When I started this website, my hope was to connect people living with pain with healthcare practitioners. At the time (2011), there was no online information or help for Pudendal Neuralgia and other such pelvic pain. I thought if I could provide the information in one place, it would help everyone connect and solve dreaded pain issues or at least speed up the diagnosis and treatment process. I didn't hope it would take nine years. Nine years...!!! But we have arrived and the point is that anyone can access this information session.
I assumed the pain ‘industry’ was still learning about the management and treatment of chronic pain and that’s why communication was so poor. I assumed it wasn’t like that for other severe [...]
Then things got even more strange. There was heat, radiating heat where the IPG is, in my face and also other strange feelings that not only added to my pain issues but it made me turn my stim off, more than on! Weird.
I'm not exactly enthused about health admin. There's already enough admin and digital filing to do in life. But I've found that my PT health summary is saving me, not only admin time, but alot of stress having to remember details of my experience. I've included a self portrait for my specialist today!
Thank you for your patience while I updated my website. I feel refreshed now…! I’m really happy to not only have updated my website but to be reporting on my positive progress. [...]
In just a few days I will be seeing Dr Christelis. I’ve had one follow up appointment since my sacral stim implant. It’s not that the stim has miraculously sorted my chronic [...]
You might recall me plugging the Pain Down There DVD – an extensive resource for women created by Robert Echenberg, Karen Liberi, Alexandra Milspaw, and Stephanie Yeager. Now the team have taken [...]