Dustienne Miller & Her Fab Yoga Resources
I go way back with Physical Therapist and Board Certified Women’s Health Clinical Specialist Dustienne Miller. In fact, all the way to 2014, when I was desperately [...]
April 13th, 2026
12:58 pm
March 21st, 2026
3:09 pm
One-on-One (Creative) Management With Me, Soula!
Creativity as a pathway to relief Living with ongoing invisible pain can be isolating and frustrating. Alongside my (very part-time) work as the founder of My Health Story, an artist, curator [...]
March 6th, 2022
12:19 pm
It’s my Birthday
I feel like switching the 'anniversary' thingy to a 'birthday.' I know it sounds oddly celebratory, but I also know that you have read stranger things on this website so remain unafraid to explore this latest idea with you.
February 2nd, 2022
10:13 am
And The Elephant in the Room is… Inflammation!
'Pain is a unique experience' we've all heard it, and by now, most of us believe it. But, after viewing my personal genetic report, I'm now sure that pain is a unique experience. Perhaps it's not even pain for some of us. It's not for me! This genetics investigation exposed the elephant standing by my side the last 15 years – actually, it's been with me all my life but it took an accident to begin its stampede! Official diagnosis – not pain; it's inflammation. And it always has been!
March 23rd, 2021
1:13 pm
On Neurostimulation
Neurostimulation has been key in my management of pain. It's also satisfied my wish to find a way to be as self-sufficient with my management as I possibly can be. My first stim was a peripheral stimulation unit (leads under the skin) and that was implanted in 2011. I still have this unit as a backup. In 2015 I had a sacral stim implanted but that fizzed (in my opinion) within three years. So in 2019 I had the sacral stim removed and replaced with a spinal cord neurostim. WARNING: In the video, I talk about my experience and have a few Xrays pop up to demonstrate a little detail. If you're the squeamish type you may not want to see the images – they are small, however. Read key blogs about my stim implants experiences and adventures:
- My Peripheral Stimulation implant
- Peripheral Stim messing with my bone density score
- My pain management is turning into a thesis!
- Adventures of a stim controller
- Out With the Sacral, In With the Spinal (part 1)
- Out With the Sacral, In With the Spinal (part 2)
- Out With the Sacral, In With the Spinal (part 3)
- Spinal Cord Stim Trial Day 6
August 20th, 2020
11:38 am
Q&A With Soula
I often have some very interesting questions about living with chronic pain. Usually, they are questions relating to details that I’ve never thought of discussing, but they are so important. This page [...]
February 6th, 2019
6:04 pm
Out With the Sacral, In With the Spinal (part 1)
Then things got even more strange. There was heat, radiating heat where the IPG is, in my face and also other strange feelings that not only added to my pain issues but it made me turn my stim off, more than on! Weird.
October 18th, 2017
5:09 pm
My Recent Follow up Appointment
I’ve had loads of information to process after my recent appointment with pain specialist, Dr Nick Christelis. To prevent you all from zoning out (and my backside [...]
September 28th, 2015
8:18 pm
How can you know? There might be better treatment out there!
I know that living with pain for over eight years reduces confidence and belief. It even (warning, I'm going to use the C word), discourages hope for a cure. But how could I have assumed I found my best self for four years (nearly five actually, gulp!)?
August 11th, 2015
10:35 am
Back on the treatment trail
So someone got talking to someone on a plane (you know how that story goes, your eyes begin to glaze over because you're in pain thinking 'if this friend tells me I need to meet someone and sustain a new friendship, I'm going to punch him' - but in the end, it works out that you wished you had sat next to that someone on the plane, and you meet that person and you wished you had met them a very long time ago (like eight years ago for me).