About my website2021-06-06T15:58:38+10:00

Hello! Welcome to my website, pudendalnerve.com.au

I hope you’re not in ongoing pain but if you are, this website was created to provide resources to people who are experiencing chronic pain and/or trying to manage it.

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My Story

  • Pain Revolution March 8
  • PPA Launch - Soula, Lorimer and Anne-Florence
  • GPADD
  • Team Soula and Theo
  • Soula today
  • Sitting on the Fitball

My name is Soula, and I literally fell into the land of pelvic chronic pain – specifically Pudendal Neuralgia (PN), on March 1, 2007 when a fitball I was sitting on burst and I fell to a concrete floor. At the time, I was working at ooi, my art & design studio that I run with my husband Theo.

Since 2007, I’ve learned alot about chronic pain – especially that you can manage it. I want people to learn from my experience because I believe my ongoing chronic pain could have been avoided. I was undiagnosed for 4.5 years and that was THE biggest trigger to my chronic pain experience.

You’ll need to learn alot about yourself and make some serious changes to your life (hopefully temporary and minimal) in order to be the best possible version of the new you.

I am an artist and now I also consider myself an advocate for people with chronic pain and Australian injured workers.

It’s been an overwhelming emotional journey since 2007. As well as the endless hunt for treatment that might lead to recovery, I have:

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100% of your contribution will go towards the running costs of my websites and the development of PainTrain – My Health Summary.

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Life Blogs

Self Management Navigator Tool

September 20th, 2021|Tags: , , , , |

I've been on the communication case for a while now with PainTrain My Health Summary (PainTrain MHS), as you all know. So when my dear friend (sleuth) and Advisory Member of PainTrain MHS, Mandy Mercuri, sent me news of the Self-Management Navigator Tool, I was thrilled to see it. My professional communication background alerted me throughout my misdiagnosed years (and beyond) that something needed to be done about the ongoing appointments we all have to endure. In my view, the distress of miscommunication, not feeling understood, blank stares, the expense of wasted appointments, and the rest that you are all too familiar with is critical to helping people manage their illnesses.  This type of approach is now being embraced, and it will be unavoidable for patients to adopt a new way forward if they are expecting the best care.  Sadly those living with an invisible illness can not be passive patients. We have to create and navigate our own individual paths. As if we need more work! But it's genuinely the only way forward.

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