I'm an author of What Injured Workers With Complex Claims Look For in Online Communities: Netnographic Analysis, now published in one of the world's best medical journals.
My Health Story is now live and has totally replaced PainTrain My Health Summary. My Health Story goes beyond helping people communicate their stories of living with chronic pain. It now presents a way for more individuals enduring chronic and complex health issues to communicate their health stories and manage their healthcare better. For healthcare practitioners, it presents an opportunity to diversify your care offering and influence positive behaviour in the overall patient journey. My Health Story takes a holistic view of each unique lived experience and understands that patients are more than their disease.
I feel like switching the 'anniversary' thingy to a 'birthday.' I know it sounds oddly celebratory, but I also know that you have read stranger things on this website so remain unafraid to explore this latest idea with you.
I'm thrilled to be invited to another educational event IN REAL LIFE I might add. I really enjoy collaborating with Dr Paul Grinzi as a lot of his educational workshops have a great focus on communication. If people and their health teams can't connect then care isn't going to happen. So how do you reach, connect and help people who live with chronic pain? Come along and learn! PRIMARY AND ACUTE CARE Chronic persistent pain is a common clinical issue, and yet most of us have received very little training in how to best manage patients experiencing this. Not only do we have to manage the clinical and psychosocial issues presented by the patient, we have to recognise and manage our own biases as clinicians. The format for the workshop utilises patient experiences, clinical cases and new frameworks to help further our understanding of persistent pain and how to assist our patients. There is a specific focus on management within the community, but also opportunities to explore the challenges within the emergency and inpatient hospital interfaces. By the end of this half-day, you’ll have optimised your approach, and may find this topic a little less painful.
Congratulate me! I have been awarded expert mentoring with Buzz Web Media and Women With Wit’s – Lee Ussher under the Australian Government’s Boosting Female Founders Initiative (BFFI) for PainTrain [...]
Over some years and after a third time being banned in some way or form from an official pain organisation's social media, I now feel encouraged to make a point - advocacy is not a business. I began this website to advocate for people living with chronic pain and share helpful resources to avoid the impact of misdiagnosis on their lives. I aimed and achieved gratitude on a global scale, which has fed me. I also started this website to connect people living with chronic pain to professionals who understood them very well and could possibly treat them. I've asked none of these amazing professionals to pay me to be included on this website – we're all working for the same cause, right? This was never intended to be a business. What I'm seeking is more respect and understanding for the voluntary position of the advocate. So let's pull the bandaid off and frankly define it: Advocacy is costly and time-consuming. It earns us no income; it causes pain and uses a significant portion of the little and precious uptime we get and, advocates are also much greater than their cause. I repeat; advocacy is no business.
I was so close to throwing the PainTrain My Health Summary idea out the window when COVID-19 hit. There was no way I could be positive about pushing on with my little train startup while a pandemic was approaching. But as it turned out COVID-19 catapulted telehealth behaviour and with that came increased interest in health tech and a newborn... the digital patient! My creative communication experience always encouraged me down this complex path – I found healthcare primitive! The way people manage their health and the way appointments are managed has not changed for eons. If you live with an ongoing medical condition, we know now that it takes teamwork to manage it and you have to be responsible for your own health information (or it all gets documented incorrectly!). Clearly, I believe that we need to step up and manage our health and all things relating to it. We especially need to do this because we all have such lengthy stories to tell! So on that note, here's my big news from my humble little train which is now planning to go way beyond its destination... if you help me, there's a lifetime subscription in it for you!
Evelyn totally has PelvicSense! And thankfully, Evelyn made an online pelvic healing home program out of it. It includes an easy-to-understand book, calming audios with music, downloads, and many gently progressive pelvic exercise videos. I was thrilled to chat and meet Evelyn Hecht PT recently. It is refreshing to speak to a healthcare professional who has the care factor and exudes warmth and understanding.
'Pain is a unique experience' we've all heard it, and by now, most of us believe it. But, after viewing my personal genetic report, I'm now sure that pain is a unique experience. Perhaps it's not even pain for some of us. It's not for me! This genetics investigation exposed the elephant standing by my side the last 15 years – actually, it's been with me all my life but it took an accident to begin its stampede! Official diagnosis – not pain; it's inflammation. And it always has been!
I bet the first thing you thought was, ‘she’s having a flare’. But you know what? I’m using the word ‘fire’ in the way that people living with chronic pain only dream [...]
