I can't recommend Dr Susie highly enough. I wish I had online physical therapy advice when I felt lost, unable to commute and in need of someone who could understand my pain experience. Dr Susie really gets pelvic health issues [...]
The Alcohol & Drug Foundation (ADF) has been working to enhance awareness about the way Australians consume pain killers. My understanding of the campaign is that the ADF in no way suggests pain killers are not necessary - many Australians require their [...]
Soula became dependent. "I shrunk as a person. The medication fogged my mind. I couldn't cross the road. I had to activate spell check on my phone. I didn't have the ability to think properly any more," she said.
APS: How important are support groups for both you and your close family/community? Soula: I can’t say I feel there is much support for my husband and family/community. It’s difficult with invisible pain, it’s a similar scenario with depression, we still don’t get it. Society seems to have been given an immense right to provide their opinion (e.g. with social media platforms) and this has opened up some kind of authority to encourage opinions and much judgment. Not many tread carefully or really think from someone else’s perspective. Although we have more information accessible to us, we seem to be learning less.
I must sound like a broken record by now, but once again, I am left bewildered by my chronic pain journey and the contrasting experiences that go from excruciating pain to exhilaration. Above all, I feel incredibly privileged at the opportunities presented to me and so happy to be able to help others by communicating my story. I could not have done this without Theo, my family and of course Peter Lamont and Jacinta Cashen.
View above or visit The Hurting Strings on reelhouse.org/the-hurting-strings Let's watch The Hurting Strings I'd like to express my biggest thanks firstly to Peter Lamont for taking this project on and for communicating my invisible message with such perfection even [...]
I've met some incredible people who have become my dear friends and my greatest supports during my pain journey. One of whom I often rave about is the wonderful John Quintner, Consultant Physician in Rheumatology and Pain Medicine. You've seen [...]
Excerpt from Sullivan Physical Therapy’s Sara Sauder. Read the full interview on her blogspot. Soula Mantalvanos is an Australian artist living with pudendal neuralgia. She runs a website and a blog that chronicles her life since developing pelvic pain. These mediums are helping [...]
(http://americannewsreport.com/nationalpainreport/my-story-a-pain-in-the-coccyx-8823596.html) The National Pain Report, my story. April 14th, 2014 by Soula Mantalvanos I begged my neurosurgeon to do anything, even to chop my coccyx off. But after getting opinions from other surgeons, he suggested not to go the invasive path as we had the option for an implant called a peripheral stimulator, a treatment that was reversible. It made more sense.
Being interviewed, live on Pelvic Zen this Thursday 10th at 5:30pm Austin, Texas (Central Standard Time) / Friday 11th 8:30am Melbourne Australia (Eastern Standard time).