June 10th, 2013 10:34 am

How do I know if I have PN or PNE?

By |2017-12-11T09:42:18+11:00June 10th, 2013|Categories: About, Help, Learn, Professional, Professional Resources, Pudendal Neuralgia|Tags: , , , , |

Before I get into PN versus PNE, I want to first give you a brief explanation of the physiology of the pudendal nerve and the diagnosis of PN. The pudendal nerve is a large nerve that arises from the S2, S3, and S4 nerve roots in the sacrum, and divides into three branches—the inferior rectal nerve, the perineal branch, and the dorsal clitoral/penile branch. The nerve travels a tortuous course through the pelvis to innervate: • the majority of the pelvic floor muscles, • the perineum, • the perianal area, • the distal third of the urethra • part of the anal canal • the skin of the vulva, the clitoris, portions of the labia in women, • and the penis and scrotum in men. The pudendal nerve travels a torturous course through the pelvis. Patients with PN can have tingling, stabbing, and/or shooting pain anywhere in the territory of the nerve. Symptoms include vulvar or penile pain, perineal pain, anal pain, clitoral pain, and pain at the ischial tuberosities as well as pain with bowel movements, urination, and orgasm.

April 23rd, 2013 11:31 am

My ‘Fatty’ tail aint fat afterall!

By |2023-02-17T10:32:01+11:00April 23rd, 2013|Categories: About, Blog, My treatment|Tags: , , , , |

Closure really is something. Feeling like a niggling concern is finally put to rest can be so satisfying, it brings me such calm. Slowly, my pelvic chronic pain niggles are finding their place and providing me with the peace my body and mind needs so I can let go, move on and most of all feel my injury is clearly understood. I had another session with the wonderful Raffaele who continues to treat me fortnightly. I was ready to call the next nerve block last week but after yesterday I'm hopeful again and thinking I was in some kind of a flare. I can't expect (but I will!) that with my effective management flare ups will cease to happen. As I test my capacity and lift my full litres of milk occasionally, walk the dog and go out more often, I've got to expect at some point the body is going to say, 'hang on love, you're lifting too much milk!'

February 25th, 2013 9:18 am

(Hardly) Happy 1st birthday pudendalnerve.com.au

By |2017-12-11T16:51:16+11:00February 25th, 2013|Categories: Blog, Living|Tags: , , |

Well it's hardly a birthday celebration! But certainly a time to reflect and assess myself and the achievements of PudendalNerve.com.au. The total visits in 12 months total an astounding 21,500 and the search terms are a clear indication that still, so little is understood of Pudendal Neuralgia worldwide. The first note must be of thanks and of course, has to go to my husband Theo. Without Theo's daily help this site simply wouldn't be up and running.... neither would I! Second note worthy thank you, and certainly something that can be celebrated, has to be the beautiful connections I've made in the past year. I've met the most inspiring, energising, kind, compassionate people, whether practitioners, therapists, chronic pain sufferers, or people attached to the pain system, you have been my encouragement and empathy. Your pain and/or knowledge inspire me to continue and get to the bottom of this dreaded pain issue (in the hope of resolving it not only for me but for all of us!), and/or try to voice my improvements for an ignorant WorkCover system. As far as my personal 1st year status goes, I definitely have 'progress' to celebrate; I'm running on Nerve block no. 3, refreshing my pelvis as required with a newly installed bidet, taking minimal amounts of Endep, in much less pain but still much limited with capacity and in need of daily help. Although I still need regular massage, I'm able to work a little from an accommodating home setup, thinking a lot more, delegating-delegating-delegating and finally, but not least, have taken a plunge into the wonderful world of Chinese Medicine which I believe may finally be able to reach my pain. Stay tuned for another update on that soon. (image) Nerve Block Cake & Candle To sum up, here are some stats that may be of interest to my subscribers and visitors (and my very loyal spies!).

December 31st, 2012 3:36 pm

Do I dare put it in writing…?

By |2017-12-15T15:53:55+11:00December 31st, 2012|Categories: About, Blog, Living, The pain|Tags: , , |

Happy... post nerve block No. 3. I'm at 5.3 weeks and have managed to walk daily a few days in a row, practice some extremely mild yoga and have a few meals out without the pathetic fire warning in my pelvis. Could it be? Could it really be? Here's hoping 2013 begins with some pain free magic. Right now, I feel like this... and I wish that everyone who comes across my website, or is a regular reader feels the same. If not, please, remain hopeful.

December 23rd, 2012 9:31 am

Building blocks… I hope!

By |2023-02-17T10:32:01+11:00December 23rd, 2012|Categories: About, Blog, My treatment|Tags: , , |

I’m not yet clear about the effects of Nerve block No. 3, but I’m calling it… I’m going to be positive… I believe I’m building! It’s just a sorta three steps forward and two back situation.. I hope. So far, my building blocks go like this: • Nerve block No. 1 (December 7, 2011), • Nerve block No. 2 (April 18, 2012), • Nerve block No. 3 (November 23, 2012)

November 28th, 2012 7:56 pm

Take a seat… if you can!

By |2020-09-05T11:15:11+10:00November 28th, 2012|Categories: About, Blog, Learn, Living, Personal resources, The pain, Tips|Tags: , |

With Pudendal Neuralgia, or any other pelvic chronic pain issue, it can be impossible to sit pain free (let alone get away without a flare up). Of course, I'm no pro when it comes to seating, but I've learned a lot from my own experience and from listening to the 'ouch' in my pelvis. The seating I needed, was most often hand-made! (Have a look at the one my gorgeous father in law made, it's the stool with adjustable foot rest!) Although I've worn out, thrown out, tried and tested so many more seating aids, I'm showing the ones that have lasted or worked for a while. These are the ones I often resort to.

October 23rd, 2012 10:28 am

Back to life

By |2023-01-24T16:12:34+11:00October 23rd, 2012|Categories: About, Creativity, Living, The pain, Workcover|Tags: , , , , , , , |

...please gear up with me, imagine the drum rolls and the biggest mountain you can imagine with me standing on the tippy top yelling because this IS real, IT'S true, IT'S official: I'M BACK AT WORK!!!!!!!" No, I've not overdosed on my medication and the stress of a chronic pain issue has not damaged me enough to be hallucinating.., I. AM (wiggling heaps but all the same). SITTING. IN. A (very nice ergonomic). CHAIR. TYPING. THIS. POST!!!!

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