June 10th, 2013 10:35 am

Sharing Barry’s experience with Male Pudendal Neuralgia

By |2021-04-25T09:58:09+10:00June 10th, 2013|Categories: About, Learn, Personal resources, Pudendal Neuralgia|Tags: , , , |


I've lived here in Delaware since December 2011 and have not had a block since. I already had 6 Pudendal Nerve blocks and this after so many other procedures:
 5 Ganglion Blocks, 6 Caudal Blocks, 2 Botox injections, 2 Radio Frequency Ablations, 2 Neurostimulator Trials, an Interstim Impant, and then the 6 Pudendal Nerve blocks. Endless research and finally putting the right two words together on Google, opened up the world of Pudendal Neuralgia (Neuropathy) to us. That was near the end of December 2010. On the day after New Years and in response to two letters I sent to two Dr's names I had found, I got calls from both Dr’s the same day.

June 10th, 2013 10:34 am

How do I know if I have PN or PNE?

By |2017-12-11T09:42:18+11:00June 10th, 2013|Categories: About, Help, Learn, Professional, Professional Resources, Pudendal Neuralgia|Tags: , , , , |

Before I get into PN versus PNE, I want to first give you a brief explanation of the physiology of the pudendal nerve and the diagnosis of PN. The pudendal nerve is a large nerve that arises from the S2, S3, and S4 nerve roots in the sacrum, and divides into three branches—the inferior rectal nerve, the perineal branch, and the dorsal clitoral/penile branch. The nerve travels a tortuous course through the pelvis to innervate: • the majority of the pelvic floor muscles, • the perineum, • the perianal area, • the distal third of the urethra • part of the anal canal • the skin of the vulva, the clitoris, portions of the labia in women, • and the penis and scrotum in men. The pudendal nerve travels a torturous course through the pelvis. Patients with PN can have tingling, stabbing, and/or shooting pain anywhere in the territory of the nerve. Symptoms include vulvar or penile pain, perineal pain, anal pain, clitoral pain, and pain at the ischial tuberosities as well as pain with bowel movements, urination, and orgasm.

January 17th, 2013 2:22 pm

Talk to me!

By |2017-12-11T09:17:00+11:00January 17th, 2013|Categories: contact|Tags: |

I don't encourage contact as it's difficult for me to manage the communication but If you feel you're going to burst if you don't tell me something, then please feel free to [...]

January 15th, 2013 4:27 pm

Vulvodynia. Yes, you read right… women get pain ‘down there’.

By |2017-12-11T09:42:19+11:00January 15th, 2013|Categories: Learn, Personal resources|Tags: , |

Pain in the pelvis can include pain 'down there' too... sometimes 'back there' as well! True! Just follow the path of the Pudendal Nerve and see where its extremities are... I have cyber met many women who suffer with this awful condition called, Vulvodynia. The Pudendal Nerve branches extend to the Vulva, and so the condition is certainly 'related' to the whole Pelvic Chronic Pain issue. I personally relate to the condition after having extremely high sensory signals (almost maddening like I had my own 'hoo-ha' stuck in a power point!!), up until an oversized pelvic ligament was found and resected. Thankfully that high sensory pain (and associated issues) ended for me there. Of course my Pudendal Nerve and I are still in a personal battle over its insistant pain tune. But... I'll leave my personal details there and concentrate on some much needed awareness for my pain sisters who are out there telling their story and providing a voice to those who can't bare to speak about this awful issue, Vulvodynia. Firstly, a wonderful and supportive cyber friend, Vanessa Watson who lives in Perth and helps run the Pelvic Pain Support group with Catherine Aurubind for HOPE (Health Organization for Pudendal Education). Vanessa's story was also recently published in The Sydney Morning Herald. You can also find us chatting on Facebook. Secondly, Esther runs her 'Mad Peach, living with chronic pain in the hoo-ha' blog, and might I add with a great sense of humour. Read her account and many other accounts from her followers at: madpeach.blogspot.com.au. And thirdly I'll add a recent story, Privacy around private parts hurts women's health, which went to air on the ABC'S 7:30 report last week. It is certainly difficult to speak of this very personal pain but the more documentation and the more we share our stories, the more courage we give to our sisters to speak up. Speaking up means we share our treatments and knowledge and bring pain relief and quality of life. Silence will take us nowhere. Please share this post and related links.

