stamina

By |2022-05-09T20:40:00+10:00May 8th, 2022|About, Blog, Living|

I was going to title this blog Fatigue, but after reviewing it repeatedly, I decided to title it Stamina instead. It took me years to get to 'managing'. Now I have transitioned to pacing. As stated in my previous post, I'm living now. I'm not in a passive state watching and being attacked by an unpleasant experience. It wasn't easy getting to the state of 'management'. There are so many 'have to' activities – we can't avoid these. When I explain my 'have to' activities such as showering, making a coffee, sitting/standing all day, dressing, etc., people look at me bewildered, but you'll get me. Until this fight is experienced, one can't understand that day-to-day activities can strip your energy and count as 'activity'. It feels insane when faced with this realisation. But I have found a way...

Pain Revolution Local Pain Educator Directory

By |2022-05-05T12:31:54+10:00May 5th, 2022|Help, Professional|

To my Australian followers, there is a Local Pain Educator Directory now online on the Pain Revolution website. The goal of this new directory is to create a resource that professionals and consumers can use to seek out someone well versed in pain. The directory provides the location and a short bio of the Local Pain Educator and enables searching by occupation, services and specialisations.

Report from ISO

By |2022-04-24T21:00:08+10:00April 24th, 2022|About, Blog, Creativity, Living|

Well, hello, COVID. After all the care, caution and staying in, Omicron finally caught us from no idea where. After all the fear of catching this virus, considering my Inflammasome gene and my chronic health issue, I'm happy to report that I breezed through it! I was abundant with the usual energy that comes to me when social obligation falls away. In addition, the pain levels fell away as they have done with previous colds – can the brain not manage two signals or is a virus some distraction? I went with it. I got stuck into my studio!

Soula Mantalvanos, Published Author of the Journal of Medical Internet Research

By |2022-04-12T20:53:18+10:00April 12th, 2022|Advocacy, Blog, Learn, Living, Online, Professional Resources, Work / System, Workcover|

I'm an author of What Injured Workers With Complex Claims Look For in Online Communities: Netnographic Analysis, now published in one of the world's best medical journals.  

My Health Story now LIVE

By |2022-04-12T20:52:27+10:00April 12th, 2022|Blog, Learn, Professional Resources|

My Health Story is now live and has totally replaced PainTrain My Health Summary. My Health Story goes beyond helping people communicate their stories of living with chronic pain. It now presents a way for more individuals enduring chronic and complex health issues to communicate their health stories and manage their healthcare better. For healthcare practitioners, it presents an opportunity to diversify your care offering and influence positive behaviour in the overall patient journey. My Health Story takes a holistic view of each unique lived experience and understands that patients are more than their disease.

CODA 2022: My Lived Experience and I Will Be There

By |2022-03-04T13:40:36+11:00March 4th, 2022|Blog, Learn, Professional Resources|

I'm thrilled to be invited to another educational event IN REAL LIFE I might add.  I really enjoy collaborating with Dr Paul Grinzi as a lot of his educational workshops have a great focus on communication. If people and their health teams can't connect then care isn't going to happen. So how do you reach, connect and help people who live with chronic pain? Come along and learn! PRIMARY AND ACUTE CARE Chronic persistent pain is a common clinical issue, and yet most of us have received very little training in how to best manage patients experiencing this. Not only do we have to manage the clinical and psychosocial issues presented by the patient, we have to recognise and manage our own biases as clinicians. The format for the workshop utilises patient experiences, clinical cases and new frameworks to help further our understanding of persistent pain and how to assist our patients. There is a specific focus on management within the community, but also opportunities to explore the challenges within the emergency and inpatient hospital interfaces. By the end of this half-day, you’ll have optimised your approach, and may find this topic a little less painful.

Mentorship Supported by the Australian Government Boosting Female Founders Initiative

By |2022-05-02T11:13:37+10:00February 26th, 2022|Advocacy, Blog, Online|

Congratulate me! I have been awarded expert mentoring with Buzz Web Media and Women With Wit’s – Lee Ussher under the Australian Government’s Boosting Female Founders Initiative (BFFI) for PainTrain [...]

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