Dr Susie Gronski: Shape the future of men’s health
You can shape the future of men’s health: Are you a healthcare professional who should understand the biological, psychological and social impacts of chronic pelvic pain in [...]
Laura Rathbone
I’ve met another astounding and inspiring human working in the complex pain world. This time my hunt for resources finds me in the Netherlands. I’m not physically [...]
Self Management Navigator Tool
I've been on the communication case for a while now with PainTrain My Health Summary (PainTrain MHS), as you all know. So when my dear friend (sleuth) and Advisory Member of PainTrain MHS, Mandy Mercuri, sent me news of the Self-Management Navigator Tool, I was thrilled to see it. My professional communication background alerted me throughout my misdiagnosed years (and beyond) that something needed to be done about the ongoing appointments we all have to endure. In my view, the distress of miscommunication, not feeling understood, blank stares, the expense of wasted appointments, and the rest that you are all too familiar with is critical to helping people manage their illnesses. This type of approach is now being embraced, and it will be unavoidable for patients to adopt a new way forward if they are expecting the best care. Sadly those living with an invisible illness can not be passive patients. We have to create and navigate our own individual paths. As if we need more work! But it's genuinely the only way forward.
Talking Health Tech
In my attempt to implement PainTrain My Health Summary (PainTrain MHS) formally into the healthcare industry, I'm now heading past what feels like planet Pain Management and toward the Health Tech solar system. It is exciting! There are movers and shakers here, and I'm standing at the Talking Healthtech (THT) station. THT was founded by Peter Birch. Peter worked in management roles in healthcare organisations for over 15 years; big ones and small ones, innovative startups and slow-moving beasts, he's seen all different kinds. Pete has experienced the exciting developments and the frustrating stagnation of all the ups and downs in health. Now, I'm not saying chronic pain researchers aren't movers and shakers, but I feel like I'm static in their world, just repeating my story over and over. 'Lived experience' is becoming as tiresome as 'journey'. Now there's 'Narrative Medicine', which are all great descriptors, but the effect of those words on people living in pain right now feels still? How many times can we repeat the same information? We get it, practitioners hear it; pain is complex, and you need to listen to the patient more... but can you fix it now, please? I'm hopeful my new world will lead to some kind of collaboration or new opportunity. It undoubtedly has led to significant new connections, one of whom is Dr Valerio Vittone, a PhD in Biochemistry, Molecular Biology & Virology. In other words, a specialist in personalised DNA based nutrition, health & lifestyle advice! So stay tuned; my DNA kit is in the mail! We know the need to progress healthcare is a serious one – but if you consider it took a pandemic to get telehealth functioning, it's scary!
Diarmuid McCoy – YouTube Resources
Who wants to learn about pain? Who wants to have to learn about pain? Why should we? Are you over it yet? I am. But… [...]
Soula Chats With Amy Eicher
There's so much to learn in order to be able to navigate chronic pain. The psychological side of pain is huge as is the energy required to manage it! That's [...]
Early Illustrations of the Nervous System by Camillo Golgi and Santiago Ramón y Cajal
'His most revolutionary finding was the utter lack of evidence for either axons or dendrites fusing and forming networks like those described by Golgi. He observed that, on the contrary, it seemed neurons did not need to touch to communicate. They only had to be contiguous for signals to be transmitted from one to the other. (The term “synapse”, used to describe the structure that permits a neuron to pass on its signal, would not be coined, by Charles Sherrington, until 1897.)
Pain Toolkit workshop For people with long-term persisting pain
APR 10, 2021: Pain Toolkit workshop For people with long-term persisting pain by Pete Moore
Supported Back Pain Self-Management – Made Simple
Forming part of the 2021 Global Year About Back Pain Webinar Series Date: 18 March 2021 Time: 04:00 EDT/08:00 GMT/21:00 NZDT/19:00 AEDT Length: 90 minutes Supported Back [...]