A Chat With Mandy Mercuri
Mandy and I initially met in 2014 when she sent me an email. Ping, in my inbox just like that! Mandy sent a most inspiring filled message. Aside from [...]
A Chat With Dr Susie – Pelvic Pain Specialist for Men
There's no way I could have set up a video resource section of people who have most impacted my chronic pain journey without including Dr Susie Gronski. That reason [...]
Maddy Lock – My Alexander Technique Physiotherapist
Alexander Technique is a very special kind of physiotherapy. Well, it's kind of not physiotherapy but rather a guiding formula for your body and mind. When I was in my [...]
A Chat with Deb Thompson
A most essential chat – person (living with pain)-to-person (living with pain). As well as having a lived experience of pain in common, Deb and I also share a love for [...]
Soula Chats With Amy Eicher
There's so much to learn in order to be able to navigate chronic pain. The psychological side of pain is huge as is the energy required to manage it! That's [...]
A Chat With Anne-Florence Plante
I can't really think of a better way to mark my 14 year anniversary with chronic pain than to present this wonderful (loooong) chat with my diagnosing physiotherapist, Anne-Florence [...]
Soula & Theo Chat About Pain Management
You have all heard so much about Theo and how we have (and continue) to work together through chronic pain. However, you have never really heard from Theo directly nor does [...]
Presentation: An Approach to Chronic Non-Cancer Pain
In November this year, I was invited to present my pain experience to a group of 40 GP's. The topic was: An Approach to Chronic Non-Cancer Pain and the workshop was facilitated by Dr Paul Grinzi for Murray City Country Coast GP Training. Where does one start when asked to present to 40 pain interested GP's in 20 minutes? There's a great emoji to illustrate the look on my face when I ponder this question. You can well imagine. As an 'expert' in my 'field' 20 minutes to describe 13 years of living with chronic pain of which 4.5 years were spent lost in a forest is still a tough gig. However, this was a presentation to medical professionals. And they know everything, right? .... I've decided to make this video a paid resource. All proceeds go towards funding this website and PainTrain – My Health Summary. What do I talk about in my video? — O:43 My story — 2:50 Investigating pain, research & treatment — 4:26 Diagnosis — 5:55 Advocacy — 7:45 The experience of pain — 8:27 Medication — 9:35 Characteristics of Pain — 10:55 Planning life with chronic pain — 12:09 Pain management — 13:50 PainTrain
Foam! I Found Foam!
Foam! I Found Foam! Am I excited today! As I progress this path of pain, I retain my non-negotiable pointers – one of which is my need for my custom made seating aid. I would love to ditch this damn thing from under my backside and from my clutch every time I go out for a seated event, but it's just too valuable for my capacity. Figuring out the big 'dangers in me' (remember we talked about DIMS and SIMS?) has been key to my pacing forward.