October 2nd, 2020 3:50 pm

Curious about my Pain Specialist?

By |2020-10-02T15:50:57+10:00October 2nd, 2020|Categories: Learn, Professional Resources|Tags: , |

When I started this website, my hope was to connect people living with pain with healthcare practitioners. At the time (2011), there was no online information or help for Pudendal Neuralgia and other such pelvic pain. I thought if I could provide the information in one place, it would help everyone connect and solve dreaded pain issues or at least speed up the diagnosis and treatment process. I didn't hope it would take nine years. Nine years...!!! But we have arrived and the point is that anyone can access this information session.

September 21st, 2020 3:04 pm

Don’t Go There Soula

By |2020-09-21T15:05:52+10:00September 21st, 2020|Categories: About, Blog, Living|Tags: , |

I'm closing the door on the 'reasoning rooms' and I'm not going to investigate what might have caused a sudden flare. 'Soula, let's not go there. Don't enter that routine. Don't walk towards the dead end. Don't waste your time... again!' 'You've wasted years, Soula. Over a decade in fact thinking in rooms that provided no answers. They are mostly empty – blank walls, no windows, no air to breath!'

September 12th, 2020 12:02 pm

My Lyrica Closure

By |2020-09-12T15:50:18+10:00September 12th, 2020|Categories: Blog, Learn, Professional Resources|Tags: , |

Life's pace is vastly slower if you are living with chronic pain. Anticipated outcomes from things like new treatments, explanations about causes of pain, pain research, realisations about personal ideas relating to my own experience all take months, years and even over a decade to arrive. Yesterday was the day I finally received some closure about the wicked Lyrica. There's been a build-up of medication reporting this past year but none of it hit the spot like The Project's report. I love the reporting on this show – it's one of the few programs that brings me to the TV. While watching last night, I got that bullseye feeling: I'm not crazy! How often does a person living with pain come to this blissful realisation? Not often enough I can tell you.

August 28th, 2020 8:14 pm

Aug 28, 2020

By |2022-09-06T11:42:36+10:00August 28th, 2020|Categories: About, Living|Tags: , , |

8am – 12noon tradies here ‘fixing’ heating/cooling unit (making noise, causing disruption and breaking much-needed silence). + Phone calls, all day (important, relating to mum’s future care plan). + Huge tree on [...]

December 12th, 2019 9:04 pm

FeetUp (Then Take a Seat)

By |2019-12-12T21:04:45+11:00December 12th, 2019|Categories: Help, Professional, Tips|Tags: , , |

My endless efforts to find a way to get back into regular yoga practice keep falling on their head. Pardon my pun... but I am hopeful FeetUp may help with that problem. Prior to living in the land of pelvic pain, I lived in the land of bliss practising yoga regularly – four times per week! For 45 minutes I was part dog, part warrior, a cat, a cow, even a pelican at times. I became a tree, saluted the sun and enjoyed many various poses. To end my routine, I'd slide up into shoulder stand (8 minutes), then send my toes passed my head in plough pose (for another 8 minutes) before unravelling to a corpse in Savasana pose. That was before I went for a walk!

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