February 25th, 2013 9:18 am

(Hardly) Happy 1st birthday pudendalnerve.com.au

By |2017-12-11T16:51:16+11:00February 25th, 2013|Categories: Blog, Living|Tags: , , |

Well it's hardly a birthday celebration! But certainly a time to reflect and assess myself and the achievements of PudendalNerve.com.au. The total visits in 12 months total an astounding 21,500 and the search terms are a clear indication that still, so little is understood of Pudendal Neuralgia worldwide. The first note must be of thanks and of course, has to go to my husband Theo. Without Theo's daily help this site simply wouldn't be up and running.... neither would I! Second note worthy thank you, and certainly something that can be celebrated, has to be the beautiful connections I've made in the past year. I've met the most inspiring, energising, kind, compassionate people, whether practitioners, therapists, chronic pain sufferers, or people attached to the pain system, you have been my encouragement and empathy. Your pain and/or knowledge inspire me to continue and get to the bottom of this dreaded pain issue (in the hope of resolving it not only for me but for all of us!), and/or try to voice my improvements for an ignorant WorkCover system. As far as my personal 1st year status goes, I definitely have 'progress' to celebrate; I'm running on Nerve block no. 3, refreshing my pelvis as required with a newly installed bidet, taking minimal amounts of Endep, in much less pain but still much limited with capacity and in need of daily help. Although I still need regular massage, I'm able to work a little from an accommodating home setup, thinking a lot more, delegating-delegating-delegating and finally, but not least, have taken a plunge into the wonderful world of Chinese Medicine which I believe may finally be able to reach my pain. Stay tuned for another update on that soon. (image) Nerve Block Cake & Candle To sum up, here are some stats that may be of interest to my subscribers and visitors (and my very loyal spies!).

December 31st, 2012 3:36 pm

Do I dare put it in writing…?

By |2017-12-15T15:53:55+11:00December 31st, 2012|Categories: About, Blog, Living, The pain|Tags: , , |

Happy... post nerve block No. 3. I'm at 5.3 weeks and have managed to walk daily a few days in a row, practice some extremely mild yoga and have a few meals out without the pathetic fire warning in my pelvis. Could it be? Could it really be? Here's hoping 2013 begins with some pain free magic. Right now, I feel like this... and I wish that everyone who comes across my website, or is a regular reader feels the same. If not, please, remain hopeful.

October 23rd, 2012 10:28 am

Back to life

By |2023-01-24T16:12:34+11:00October 23rd, 2012|Categories: About, Creativity, Living, The pain, Workcover|Tags: , , , , , , , |

...please gear up with me, imagine the drum rolls and the biggest mountain you can imagine with me standing on the tippy top yelling because this IS real, IT'S true, IT'S official: I'M BACK AT WORK!!!!!!!" No, I've not overdosed on my medication and the stress of a chronic pain issue has not damaged me enough to be hallucinating.., I. AM (wiggling heaps but all the same). SITTING. IN. A (very nice ergonomic). CHAIR. TYPING. THIS. POST!!!!

July 9th, 2012 11:16 am

Italian lifestyle, perfecto for Pudendal Neuralgia

By |2023-02-17T10:32:01+11:00July 9th, 2012|Categories: About, Living|Tags: , , |

...So with my returned senses came dreams, with senses and dreams came diagnosis, with diagnosis came, finally, appropriate treatment, and with the right treatment came great pain relief and some much deserved and needed increased capacity. I feel I've arrived on a very high mountain but had to crawl all the way up over 5 1/2 years. So, here we are on the mountain, I mean, in Italy, and boy did we pick the right place! Not only did we have a divine holiday but we stumbled on what feels like a miracle treatment for my form of PN and that was part of the Italian lifestyle: bidets and siestas...

April 26th, 2012 1:07 pm

Now let’s get this straight…

By |2017-12-12T14:48:53+11:00April 26th, 2012|Categories: About, Blog, Living, The pain|Tags: , , |

So, you think you can see pain hey? Or rather your understanding is, if you don't see it then it's not there? Please read on because people like you drive me a little batty... "Pain is invisible!!!"... ...I know, I know, it's shocking and many won't believe it, ever, but it's true... Seen me smiling? It hurts. Seen me having coffee with a friend? It hurts. Seen me walking up the street? It hurts. Seen me having a glass of wine? It hurts. Seen my online social activity? It hurts doing that. Heard I went away for the weekend? It hurts... more. Did I email you? It hurt...

March 5th, 2012 6:50 am

Five years on…

By |2017-12-12T15:14:29+11:00March 5th, 2012|Categories: About, Living|Tags: , |

  • It took five years for Facebook to make a dime and it took five years to reach seven hundred million worldwide users.
  • It would take 5.4 years at Mach 1 (0.34 km/sec) to get to Mars from Earth
  • Willow the cat went missing in Colorado during a house renovation. Five years later, miraculously, the feline was picked up stalking the pavement in Manhattan in New York City and is being reunited with his owners 1800 miles away.
But my point, folks, is that it's taken 5 years to find and shut my pudendal nerve up...
January 24th, 2012 3:51 am

How do I do it?

By |2017-12-12T15:12:29+11:00January 24th, 2012|Categories: About, Learn, Living, Personal resources, Tips|Tags: , , |

Absolutely nothing great about having to live by these rules but it certainly saves me alot of extra pain, I have more up time and, above all, I decided this is just temporary. I'll do what it takes to get by most comfortably (if I can dare to use such a word for a chronic pain site!): •I understand that everything I do counts, even a sneeze (ok they count alot!) so I make sure I pick and choose what I do •I learned and practice the word pace •I'm more selfish •I say "I can't" and recently I've even stopped apologising because "I can't"! •I let go of obligation (actually I need to work on that one) •Keep any visit short, close, soft (not too many parties unless you can walk away) •I email my WorkSafe case manager to eliminate hearing all unnecessary hogwash •I have a daybed and made a 'dayspace' no where near a television or my bedroom •I have a dog, he's one of my biggest aids

January 23rd, 2012 9:07 pm

My family, Theo, Origin of Image and Zephyr

By |2017-12-11T11:28:17+11:00January 23rd, 2012|Categories: About, Creativity, Living, The pain|Tags: , , |

There isn't one single reason I can give for 'coping', I think a few things play a role. The biggest of all, I believe is my own brain's chemistry and built in ability, something I don't believe I have control over and was born with (and how greatful I am for this ultimate survival gift!), but coming in second, or even on par, is my husbandly support, Theo. I don't know what I would have done if Theo hadn't understood my pain and my eratic injury and hadn't supported me 200%. Seriously there were days I thought I was crazy...

November 21st, 2011 9:23 am

Pain loops, syndromes and an over protective brain

By |2022-09-05T11:26:11+10:00November 21st, 2011|Categories: About, Creativity, Funnies, Manage, The pain|Tags: , |

How many definitions for pain signals are out there? It doesn't stop and I have to be really honest here, it all sounds like hogwash for a person who was unstoppable and prior to her injury had the stamina of a bull (as a friend once described me).

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