Hello! Welcome to my website, pudendalnerve.com.au
I hope you’re not in ongoing pain but if you are, this website was created to provide resources to people who are experiencing chronic pain and/or trying to manage it.
My Advocacy & Helpful Resources
My Story
My name is Soula, and I literally fell into the land of pelvic chronic pain – specifically Pudendal Neuralgia (PN), on March 1, 2007 when a fitball I was sitting on burst and I fell to a concrete floor. At the time, I was working at ooi, my art & design studio that I run with my husband Theo.
Since 2007, I’ve learned alot about chronic pain – especially that you can manage it. I want people to learn from my experience because I believe my ongoing chronic pain could have been avoided. I was undiagnosed for 4.5 years and that was THE biggest trigger to my chronic pain experience.
You’ll need to learn alot about yourself and make some serious changes to your life (hopefully temporary and minimal) in order to be the best possible version of the new you.
I am an artist and now I also consider myself an advocate for people with chronic pain and Australian injured workers.
It’s been an overwhelming emotional journey since 2007. As well as the endless hunt for treatment that might lead to recovery, I have:
Your health story sorted
Your health story sorted
Blogs
Four Corners… More like One.
I’m so disappointed in Adele Ferguson and Chris Gillett. I can’t believe this is an ABC story. Firstly, I do want to express my sadness for the people in the story whose lives were taken, destroyed and affected. Apparent to me from my life experience (sorry, only real life data available!) and [...]
Aussies Turn To Online Advice To Try And Get Off Their Antidepressant Medication
I really can’t believe this story. Stories like this one leave me feeling healthcare is still so miserably failing people. Our voices are not being heard. I began this website in 2011 because the lived experience of Pudendal Neuralgia and the management and treatment of chronic pain for individuals by healthcare professionals [...]
The 17th Anniversary Post
In 2013, when I began making progress with pain management, I had the idea to make a marionette of myself. Theo and I had just travelled to Italy (masks and Pinocchios everywhere!), and returning on the plane I watched the film, Marilyn. It dawned on me how seriously invisible many illnesses are. As much as I would have loved to make the marionette myself, at the time, any self-portraits I was drawing or painting were horrifying. They were brutal, disturbing, and sad to the point where I had to ask Theo to wrap them up one day – I couldn't look at them anymore.
Are you there yet?
Are you ready to punch the next healthcare professional you see who asks, 'Tell me your story'? Are you sick of asking for your health information, searching for it, collating it, or sending bits and pieces of yourself all over the place?
[instagram-feed feed=1]