December 3rd, 2021 2:49 pm

Presenting My Pain Management Story and Vision at the Murray City Coast Country GP Training

By |2026-01-06T11:34:06+11:00December 3rd, 2021|Categories: Advocacy, Blog, Events, My Health Story|Tags: , , , , , , |

It was wonderful sharing my story and vision at the Murray City Coast Country GP Training. AND especially presenting on a stage and in actual physical life to 50 general practitioners (GPs) who were [...]

March 23rd, 2021 1:13 pm

On Neurostimulation

By |2023-02-17T10:32:00+11:00March 23rd, 2021|Categories: About, My treatment|Tags: , , , , , |

Neurostimulation has been key in my management of pain. It's also satisfied my wish to find a way to be as self-sufficient with my management as I possibly can be. My first stim was a peripheral stimulation unit (leads under the skin) and that was implanted in 2011. I still have this unit as a backup. In 2015 I had a sacral stim implanted but that fizzed (in my opinion) within three years. So in 2019 I had the sacral stim removed and replaced with a spinal cord neurostim. WARNING: In the video, I talk about my experience and have a few Xrays pop up to demonstrate a little detail. If you're the squeamish type you may not want to see the images – they are small, however. Read key blogs about my stim implants experiences and adventures:

Pain management is unique to all of us and the key to navigating the complex journey (I believe) is gathering as much information as possible. I hope this vimeo is of great help.
February 22nd, 2021 9:18 pm

A Chat With Anne-Florence Plante (my Diagnosing Physiotherapist)

By |2026-05-23T20:05:24+10:00February 22nd, 2021|Categories: About, Advocacy, Learn, My treatment, Online, Personal resources, Pudendal Neuralgia|Tags: , , , , , |

I can't really think of a better way to mark my 14 year anniversary with chronic pain than to present this wonderful (loooong) chat with my diagnosing physiotherapist, Anne-Florence [...]

February 15th, 2021 12:13 pm

Soula & Theo Chat About Pain Management

By |2026-05-23T20:13:29+10:00February 15th, 2021|Categories: Advocacy, Film, Learn, Online, Personal resources|Tags: , , , , |

You have all heard so much about Theo and how we have (and continue) to work together through chronic pain. However, you have never really heard from Theo directly nor does [...]

December 29th, 2020 11:26 am

Presentation: An Approach to Chronic Non-Cancer Pain

By |2022-11-26T20:58:48+11:00December 29th, 2020|Categories: Advocacy, Learn, Personal resources|Tags: , , , , , , , |

In November this year, I was invited to present my pain experience to a group of 40 GP's. The topic was: An Approach to Chronic Non-Cancer Pain and the workshop was facilitated by Dr Paul Grinzi for Murray City Country Coast GP Training. Where does one start when asked to present to 40 pain interested GP's in 20 minutes? There's a great emoji to illustrate the look on my face when I ponder this question. You can well imagine. As an 'expert' in my 'field' 20 minutes to describe 13 years of living with chronic pain of which 4.5 years were spent lost in a forest is still a tough gig. However, this was a presentation to medical professionals. And they know everything, right? .... I've decided to make this video a paid resource. All proceeds go towards funding this website and PainTrain – My Health Summary. What do I talk about in my video? — O:43 My story — 2:50 Investigating pain, research & treatment — 4:26 Diagnosis — 5:55 Advocacy — 7:45 The experience of pain — 8:27 Medication — 9:35 Characteristics of Pain — 10:55 Planning life with chronic pain — 12:09 Pain management — 13:50 PainTrain

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