Absolutely nothing great about having to live by these rules but it certainly saves me alot of extra pain, I have more up time and, above all, I decided this is just temporary. I'll do what it takes to get by most comfortably (if I can dare to use such a word for a chronic pain site!): •I understand that everything I do counts, even a sneeze (ok they count alot!) so I make sure I pick and choose what I do •I learned and practice the word pace •I'm more selfish •I say "I can't" and recently I've even stopped apologising because "I can't"! •I let go of obligation (actually I need to work on that one) •Keep any visit short, close, soft (not too many parties unless you can walk away) •I email my WorkSafe case manager to eliminate hearing all unnecessary hogwash •I have a daybed and made a 'dayspace' no where near a television or my bedroom •I have a dog, he's one of my biggest aids
avulsion The forcible tearing away of a body part by trauma or surgery chronic A chronic condition is continuous or persistent over an extended period of time. A chronic condition is one [...]
...I developed my own pain score which I'm sure when read by anyone without neuropathic pain, will be enough to convince them I'm mad and in fact I must have fallen on my head not my backside. But this site isn't for those people, (go off and play... you don't need to be here and good luck to you).
I often don't feel like talking or explaining the same boring chronic pain story over and over. And I'm thinking there may be a few people out there who feel the same. So, here's some artwork for you folks. Feel free to use it to order caps, t shirts, mugs, honestly, do whatever you want with it, just don't take my name off or manipulate the artwork. Oh, and pop me a message of thanks. Perhaps even come back with some images and I'll create a pain gallery!!!
Mr. Collen said the main goal of the exhibit is to raise awareness about the problem of chronic pain. However, he said he hopes one day to find a sponsor to take the exhibit on tour. “People don’t believe what they can’t see,” Mr. Collen said. “But they see a piece of art an individual created about their pain and everything changes.”
My creativity has been one of my main coping mechanisms through my chronic pain life. It's the place I go to feel free, release the steam, express my pain, and to get distracted to the point of pain! But it's worth it every time. There isn't a lot I can achieve with my capacity so one drawing, one painting over months, one post on my blog... anything, it's all worth it.
This shouldn't take too long to grasp but I understand it may take a little while to actually put it into motion... Not used to having help hey? Well I wasn't either, never needed any. But once I realised I could get more out of my day by learning "Yes please", it got easier to say it. In fact I ask for help now. I even leave things on the floor if its a bad day (just push it aside with my foot, it'll be dealt with later) because I realise it means more capacity to do other things and LESS PAIN. Of course this only applies if you have help...