Rethinking my Measures
Remember me posting about Lissanthea Taylor and PainChats? I had signed up so now receive my regular email updates. I don’t often make recommendations, but I think you should sign up too! [...]
Diagnosis: A Can of Worms
WARNING: This post contains serious attitude as a result of 10 years of personal experience with chronic pain. The post also contains my personal no nonsense view of living with a chronic [...]
Can looking at art make for better doctors?
Their teachers hope that students are beginning to realize that medicine is not black and white, but many shades of grey. The museum sessions are designed to get these students thinking about the importance of a diagnosis that is not just based on physical symptoms, but also on the larger narrative that informs a patient’s health story.
Drug dependency lessons from Pharma ads and my two mothers
I can’t stand TV as it hurts to sit or lie back and watch but recently, while tuning in to one of the very few shows I do watch, I caught a [...]
Theo, and his ‘carer’s’ perspective
The post many of you have been waiting for… Theo’s thoughts, sacrifices and life experience of his daily ‘caring’. I should add that Theo and I have [...]
Robert Wanek, Creating awareness for Chronic Prostatitis and Pelvic Pain Conditions
My name is Robert. I'm a 20 y.o. athlete. I've been suffering from Pelvic Pain for 6 months. I hope my blog can bring awareness and support to this poorly understood subject.
A Pained Life: Timing My Pain
Excerpt from American News Report: July 8th, 2013 by Carol Levy, Columnist I was sitting at a table with some people I knew, slightly. I did not know how much of my [...]
Sharing Barry’s experience with Male Pudendal Neuralgia
I've lived here in Delaware since December 2011 and have not had a block since. I already had 6 Pudendal Nerve blocks and this after so many other procedures: 5 Ganglion Blocks, 6 Caudal Blocks, 2 Botox injections, 2 Radio Frequency Ablations, 2 Neurostimulator Trials, an Interstim Impant, and then the 6 Pudendal Nerve blocks. Endless research and finally putting the right two words together on Google, opened up the world of Pudendal Neuralgia (Neuropathy) to us. That was near the end of December 2010. On the day after New Years and in response to two letters I sent to two Dr's names I had found, I got calls from both Dr’s the same day.
Peeling onion layers… “No.6!?”
Another year gone by since the pop! Now I know what practitioners mean about peeling onion layers. My onion layers have gone something like this: Removal of pelvic thickened ligament Peripheral stimulation [...]
GAIN (Gynaecological Awareness Information Network Inc)
Another wonderful connection I've made on my daily mission for understanding Pelvic Pain, is with the lovely Kathleen Mazzella, founder of GAIN (in Perth). Gynaecology is currently not too connected to Pudendal Neuralgia (and vice versa), but after my own experience, I believe in time they will be very closely connected. After all, there are many cases of nerve issues arising after gyneocolgical procedures, but I can also report that my first issue was in fact a nasty over grown pelvic ligament that my Gynaecolgoist removed (and with it went the extremely high sensory pain possibly releasing the pressure on the Pudendal Nerve). Obviously progress and learning about the brain, pain signals and general medical research, will change the way we tackle pelvic pain today, thankfully! (excerpt from the GAIN website) Kathleen (Kath) Mazzella, Founder of GAIN (Gynaecological Awareness Information Network Inc) Kath has endured the trauma of being diagnosed with, and treated extensively, for a gynaecologicakathl cancer – vulval cancer. From a position of experience, and compassion, Kath created GAIN in response to the needs of these women. Today, a vibrant cancer survivor, she continues to lobby for more awareness, funding and research for gynaecological cancers, pre-cancers and other gynaecological disorders.