March 23rd, 2021 1:13 pm

On Neurostimulation

By |2023-02-17T10:32:00+11:00March 23rd, 2021|Categories: About, My treatment|Tags: , , , , , |

Neurostimulation has been key in my management of pain. It's also satisfied my wish to find a way to be as self-sufficient with my management as I possibly can be. My first stim was a peripheral stimulation unit (leads under the skin) and that was implanted in 2011. I still have this unit as a backup. In 2015 I had a sacral stim implanted but that fizzed (in my opinion) within three years. So in 2019 I had the sacral stim removed and replaced with a spinal cord neurostim. WARNING: In the video, I talk about my experience and have a few Xrays pop up to demonstrate a little detail. If you're the squeamish type you may not want to see the images – they are small, however. Read key blogs about my stim implants experiences and adventures:

Pain management is unique to all of us and the key to navigating the complex journey (I believe) is gathering as much information as possible. I hope this vimeo is of great help.
March 4th, 2021 9:36 pm

Perhaps Pain Isn’t my Brain’s Fault

By |2021-03-09T21:06:35+11:00March 4th, 2021|Categories: About, Blog, Living|Tags: , , |

Or my nervous system's fault either. Have you ever let your mind wander beyond the boundaries of chronic pain research? I can't help it, my mind flies around all over the place! Today, it's in Maroni, a village in Larnaca Cyprus. That's where my mum was born. I've been wondering alot about village life lately. And more specifically about my grandmother (Giagia) and her lifestyle in Maroni. I've visited Cyprus four times – each time without pain! I really love mum's village Maroni, it's beautiful. I always make a point of walking around the whole village when I visit so am very familiar with its nostalgic, stony, dry characteristics. I love the feeling of my feet on the ground in Maroni – not sure what that is. Perhaps a memory...

February 15th, 2021 12:13 pm

Soula & Theo Chat About Pain Management

By |2023-11-07T11:26:06+11:00February 15th, 2021|Categories: Advocacy, Film, Learn, Online, Personal resources|Tags: , , , , |

You have all heard so much about Theo and how we have (and continue) to work together through chronic pain. However, you have never really heard from Theo directly nor does [...]

February 13th, 2021 10:52 am

Life, Stitched Back Up Again

By |2023-01-24T16:13:28+11:00February 13th, 2021|Categories: Blog, Workcover|Tags: , , , , , , , |

Everything that chronic pain had undone in the first nine years of this 14-year nightmare, Theo and I have managed to finally mend. Stitch by stitch, we made a new house, founded a new livelihood, purchased a more comfy car, made new friends, welcomed a different breed of fur child and all of this in a new (unfamiliar) town. It's a rebirth! All of this, driven by the hunt for pain management after a ball pop, drop and a bang. Or was it...?

December 29th, 2020 11:26 am

Presentation: An Approach to Chronic Non-Cancer Pain

By |2022-11-26T20:58:48+11:00December 29th, 2020|Categories: Advocacy, Learn, Personal resources|Tags: , , , , , , , |

In November this year, I was invited to present my pain experience to a group of 40 GP's. The topic was: An Approach to Chronic Non-Cancer Pain and the workshop was facilitated by Dr Paul Grinzi for Murray City Country Coast GP Training. Where does one start when asked to present to 40 pain interested GP's in 20 minutes? There's a great emoji to illustrate the look on my face when I ponder this question. You can well imagine. As an 'expert' in my 'field' 20 minutes to describe 13 years of living with chronic pain of which 4.5 years were spent lost in a forest is still a tough gig. However, this was a presentation to medical professionals. And they know everything, right? .... I've decided to make this video a paid resource. All proceeds go towards funding this website and PainTrain – My Health Summary. What do I talk about in my video? — O:43 My story — 2:50 Investigating pain, research & treatment — 4:26 Diagnosis — 5:55 Advocacy — 7:45 The experience of pain — 8:27 Medication — 9:35 Characteristics of Pain — 10:55 Planning life with chronic pain — 12:09 Pain management — 13:50 PainTrain

December 2nd, 2020 12:42 pm

Dr Susie Gronski: She’s A Brilliant Resource For Males With Pelvic Pain

By |2020-12-02T12:42:49+11:00December 2nd, 2020|Categories: Learn, Professional Resources|Tags: , , |

And ladies can also benefit as well! I’m signed up to Dr Susie’s news – highly recommend you do so also as she is a wealth of information. Although Dr Susie specialises [...]

September 6th, 2020 11:10 am

Life’s Changed

By |2022-09-06T11:42:36+10:00September 6th, 2020|Categories: Blog|Tags: , , , |

Not knowing what's ahead is a familiar nightmare for people living with chronic illness and injured workers and their families. This lived experience has been misunderstood. This lack of empathy could not have been understood without the personal experience of something like COVID-19 – something impacting the world. Even Governments may just get a glimpse of looking down at their feet and feeling the ground below them is trembling. Being unable to make plans and left dangling, waiting to hear about a way forward – whether you can resume work or even have a job (or business) is excruciating. Add a long-term health issue to that equation and the world begins to fall in on you. You can't help but ask, 'will I get through this?'

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