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Pelvic Pain Foundation of Australia’s Melbourne launch

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PPA Launch - Soula, Lorimer and Anne-Florence

After 4.5 years and desperate, Soula took a stab and emailed Lorimer Moseley who kindly replied and suggested she contact Anne-Florence Plante. Anne-Florence diagnosed Soula instantly.

Melbourne launch March 24, 2015

I was thrilled to be invited to The Pelvic Pain Foundation of Australia (PPFA) Melbourne launch last night. I originally met Dr Susan Evans when I was invited to present my patient story at AIM Pain 2014.  I had cyber met Dr Evans prior, asking if I could include her details on this website, in fact I’ve ‘e-met’ many pain professionals this way. I never dreamt that one day they may all be in the one room together, all of us advocating for pelvic pain and helping start up a National organisation that addresses pelvic pain for women AND MEN.

Needless to say, last night I went on a magic carpet ride! Continue Reading

Arthritis & Osteoporosis WA, Making Sense of Pain, 7-8th March

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Update March 13, 2014

The Inter-disciplinary Workshop for Health Professionals, Making Sense of Pain, was organised by Dr John Quintner (Pain Medicine physician) and Melanie Galbraith (Physiotherapist).

The Workshop was sponsored by Arthritis and Osteoporosis WA and held at the Wyllie Arthritis Centre, 7th and 8th March 2014.

Key presenters were John, Melanie, Mary Roberts (Psychologist), Jane Muirhead (Occupational Therapist) and Vance Locke (Academic Psychologist) were key presenters.

Vanessa Watson and Eva Miller were our two Pain Champions who told their stories and engaged with the Health Professionals on the second day of the workshop.

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Event Description

The aim of this workshop is to provide physiotherapists and other health professionals with an opportunity to effectively translate their knowledge and skills into clinical practice. Of equal importance is that they become aware of their own beliefs and attitudes to people in pain and the potential for these attributes to colour therapeutic relationships and influence outcomes. Continue Reading

Myself, Ms Soula and my pelvic pain story at the Alliance for Improving the Management of Pain 2014

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AIM of Pain 2014 from (OoI) on Vimeo. Or read the speech below.

I would have had to be dead not to front up to an opportunity where I could present my pain journey to 180 chronic pain interested practitioners.

Was I terrified? Absolutely! But as if chronic pain hasn’t trained me for that, pushing me past all my boundaries and limits, and facing constant fears… this was going to be a piece of cake in comparison!

The Alliance for Improving the Management of Pain 2014 (AIM Pain 2014) was held in Sydney and PainAustralia were searching for a patient to tell their story. My first thoughts were; I had to be able to tell my pelvic pain story through art. Ms Soula had to be on the stage with me, and I worried that this was impossible to physically manage without Theo’s help. As it turned out all that was ok, in fact the organisers were most enthusiastic about the creative side, and the support offered to both Theo and I was 100%.

I was asked to present my story as honestly as possible and in my own words and pictures. Continue Reading

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Definitions of pain

What is Pudendal Neuralgia (PN)?
Most simply put PN is Carpal Tunnel in the pelvis/buttocks. Compression of the Pudendal Nerve occurs after trauma to the pelvis and is aggravated with pressure. The pain is often described as a toothache like pain, with spasms, sensations of tingling, numbness, or burning. It can be very debilitating.

What is Neuropathic pain?
Neuropathic pain is the result of an injury or malfunction in the peripheral or central nervous system. The pain is often triggered by an injury, but this injury may or may not involve actual damage to the nervous system. More…

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