September 26th, 2012 9:53 pm

Awwwards Honorable Mention

By |2017-12-15T15:54:49+11:00September 26th, 2012|Categories: About, Creativity, The pain|Tags: , |

Oh happy day! Yes this website has been nominated for an Awwwards 'Site of the Day' with an Honorable Mention. Please help me say, 'thank you' to the wonderful team at Origin of Image who helped me put this pelvic pain resource together and in turn gain more awareness for pudendal neuralgia. All you need to do is visit this awwardswebsite link, log in with your facebook or twitter account (or register) and rate us from 1-10. To date, pudendalnerve.com.au has had almost 10,000 visitors. It certainly isn't anything to be happy about, that's alot of people in pain, but if thats an indication the website is indeed becoming a resource, creating awareness and helping with the frustration of chronic pain, which in turn gives great relief and direction, then I'll be very happy. My chronic pain at least served a purpose.

June 27th, 2012 12:26 pm

Expired and fallen through the cracks

By |2023-01-24T16:11:09+11:00June 27th, 2012|Categories: Workcover|Tags: , , , |

After a few battles regarding my massage treatments, peripheral stimulation implant and finally receiving a letter form my WorkSafe agent stating I would no longer be receiving medical reimbursements/support, I began a hunt for a deserving explanation... But back to my main point, the answer I was seeking. I called the contact the Hon Gordon Rich-Phillips advised and it led to a conversation with my WorkSafe Agent's Injury Management Advisor (IMA) and for once, I seemed to be having an open and honest conversation with a WorkSafe Agent employee. It's hard to say it was honest because this system has taught me not to trust anyone, sadly. It felt like a great relief to be speaking to an educated, intelligent, experienced and capable person... I didn't get invalid and poor excuses or worse still, lies. Every point I made was dealt with and the conversation was about me, my case and my specific issues... ...the grand finale was that the IMA was going to answer why my medical expenses support had ceased?

April 20th, 2012 3:01 pm

The Pudendal Neuralgia Masters and Their Support for my Website

By |2017-12-11T11:00:40+11:00April 20th, 2012|Categories: Help, Professional|Tags: , |

I can't adequately define the moment I was diagnosed, it's just too difficult to explain the 4.5 year scattered hunt that ended with a few seconds and just two words! Empathy and understanding however, are two words that do explain what I felt when seeking approval to use the research and names of the Pudendal Neuralgia Masters (as I like to call these specialists). Honestly, if words, thoughts and care from complete strangers could heal me I would have been healed twice over by now. These Masters really touched my heart (unfortunately not my stubborn pudendal nerve, but all in good time!). I wanted to share these comments, especially for anyone suffering with Pudendal Neuralgia as I feel its important that we all know who these incredible human beings are and that they are endlessly working towards our cure and international awareness every day. The other important thing is to know where they are.

November 29th, 2011 4:57 am

Donate

By |2017-12-15T15:56:11+11:00November 29th, 2011|Categories: About, Advocacy, The pain|Tags: |

No donations necessary but if you are a health org and would like to support the cause I would certainly appreciate the sponsorship. Everyone else just blab your head off if the site has been a help to you. If you can provide more information and new resources then please use the contact form and let me know. Quickly!

November 24th, 2011 4:29 am

Pain as an Art Form

By |2021-02-24T10:28:43+11:00November 24th, 2011|Categories: Learn, Manage, Personal resources|Tags: , , |

Mr. Collen said the main goal of the exhibit is to raise awareness about the problem of chronic pain. However, he said he hopes one day to find a sponsor to take the exhibit on tour. “People don’t believe what they can’t see,” Mr. Collen said. “But they see a piece of art an individual created about their pain and everything changes.”

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