A Chat With Dr Susie – Pelvic Pain Specialist for Men
Please note that Soula and Dr Susie Gronski caught up again to reflect and update this original conversation, which can be viewed on My Health Story. [...]
April 18th, 2021
3:14 pm
March 25th, 2021
5:05 pm
Maddy Lock – My Alexander Technique Physiotherapist
Alexander Technique is a very special kind of physiotherapy. Well, it's kind of not physiotherapy but rather a guiding formula for your body and mind. When I was in my [...]
March 23rd, 2021
1:13 pm
On Neurostimulation
Neurostimulation has been key in my management of pain. It's also satisfied my wish to find a way to be as self-sufficient with my management as I possibly can be. My first stim was a peripheral stimulation unit (leads under the skin) and that was implanted in 2011. I still have this unit as a backup. In 2015 I had a sacral stim implanted but that fizzed (in my opinion) within three years. So in 2019 I had the sacral stim removed and replaced with a spinal cord neurostim. WARNING: In the video, I talk about my experience and have a few Xrays pop up to demonstrate a little detail. If you're the squeamish type you may not want to see the images – they are small, however. Read key blogs about my stim implants experiences and adventures:
- My Peripheral Stimulation implant
- Peripheral Stim messing with my bone density score
- My pain management is turning into a thesis!
- Adventures of a stim controller
- Out With the Sacral, In With the Spinal (part 1)
- Out With the Sacral, In With the Spinal (part 2)
- Out With the Sacral, In With the Spinal (part 3)
- Spinal Cord Stim Trial Day 6
March 4th, 2021
9:36 pm
Perhaps Pain Isn’t my Brain’s Fault
Or my nervous system's fault either. Have you ever let your mind wander beyond the boundaries of chronic pain research? I can't help it, my mind flies around all over the place! Today, it's in Maroni, a village in Larnaca Cyprus. That's where my mum was born. I've been wondering alot about village life lately. And more specifically about my grandmother (Giagia) and her lifestyle in Maroni. I've visited Cyprus four times – each time without pain! I really love mum's village Maroni, it's beautiful. I always make a point of walking around the whole village when I visit so am very familiar with its nostalgic, stony, dry characteristics. I love the feeling of my feet on the ground in Maroni – not sure what that is. Perhaps a memory...
February 28th, 2021
9:34 am
Soula Chats With Amy Eicher
ere's so much to learn in order to be able to navigate chronic pain. The psychological side of pain is huge as is the energy required to manage it!That's why we [...]
February 22nd, 2021
9:18 pm
A Chat With Anne-Florence Plante (my Diagnosing Physiotherapist)
I can't really think of a better way to mark my 14 year anniversary with chronic pain than to present this wonderful (loooong) chat with my diagnosing physiotherapist, Anne-Florence [...]
February 15th, 2021
12:13 pm
Soula & Theo Chat About Pain Management
You have all heard so much about Theo and how we have (and continue) to work together through chronic pain. However, you have never really heard from Theo directly nor does [...]
February 13th, 2021
10:52 am
Life, Stitched Back Up Again
Everything that chronic pain had undone in the first nine years of this 14-year nightmare, Theo and I have managed to finally mend. Stitch by stitch, we made a new house, founded a new livelihood, purchased a more comfy car, made new friends, welcomed a different breed of fur child and all of this in a new (unfamiliar) town. It's a rebirth! All of this, driven by the hunt for pain management after a ball pop, drop and a bang. Or was it...?
February 4th, 2021
11:43 am
Early Illustrations of the Nervous System by Camillo Golgi and Santiago Ramón y Cajal
'His most revolutionary finding was the utter lack of evidence for either axons or dendrites fusing and forming networks like those described by Golgi. He observed that, on the contrary, it seemed neurons did not need to touch to communicate. They only had to be contiguous for signals to be transmitted from one to the other. (The term “synapse”, used to describe the structure that permits a neuron to pass on its signal, would not be coined, by Charles Sherrington, until 1897.)
January 31st, 2021
10:44 am
Pain Toolkit workshop For people with long-term persisting pain
APR 10, 2021: Pain Toolkit workshop For people with long-term persisting pain by Pete Moore