Pacing (and Baking)
A brief note on pacing Sometimes pacing means trading a walk to manage baking a cake. I wanted to post this as too many of us managing chronic illness are made [...]
September 27th, 2022
8:43 pm
September 24th, 2022
11:50 am
My Lived Experience at CODA Conference
The Primary Care workshop at this year's CODA Conference was my favorite lived experience contribution to date! The workshop approach was more effective than my other 'standup gigs'. Something has clicked with me lately – I've stepped out of chronic illness's emotional and physical sides and more often partaking in health education. I like it! We must believe that twitches, spasms, toilet function-changing effects, noise, screaming, soreness, stabbing, burning, itching, fatiguing, and draining effects of chronic pain can be controlled. If you had told me this between my first and 4.5-year mark, I would have felt angry and said, 'My issue is severe, far more serious than everyone realises, and my healthcare practitioners are all missing the terrible thing in my body, and I am going to die from it.'
September 8th, 2022
12:47 pm
Soula’s Stylish Seating Aid
Preparing for my recent trip to Venice, I felt the urge to look a little more stylish. So I thought it was time to update my seating aid cover. I was specifically looking for another cover for my trusty custom-cut foam pieces.
September 7th, 2022
11:52 am
A Venetian Refuelling (part 2)
While 'researching' places to eat as I sat by the canals drawing, Theo accumulated excellent bearings for Venice's delightful geographical maze. This helped us find the shortest way around the place when we needed it as we're both always concerned about how my up-time is managed. Theo gathered an impressive list of food recommendations, as mentioned in the full report of our Italian trip, Venetian Refuelling (part 1).
September 7th, 2022
11:51 am
A Venetian Refuelling
I feel completely rejuvenated and jubilant after Theo's and my recent 3-week trip to Italy. Since my spinal cord stim implant, our life and livelihood seachange, and now, with an anti-inflammatory focus, I can feel confident that pain levels will remain right down and my happiness right up. This is a big announcement for my brain.
July 28th, 2022
2:47 pm
Talking Healthtech: Dr Valerio Vittone on Long COVID
Since investigating my DNA with Dr Valerio Vittone, I believe more that my health issue is not about chronic pain but rather about inflammation. I've reaped magnificent rewards since implementing recommended dietary [...]
June 17th, 2022
10:31 am
Online First Aid Course – Tick
...as the latest thrust of telehealth - a positive impact from COVID, continues to roll out, the opportunities for people living with limitations are becoming abundant.
June 16th, 2022
5:15 pm
Ian Cleary Lightning Process: Take Your First Practical Step
I have posted much info about Ian Cleary and the Lightning Process. Like my DNA investigation, this costs quite a bit but would be very worth it. [...]
June 9th, 2022
4:08 pm
My Health Story Now Live in Your App Store
I, Soula, the way I live and the type of person I am, and my story were fundamental to appointments and essential to my treatment. In addition, I realised my health experience was unique and needed to be understood. Professionals are understanding this a lot more now. On educational health networks, I see this 'tip' all the time now: People with invisible illnesses are more than their diseases And on professional forums, I read how lost practitioners are as to how to help people living with ongoing illnesses (which also explains why so many of us are enduring long-term illnesses!). So are you ready to navigate? Are you ready to put your unique experience forward and be better understood? Then, your story is the most essential part of this change. And if you need some guidance, I'm happy to zoom in if you need online training sessions, or you can email me a 'how do I...' question, and I'll film the answer for you.
May 16th, 2022
8:42 pm
Hello Happy Ears, Hello Better Night’s Sleep
Who would have thought it? But these wobbly, jelly-like babies (officially known as Happy Ears) are helping me get a great night's sleep. At first, I thought the sound caused by putting [...]