Yes, I’ve found another medium to express my pain and you can own your own copy of it!
I didn’t see the point of creating a long description of my living with pain, sharing my tips, turning journal entries into a pain story. Afterall, first and foremost, before the person in pain, I am an artist… so my book had to contain many pictures and few words, just 32 pages in fact, but I believe it’s a complete story. It doesn’t hold the solution for PN but it’ll allow you to explain it to someone else, leave it on the coffee table, and it will be light enough to carry around.
Above all I created it to express my experience so far and so that it is a bit of a companion to another PN family member. The idea was for the reader to feel empathy in a world where no one seems to understand, and to ease the pain as you look through it.
My marionette, Ms Soula, has been a great aid in helping me communicate my frustration with this invisible pain. Most of you would have read that a portrait I painted of her recently became a semi finalist piece for The National Doug Moran Portrait Painting prize. I’m happy that Ms Soula, is communicating my message. In the midst of being creative with Ms Soula (refer to full post) I have found more ways to express my pain, they have formed this book.