Then COVID-19 hit, and life got confusing and unpredictable. It was hard to know where life was heading all over again!
But, COVID-19’s lifestyle ended up being great for me – I was living inside my safe and happy solitude bubble, and I had no social pressure. So I focused on myself and I paced.
My 50th birthday was a great celebration, all low-capacity-activity considered. Since then, I see the trio of pacing, my new lifestyle, and the spinal cord stim have been my winning combo. I can see I began resuming year 37 since re-establishing myself at year 50.
But the icing on this birthday cake is made up of my Inflammasome discovery. It’s just been magnificent meeting my elephant.
Indeed, I’m not pain-free, and my feet roar and burn and feel like they’ll explode. My seating cushion is still my closest mate, sit/stand is the main agenda of the day, I can’t drive, and commuting is still an issue. But the management of these difficulties and the in-between bits are so different.
Storms are even enjoyable! My hands give me the weather signs, but I’m not lying on the floor feeling my insides are trying to get out of my body because of a weather change.
The volume has come down… cake, please!
The greatest gift delivered on this birthday, though, is abundant real hope.
Actually, I’m not hopeful anymore; I’m anticipating that my quality of life will continue to get better. The smiles will be longer and broader, and Theo and I can plan and resume our lives…well, from a different place in another way, but it still feels youthful.
I haven’t ever felt a better time to click my heels and head back home (I might ditch the balloon ride; after all, who’d ever trust an inflatable gadget again?). But, I certainly feel it’s the right time now for self-trust and self-belief in my body.
Enough of this wild, confusing and cruel journey. It’s time for cake.