January 27th, 2014 10:38 pm

Back to yoga, thanks to Dustienne Miller’s, Your Pace Yoga

By |2023-02-17T10:32:01+11:00January 27th, 2014|Categories: Help, Learn, Professional, Professional Resources|Tags: , , , |

This is truly a thrilling post for me to finally be writing. I used to practise yoga 4 mornings a week for at least 45 minutes pre injury. After my warm up poses, my spine unravelling was eight minutes in shoulder stand, followed by another eight minutes in plough pose before Savasana (rest). So you can imagine how many times I've tried to get back to my yoga since knowing the benefits. i was always unsuccessful until I came across Dustienne's Your Pace Yoga dvd. I still can't work out what's different, of course I've made progress but that can't be the answer as it wasn't so long ago I attempted cat/cow pose only to begin flaring. I'd say Dustienne's sequence and breathing is definitely focused on opening, lengthening and creating space in the pelvis, it just feels great and I'm happy to report I've managed it once a week for over a month now. I know that's not huge, but I'm blowing my trumpets that I could sustain one of the routines. I hope to get to both but my struggle lying on my back may prevent me.

September 21st, 2013 12:59 pm

Soula’s PN Weather Update

By |2023-02-17T10:32:01+11:00September 21st, 2013|Categories: About, Blog, Pudendal Neuralgia, The pain|Tags: , , , , |

It's been a while since I posted a personal update but it's probably accurate to say that PN's weather patterns need to be documented seasonally. I mostly have turbulence, like it's sunny one day/stormy the next, or otherwise described as I take two steps forward and about 1.9 steps back. It's incredibly frustrating. So rather than report all the fluctuating details in between, it's best to leave some months go by to really figure out the progress. So now, the months have gone by and I can deliver to you, Soula's PN weather update for September 21, 2013.

April 23rd, 2013 11:31 am

My ‘Fatty’ tail aint fat afterall!

By |2023-02-17T10:32:01+11:00April 23rd, 2013|Categories: About, Blog, My treatment|Tags: , , , , |

Closure really is something. Feeling like a niggling concern is finally put to rest can be so satisfying, it brings me such calm. Slowly, my pelvic chronic pain niggles are finding their place and providing me with the peace my body and mind needs so I can let go, move on and most of all feel my injury is clearly understood. I had another session with the wonderful Raffaele who continues to treat me fortnightly. I was ready to call the next nerve block last week but after yesterday I'm hopeful again and thinking I was in some kind of a flare. I can't expect (but I will!) that with my effective management flare ups will cease to happen. As I test my capacity and lift my full litres of milk occasionally, walk the dog and go out more often, I've got to expect at some point the body is going to say, 'hang on love, you're lifting too much milk!'

December 23rd, 2012 9:31 am

Building blocks… I hope!

By |2023-02-17T10:32:01+11:00December 23rd, 2012|Categories: About, Blog, My treatment|Tags: , , |

I’m not yet clear about the effects of Nerve block No. 3, but I’m calling it… I’m going to be positive… I believe I’m building! It’s just a sorta three steps forward and two back situation.. I hope. So far, my building blocks go like this: • Nerve block No. 1 (December 7, 2011), • Nerve block No. 2 (April 18, 2012), • Nerve block No. 3 (November 23, 2012)

July 9th, 2012 11:16 am

Italian lifestyle, perfecto for Pudendal Neuralgia

By |2023-02-17T10:32:01+11:00July 9th, 2012|Categories: About, Living|Tags: , , |

...So with my returned senses came dreams, with senses and dreams came diagnosis, with diagnosis came, finally, appropriate treatment, and with the right treatment came great pain relief and some much deserved and needed increased capacity. I feel I've arrived on a very high mountain but had to crawl all the way up over 5 1/2 years. So, here we are on the mountain, I mean, in Italy, and boy did we pick the right place! Not only did we have a divine holiday but we stumbled on what feels like a miracle treatment for my form of PN and that was part of the Italian lifestyle: bidets and siestas...

July 4th, 2012 5:37 pm

To block or not to block…

By |2023-02-17T10:32:01+11:00July 4th, 2012|Categories: About, My treatment|Tags: , , |

.... As documented many times with this condition, treatment isn't just about relief, it also provides more detail about the issue and this becomes a guide for the next step. It's like taking mini steps of progress and it really feels fabulous, I feel as though I gain some control, I foresee future options and ultimately, I regain some hope. Without this I'm travelling blindly.... I began to really struggle 12 weeks after the first block and even during that time I had a few flare ups. I wondered if my implant perhaps had interfered with my nerve block as it's known to cause pain if you keep it on whilst the pain is at a low-level (yes, try to figure that one out!!) By the time I realised my nerve block was well and truly wearing off I was at the 14 week mark, and having been very excited with what relief I had, Theo and I booked a holiday to Italy. Thankfully the brilliant Dr Courtney was able to fit me in for another nerve block at the 19 week mark which was exactly two weeks before travel time. Why am I mentioning the holiday? Because I believe a nerve block needs support, it needed me to get out of the pain routine and team it up with as much distraction as possible... I felt my brain would freshen up, have a new shot at life and not have to face my day bed, aids, daily pain routine etc etc. I set off to live a dream in hope distraction would bring a positive change and another step forward...

November 19th, 2011 10:41 am

Diagnosis: Physiotherapy at the Women’s

By |2023-02-17T10:32:01+11:00November 19th, 2011|Categories: Help, My treatment, Professional|Tags: , , , , |

It felt like a miracle and took all of about 15 minutes for the phsyiotherapist (at the chronic pelvic pain clinic at the Women's here in Melbourne Australia) to give me her French infused explanation that my pain was most probably coming from my Pudendal Nerve (yes, a name, I had a name!). It took another 15mins for her to put me in on my back (I never lay on my back as it was too painful) and apply a pressure/postural technique that switched my pain off! (Yes, OFF... calm, silence, stillness, roar gone, no spasm, quiet, peace)... unbelievable but this is true.

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