Presentation: An Approach to Chronic Non-Cancer Pain

By |2021-02-15T14:05:54+11:00December 29th, 2020|Advocacy, Learn, Personal resources|

In November this year, I was invited to present my pain experience to a group of 40 GP's. The topic was: An Approach to Chronic Non-Cancer Pain and the workshop was facilitated by Dr Paul Grinzi for Murray City Country Coast GP Training. Where does one start when asked to present to 40 pain interested GP's in 20 minutes? There's a great emoji to illustrate the look on my face when I ponder this question. You can well imagine. As an 'expert' in my 'field' 20 minutes to describe 13 years of living with chronic pain of which 4.5 years were spent lost in a forest is still a tough gig. However, this was a presentation to medical professionals. And they know everything, right? .... I've decided to make this video a paid resource. All proceeds go towards funding this website and PainTrain – My Health Summary. What do I talk about in my video? — O:43 My story — 2:50 Investigating pain, research & treatment — 4:26 Diagnosis — 5:55 Advocacy — 7:45 The experience of pain — 8:27 Medication — 9:35 Characteristics of Pain — 10:55 Planning life with chronic pain — 12:09 Pain management — 13:50 PainTrain

A PainTrain Post CV-19 Update

By |2020-11-30T11:23:56+11:00November 30th, 2020|Blog, Help, Pain Train|

Watch and listen to my PainTrain Post CV-19 update. I missed my health summary. I didn't feel right not having my own history. Sure I have health files all over the placed (physically, digitally, with many professionals, x-rays galore) but PainTrain is a bit of a rock for me. It's my safekeeping. After not having PainTrain for months, what I most kept thinking about was 'what if I have to go to an appointment and meet a new healthcare professional?'.

Artists Living With a Disability Go Bush

By |2020-10-24T10:48:34+11:00October 24th, 2020|Blog|

Support for artists is rare. Understanding and value for the arts, in general, is rare and if you are an artist with a disability... well, you fall off the media platform altogether. So, what's especially great about Nas Campanella's story about this artists' residency is that it relays the important message of creativity as a form of catharsis and management for invisible chronic health issues. And the artists get to explain. 

Life’s Changed

By |2020-09-06T11:10:45+10:00September 6th, 2020|Blog|

Not knowing what's ahead is a familiar nightmare for people living with chronic illness and injured workers and their families. This lived experience has been misunderstood. This lack of empathy could not have been understood without the personal experience of something like COVID-19 – something impacting the world. Even Governments may just get a glimpse of looking down at their feet and feeling the ground below them is trembling. Being unable to make plans and left dangling, waiting to hear about a way forward – whether you can resume work or even have a job (or business) is excruciating. Add a long-term health issue to that equation and the world begins to fall in on you. You can't help but ask, 'will I get through this?'

Aug 28, 2020

By |2020-08-28T20:14:39+10:00August 28th, 2020|About, Living|

8am – 12noon tradies here ‘fixing’ heating/cooling unit (making noise, causing disruption and breaking much-needed silence). + Phone calls, all day (important, relating to mum’s future care plan). + Huge tree on [...]

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