Looking for Something?

Pelvic Pain Foundation of Australia’s Melbourne launch

Author:
PPA Launch - Soula, Lorimer and Anne-Florence

After 4.5 years and desperate, Soula took a stab and emailed Lorimer Moseley who kindly replied and suggested she contact Anne-Florence Plante. Anne-Florence diagnosed Soula instantly.

Melbourne launch March 24, 2015

I was thrilled to be invited to The Pelvic Pain Foundation of Australia (PPFA) Melbourne launch last night. I originally met Dr Susan Evans when I was invited to present my patient story at AIM Pain 2014.  I had cyber met Dr Evans prior, asking if I could include her details on this website, in fact I’ve ‘e-met’ many pain professionals this way. I never dreamt that one day they may all be in the one room together, all of us advocating for pelvic pain and helping start up a National organisation that addresses pelvic pain for women AND MEN.

Needless to say, last night I went on a magic carpet ride!

And, Theo felt the same way. Overwhelmed that we had both been included as part of this event and that a patient voice, our advocacy and mostly online contact could amount to this, he stated, ‘It’s like we met Yahoo, Google and Ebay!’.

I’ve had a fair bit of support from Prof Lorimer Moseley, Lesley Brydon and her team at Pain Australia, and Anne-Florence Plante. In fact it was Anne-Florence, who originally diagnosed me, who shared her research and study notes and encouraged me to build pudendalnerve.com.au.

Being with these significant people made the sequence of events from the last eight years come full circle around me; around my pelvic pain and around my advocacy. This pain journey has indeed amounted to something valuable.

Please help PPFA in any way you can. As mentioned last night, there is something we can all do.

The Pelvic Pain Foundation of Australia

The Pelvic Pain Foundation of Australia is a not-for-profit body formed to promote education and research in the area of pelvic pain.

The Pelvic Pain Foundation has arisen out of a need at the National Pain Summit Parliament House, Canberra in 2010. The subsequent report entitled ‘The $6Billion Woman and the $600 Million Girl: The Pelvic Pain Report‘ confirmed the special needs of those with pelvic pain.

The Pelvic Pain Foundation of Australia aims to rectify the lack of Research, Education and Services in this area for the benefit of teens, women and men with pelvic pain.

Your Donation is Gratefully Received

The Pelvic Pain Foundation is a charity registered with the ACNC and is 100% privately funded. Our directors volunteer their tine and all funds are directed to services to support education, research and advocacy.

Save

Save

Save

Save

Save

Related Entries

Back to life
Piecing myself back together
Leon Chaitow
How do nerves work?

Feedback

4
  • Mary Ruth Velicki

    Dear Soula,
    Thank you for speaking for the many people who are suffering with chronic pelvic pain who don’t have a voice. Your voice is creative and strong and helps others experience the condition on a more personal level. This may spur others to action and help to increase research, treatment options, compassion and hope for those in pain. Great work!

  • John Quintner

    Soula, I am so happy to see your dream (or at least one of them) fulfilled at last. This is a very significant event for so many people in pain.

    • soula

      Thank you John, you definitely understand what this means to me. I’ve been thinking all day that I may be able to retire now!

Leave a Reply

Subscribe to my newsletter

Subscribe to my blog posts

Enter your email address to subscribe to new posts by email.

Definitions of pain

What is Pudendal Neuralgia (PN)?
Most simply put PN is Carpal Tunnel in the pelvis/buttocks. Compression of the Pudendal Nerve occurs after trauma to the pelvis and is aggravated with pressure. The pain is often described as a toothache like pain, with spasms, sensations of tingling, numbness, or burning. It can be very debilitating.

What is Neuropathic pain?
Neuropathic pain is the result of an injury or malfunction in the peripheral or central nervous system. The pain is often triggered by an injury, but this injury may or may not involve actual damage to the nervous system. More…

Pain Train my online health record. New SPECIAL price $14.95 per year

Save

Save

Save

Save

Save

Order my book $31 (inc. postage)

Archives