WARNING: This post contains serious attitude as a result of 10 years of personal experience with chronic pain. The post also contains my personal no nonsense view of living with a chronic illness and (much required) rotten sense of humour, whopping reality check and bonus kick up the backside for anyone who refuses to accept they have a serious health issue.
*Proceed with caution*
Well, surely you can’t blame me for having that kind of attitude after 10 years!
Recently, it dawned on me that when I was diagnosed with chronic pain, it felt like I had been handed a can of worms.
I’ve been mulling over this thought while procrastinating about a second follow-up appointment since my sacral neurostimulator treatment. Specifically, I thought about the time that goes by while I – sometimes neglect to face the intensity of my health issue and what the consequences are as a result of that neglect.
Expert Interview with Dr. Susie Gronski, PT, DPT about DIY pelvic pain relief that you can start doing at home, PLUS what to expect from your first pelvic floor physical therapy appointment! The information provided in this video is for females and males. Continue Reading
…When Stephen Waxman was a student at the Albert Einstein College of Medicine in the early 1970s, he became interested in pain—how people feel it, how the body transmits it, and how, as a future neurologist, he could learn to control it. Later in his career, after his father was in the final stages of agonizing diabetic neuropathy, he became obsessed with helping patients like his dad, who could find no relief from their pain. “We simply had to do better,” he says. Continue Reading
Forgive my bossiness but this post comes from a desperate experience that I lived for 4.5 years. That’s a long time for someone with increasing chronic pain levels and not much hope. I felt isolated and alone in a very foreign world without appropriate treatment, compassion and understanding.
Nine years later, I’m hopeful a situation like mine can be prevented with the knowledge provided in the following resources. Vicpain are leaders in pain treatment and management, I can certainly vouch for that!
Please read the resources, learn them, share them… and if you require information on chronic pain, follow Vicpain. Continue Reading
It’s finally filtering through my brain: It’s going to be VERY hard work most days and it’s up to me to keep my butt in gear and stay on the treatment and management trail.
You’ll all be getting sick of reading my badger about this, but the research is out. Patient experiences have been in the making (for decades now), and the biggest sign that the hard work is cut out for people with chronic pain comes from the many who are now drug dependent with either increasing levels of pain or who sadly have lost their lives – not from the medication – but from the battle.
I get sick of filtering through paragraphs and words and med talk that I don’t quite understand (not to mention the pain levels soar for some peculiar reason) and as an artist, I still find it really difficult to present my pain experience to my readers, family and friends in a simple form.
There have been many times during my years of chronic pain where I wondered, ‘Why didn’t I know that?’. Usually, the information is quite basic and I feel as though I’ve been deprived by never knowing something so crucial and important about my own body.
I was asked to view and give feedback before this thorough resource was released, and a few times, throughout the 284 minutes of run time, I asked myself, ‘Why didn’t I know that?’.
This DVD isn’t just about managing pain, but rather a clear and concise resource for females… It should be put on some International educational agenda. Continue Reading
Calling all Health Professionals
“MAKING SENSE OF PAIN”
Our fourth inter-disciplinary workshop
Early bird registrations close on 12th June!
We offer health professionals a unique opportunity to update their knowledge and skills and to effectively transfer them into their clinical practice setting.
Our experienced team, which comprises “pain champions” together with experienced clinicians and researchers, present a unique learning experience conducted in a user-friendly environment.
Date: Friday 26th – Saturday 27th June, 2015.
Presenters: Ms Melanie Galbraith (Physiotherapist), Assoc-Professor Vance Locke (Academic Psychologist), Ms Jane Muirhead (Occupational Therapist), Dr John Quintner (Physician in Rheumatology and Pain Medicine), Ms Mary Roberts (Clinical Psychologist).
Pain champions: to be announced
Venue: Wyllie Arthritis Centre, 17 Lemnos St. SHENTON PARK WA
[N.B. This workshop is fully catered and FREE on-site parking is available.]
I never shop from my phone, but given Theo and I were away for the weekend (researching our next phase of life), I felt it was worth the risk responding to The School of Life‘s Dr Norman Doidge event and booked our two tickets.
Glad I did. The event was sold out within the week and over 300 people were on the cancellation list.
Who would have thought that pain and the design process would have found a way to merge in my life. Design is however all about communication, and being a creative communicator I got wondering about how one can document their pain journey.
I also believe from my experience with chronic pain that the area is poorly provided when it comes to expression and language. How is it possible for a patient to describe their situation when their situation has no current definition or current way to be described?
So I thought of a concept! I called it Pain Train and two wonderful things were conceived from it. My soon to be publicised online resource, and a brilliant research paper by John Quintner and Melanie Galbraith.
Pain professionals, John and Melanie, are Pain Train’s first conductors and they have applied their exceptional chronic pain knowledge to the concept with their research paper, This Train is Bound for… Wholeville: A Travel Guide for the Perplexed (download or read below).
John Quintner and Melanie Galbraith are aiming to give people in pain sufficient knowledge so that they can meaningfully engage with their respective health care professionals.
What is Pudendal Neuralgia (PN)?
Most simply put PN is Carpal Tunnel in the pelvis/buttocks. Compression of the Pudendal Nerve occurs after trauma to the pelvis and is aggravated with pressure. The pain is often described as a toothache like pain, with spasms, sensations of tingling, numbness, or burning. It can be very debilitating.
What is Neuropathic pain?
Neuropathic pain is the result of an injury or malfunction in the peripheral or central nervous system. The pain is often triggered by an injury, but this injury may or may not involve actual damage to the nervous system. More…
Pain Train my online health record
Imagine your specialist knew this much before your first appointment…