Who am I going to be – Soula ‘a’, ‘b’ or ‘c’?

By |2016-06-12T21:54:35+10:00June 12th, 2016|Living, My treatment|

My new stim’s changed everything. I’m grateful. Can you imagine if the whole process (from trial to permanent implant) hadn’t change anything? In addition to the stim changing everything, I’m living a [...]

I’m part of Bridge For Pelvic Pain’s Advisory Committee

By |2017-12-11T16:33:38+11:00April 18th, 2015|About, Advocacy, Living|

And I'm most honoured! To be recognised for my pelvic pain advocacy is one very exciting aspect, but to be invited to be part of a committee with a global vision, is quite an additional excitement. It appears my pain experience will definitely make a difference to others.

Permission granted and now it’s back to reality!

By |2017-12-15T15:51:18+11:00January 12th, 2015|Blog, Living|

Permission granted and now it's back to reality! Or is it possible I never really left my reality? As if anyone can leave chronic pain behind and really have time off! I'm going to post my brain's two conflicting versions: 1. Crap thinking out-of-the-way first version..

Committment, sacrifice and granting myself the right permissions

By |2017-12-11T15:29:09+11:00September 21st, 2014|About, Blog, Living, My treatment|

Last week, I attended my last acupuncture appointment and for the first time in over seven years, am therapist free. Hang on, I have to just repeat that: I am therapist free Did I ever think this day would come? Of course I did and I believe that's why I am here. I have had my moments, but what I didn't realise through all that heat and whilst pacing like a snail, was that each flare up and pain episode was actually not an indication that pain was here to stay, but rather that it was actually beginning to leave. Although just a difference of minutes initially, eventually I felt the flare ups spreading further apart. And with recognising that change and NOT increasing my capacity past a snail's shell weight, I began to make progress.

Reality posts on my Chronic Pelvic Pain Story Facebook page

By |2017-12-15T15:51:35+11:00December 28th, 2013|Blog, Living|

I thought it might be a little more realistic to post 'status' reports as I battle on with PN. Most often I try to be positive and hopeful but the reality is PN is nothing but hardship, sacrifice and loads of pain. Instead of bombard my website with these status reports I chose to write these on my Facebook page. It also makes it easier for me to provide support in the form of 'live' communication. I can keep posts short and they can be posted from the phone more regularly. The website tends to have 'major' status updates, I felt I needed to comment about the day-to-day struggles.

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