Hello! Welcome to my website, pudendalnerve.com.au
I hope you’re not in ongoing pain but if you are, this website was created to provide resources to people who are experiencing chronic pain and/or trying to manage it.
My Advocacy & Helpful Resources
My Story
My name is Soula, and I literally fell into the land of pelvic chronic pain – specifically Pudendal Neuralgia (PN), on March 1, 2007 when a fitball I was sitting on burst and I fell to a concrete floor. At the time, I was working at ooi, my art & design studio that I run with my husband Theo.
Since 2007, I’ve learned alot about chronic pain – especially that you can manage it. I want people to learn from my experience because I believe my ongoing chronic pain could have been avoided. I was undiagnosed for 4.5 years and that was THE biggest trigger to my chronic pain experience.
You’ll need to learn alot about yourself and make some serious changes to your life (hopefully temporary and minimal) in order to be the best possible version of the new you.
I am an artist and now I also consider myself an advocate for people with chronic pain and Australian injured workers.
It’s been an overwhelming emotional journey since 2007. As well as the endless hunt for treatment that might lead to recovery, I have:
Your health story sorted
Your health story sorted
Blogs
The Beast Matures – My 18th Anniversary
There are so many ways I can write about this 18th anniversary. Will you entertain me while I think aloud this year? I’m angry… that’s the first emotion that comes to mind every year, and the anger isn’t about chronic illness; it’s towards WorkSafe and their unjust system —calm your farm, Soula. [...]
Keeping Busy, Living Life, and Staying Pain Free(ish)
The essence is all in the ‘ish’, right? But grant me this: at least I did use the words ‘pain-free’. And the words ‘busy’ and ‘living’. You would not have read that years ago. I’ve decided to check in with my health family as it’s been too long, and messages are dribbling [...]
Busy Advocating and Making Art – My Life Management
Although pain management is the undercurrent of my life, it no longer rules my life activity. This is a tricky mind battle that underlies everything I do. Working around my limits is very hard, but I no longer let that be the surface of my day-to-day life. On the surface, instead, is [...]
Four Corners… More like One.
I’m so disappointed in Adele Ferguson and Chris Gillett. I can’t believe this is an ABC story. Firstly, I do want to express my sadness for the people in the story whose lives were taken, destroyed and affected. Apparent to me from my life experience (sorry, only real life data available!) and [...]
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