My Health Story Now Live in Your App Store

By |2022-06-09T20:53:03+10:00June 9th, 2022|Help, My Health Story, Professional|

I, Soula, the way I live and the type of person I am, and my story were fundamental to appointments and essential to my treatment. In addition, I realised my health experience was unique and needed to be understood. Professionals are understanding this a lot more now. On educational health networks, I see this 'tip' all the time now: People with invisible illnesses are more than their diseases And on professional forums, I read how lost practitioners are as to how to help people living with ongoing illnesses (which also explains why so many of us are enduring long-term illnesses!). So are you ready to navigate? Are you ready to put your unique experience forward and be better understood? Then, your story is the most essential part of this change. And if you need some guidance, I'm happy to zoom in if you need online training sessions, or you can email me a 'how do I...' question, and I'll film the answer for you.

Pain Revolution Local Pain Educator Directory

By |2022-05-05T12:31:54+10:00May 5th, 2022|Help, Professional|

To my Australian followers, there is a Local Pain Educator Directory now online on the Pain Revolution website. The goal of this new directory is to create a resource that professionals and consumers can use to seek out someone well versed in pain. The directory provides the location and a short bio of the Local Pain Educator and enables searching by occupation, services and specialisations.

Soula Mantalvanos, Published Author of the Journal of Medical Internet Research

By |2022-04-12T20:53:18+10:00April 12th, 2022|Advocacy, Blog, Learn, Living, Online, Professional Resources, Work / System, Workcover|

I'm an author of What Injured Workers With Complex Claims Look For in Online Communities: Netnographic Analysis, now published in one of the world's best medical journals.  

My Health Story now LIVE

By |2022-06-09T16:36:29+10:00April 12th, 2022|Blog, Learn, Professional Resources|

My Health Story is now live and has totally replaced PainTrain My Health Summary. My Health Story goes beyond helping people communicate their stories of living with chronic pain. It now presents a way for more individuals enduring chronic and complex health issues to communicate their health stories and manage their healthcare better. For healthcare practitioners, it presents an opportunity to diversify your care offering and influence positive behaviour in the overall patient journey. My Health Story takes a holistic view of each unique lived experience and understands that patients are more than their disease.

CODA 2022: My Lived Experience and I Will Be There

By |2022-03-04T13:40:36+11:00March 4th, 2022|Blog, Learn, Professional Resources|

I'm thrilled to be invited to another educational event IN REAL LIFE I might add.  I really enjoy collaborating with Dr Paul Grinzi as a lot of his educational workshops have a great focus on communication. If people and their health teams can't connect then care isn't going to happen. So how do you reach, connect and help people who live with chronic pain? Come along and learn! PRIMARY AND ACUTE CARE Chronic persistent pain is a common clinical issue, and yet most of us have received very little training in how to best manage patients experiencing this. Not only do we have to manage the clinical and psychosocial issues presented by the patient, we have to recognise and manage our own biases as clinicians. The format for the workshop utilises patient experiences, clinical cases and new frameworks to help further our understanding of persistent pain and how to assist our patients. There is a specific focus on management within the community, but also opportunities to explore the challenges within the emergency and inpatient hospital interfaces. By the end of this half-day, you’ll have optimised your approach, and may find this topic a little less painful.

Rebrand Announcement: My Health Story

By |2022-06-09T16:36:29+10:00February 14th, 2022|Blog, Help, Manage, My Health Story|

I was so close to throwing the PainTrain My Health Summary idea out the window when COVID-19 hit.  There was no way I could be positive about pushing on with my little train startup while a pandemic was approaching. But as it turned out COVID-19 catapulted telehealth behaviour and with that came increased interest in health tech and a newborn... the digital patient!  My creative communication experience always encouraged me down this complex path – I found healthcare primitive! The way people manage their health and the way appointments are managed has not changed for eons. If you live with an ongoing medical condition, we know now that it takes teamwork to manage it and you have to be responsible for your own health information (or it all gets documented incorrectly!). Clearly, I believe that we need to step up and manage our health and all things relating to it. We especially need to do this because we all have such lengthy stories to tell! So on that note, here's my big news from my humble little train which is now planning to go way beyond its destination... if you help me, there's a lifetime subscription in it for you!

Presenting My Pain Management Story and Vision at the Murray City Coast Country GP Training

By |2022-06-09T16:36:29+10:00December 3rd, 2021|Advocacy, Blog, Events, My Health Story|

It was wonderful sharing my story and vision at the Murray City Coast Country GP Training. AND especially presenting on a stage and in actual physical life to 50 general practitioners (GPs) who [...]

Presenting at the Murray City Country Coast GP Training Event

By |2022-06-09T16:36:30+10:00November 26th, 2021|Advocacy, Events, Learn, Professional Resources|

There are no formal qualifications for someone living with chronic pain but patients are considered 'patient experts' and our lived experience is very much valued. I've been invited to several seminars and training sessions relating to chronic pain over the course of my 14-year experience. It's of great significance for me to be able to use the lived experience – no other value for it really!

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