/Help

Back on the treatment trail

By |2017-12-11T16:29:24+00:00August 11th, 2015|Help, My treatment, Professional|

So someone got talking to someone on a plane (you know how that story goes, your eyes begin to glaze over because you're in pain thinking 'if this friend tells me I need to meet someone and sustain a new friendship, I'm going to punch him' - but in the end, it works out that you wished you had sat next to that someone on the plane, and you meet that person and you wished you had met them a very long time ago (like eight years ago for me).

This Train is Bound for… Wholeville: A Travel Guide for the Perplexed

By |2017-12-17T12:37:26+00:00May 2nd, 2015|Learn, Pain Train, Professional Resources|

Here are some of the important messages that we hope you have taken on board: Your brain can be a powerful tool to help you manage your pain experience. Like all of our life experiences, that of being in pain can be changed. You are not to blame for your persistent pain. You can experience pain without evidence of tissue damage and not experience pain when tissue damage has occurred. Drugs (or needles) alone are not the answer. The “third space” engagement gives you the best possible opportunity to better manage your pain. Consider embracing the whope model of care. Could this be your slogan? Know pain, know thyself!

Pelvic Pain Foundation of Australia’s Melbourne launch

By |2017-12-11T15:12:07+00:00March 25th, 2015|Advocacy, Blog, Help, Professional|

I was thrilled to be invited to The Pelvic Pain Foundation of Australia (PPFA)'s Melbourne launch last night. I originally met Dr Susan Evans when I was invited to present my patient story at AIM Pain 2014. I had cyber met Dr Evans prior, asking if I could include her details on this website, in fact I've 'e-met' many pain professionals this way. I never dreamt that one day they may all be in the one room together, all of us advocating for pelvic pain and helping start up a National organisation that addresses pelvic pain for women AND MEN. Needless to say, last night I went on a magic carpet ride!

Pain Train – Patient health profiling

By |2017-12-17T12:37:25+00:00January 12th, 2015|Blog, Help, Manage, Pain Train, Professional|

About Pain Train — where it came from and why it works Download this information in pdf format Our mission Pain Train’s mission is to enable patients with chronic pain to record and store all relevant information about their pain, [...]

Pudendal Neuralgia Association, Inc

By |2017-12-12T11:38:52+00:00May 18th, 2014|Help, Professional|

(excerpt from www.pudendalassociation.org) Who We Are The Pudendal Neuralgia Association, Inc. was established in 2013 as a non-profit organization in the state of Massachussetts. We provide educational services to pudendal neuralgia patients and their families as well as medical personnel [...]

A new workers compensation programme in South Australia

By |2017-12-11T16:15:33+00:00May 16th, 2014|Help, Professional, Support, Work / System|

I met Rosemary McKenzie-Ferguson advocating an online forum for injured workers. She spoke in a way I'd never heard before, she spoke to me about support, empathy and trust, the ways an injured worker never experiences (I'm vouching for the [...]