Soula Mantalvanos, Published Author of the Journal of Medical Internet Research

By |2022-04-12T20:53:18+10:00April 12th, 2022|Advocacy, Blog, Learn, Living, Online, Professional Resources, Work / System, Workcover|

I'm an author of What Injured Workers With Complex Claims Look For in Online Communities: Netnographic Analysis, now published in one of the world's best medical journals.  

My Health Story now LIVE

By |2022-06-09T16:36:29+10:00April 12th, 2022|Blog, Learn, Professional Resources|

My Health Story is now live and has totally replaced PainTrain My Health Summary. My Health Story goes beyond helping people communicate their stories of living with chronic pain. It now presents a way for more individuals enduring chronic and complex health issues to communicate their health stories and manage their healthcare better. For healthcare practitioners, it presents an opportunity to diversify your care offering and influence positive behaviour in the overall patient journey. My Health Story takes a holistic view of each unique lived experience and understands that patients are more than their disease.

CODA 2022: My Lived Experience and I Will Be There

By |2022-03-04T13:40:36+11:00March 4th, 2022|Blog, Learn, Professional Resources|

I'm thrilled to be invited to another educational event IN REAL LIFE I might add.  I really enjoy collaborating with Dr Paul Grinzi as a lot of his educational workshops have a great focus on communication. If people and their health teams can't connect then care isn't going to happen. So how do you reach, connect and help people who live with chronic pain? Come along and learn! PRIMARY AND ACUTE CARE Chronic persistent pain is a common clinical issue, and yet most of us have received very little training in how to best manage patients experiencing this. Not only do we have to manage the clinical and psychosocial issues presented by the patient, we have to recognise and manage our own biases as clinicians. The format for the workshop utilises patient experiences, clinical cases and new frameworks to help further our understanding of persistent pain and how to assist our patients. There is a specific focus on management within the community, but also opportunities to explore the challenges within the emergency and inpatient hospital interfaces. By the end of this half-day, you’ll have optimised your approach, and may find this topic a little less painful.

Evelyn Hecht’s Pelvic Sense

By |2022-04-03T09:34:46+10:00February 6th, 2022|Blog, Learn, Professional Resources|

Evelyn totally has PelvicSense! And thankfully, Evelyn made an online pelvic healing home program out of it. It includes an easy-to-understand book, calming audios with music, downloads, and many gently progressive pelvic exercise videos. I was thrilled to chat and meet Evelyn Hecht PT recently. It is refreshing to speak to a healthcare professional who has the care factor and exudes warmth and understanding.

Presenting at the Murray City Country Coast GP Training Event

By |2022-06-09T16:36:30+10:00November 26th, 2021|Advocacy, Events, Learn, Professional Resources|

There are no formal qualifications for someone living with chronic pain but patients are considered 'patient experts' and our lived experience is very much valued. I've been invited to several seminars and training sessions relating to chronic pain over the course of my 14-year experience. It's of great significance for me to be able to use the lived experience – no other value for it really!

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