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How do I do it?

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Absolutely nothing great about having to live by these rules but it certainly saves me alot of extra pain, I have more up time and, above all, I decided this is just temporary. I’ll do what it takes to get by most comfortably (if I can dare to use such a word for a chronic pain site!):

  • Write in my journal, release frustration there
  • I found relaxation techniques (from foot rubs to breathing, showers, smelling flowers, etc)
  • I learned and practice Alexander technique
  • I have regular massages with the same practitioner (cupping included)
  • I accept help
  • I lean/rest everywhere, even on traffic lights, I use my elbows on the table (who says its rude?)
  • I have a walking stick for a more difficult outing (like travel or gallery visits)
  • I sleep in, rest, nap or all at different intervals throughout the day
  • I have insoles gallore! I insert a heel gel under my shoe’s sole and then insert a full length Crock sole ontop of my shoe’s sole
  • Limit transportation as much as possible
  • I’ve made home super comfy and as happy as possible, things within easy reach and as light weight as possible (plastic fantastic!)
  • I’m totally setup on the internet so I can communicate to all my friends and family and stay in the loop with my great loves, design and art
  • I accepted more help
  • I shop online
  • I bought a smart phone (allows me to travel much lighter, play mind strengthening games, use resourceful apps, stay creative with photography, social networking, keeps you in touch with the world etc etc),
  • Sadly, packed away the g-strings for now and replaced them with nice full and firm underwear. Nothing synthetic or too tight
  • Keep the ice pack and heat pack handy at all times
  • I’m strictly keeping my weight down (the cruelest of all, as if being in pain isn’t bad enough I have to diet!!!!!!!!!!!!!!!)
  • Do my own research at all times, keep up with my condition’s progress
  • Listen to my body
  • I write, read, draw, learn, whatever, I find some short, light, flexible duties
  • I take part in my community as much as I can (gallery openings, have a coffee with a friend, simply bump into neighbours while walking, post a letter, even though it hurts I still go out for dinner, a drink, anything I can manage)
  • I accept even more help
  • When I feel like I can handle the pain, I move, do a little dance, whatever I just do it!
  • I understand that everything I do counts, even a sneeze (ok they count alot!) so I make sure I pick and choose what I do
  • I learned and practice the word pace
  • I’m more selfish
  • I say “I can’t” and recently I’ve even stopped apologising because “I can’t”!
  • I let go of obligation (actually I need to work on that one)
  • Keep any visit short, close, soft (not too many parties unless you can walk away)
  • I email my WorkSafe case manager to eliminate hearing all unnecessary hogwash
  • I have a daybed and made a ‘dayspace’ no where near a television or my bedroom
  • I have a dog, he’s one of my biggest aids

Feedback

3
  • Soula

    Sue I often feel one pain settle and another surface. Some days are just neverending pain. I hope you’re better today and the worst has passed.

  • Sue

    Today have felt so tired and had to have a daytime nap. I listened to my pain control hypnotherapy tape twice and then woke with aching hips and legs. Have looked at everything I have eaten the day before and cannot see an obvious culprit. I suppose I have to accept that the fatigue is all connected to have a pudendal nerve problem.

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Definitions of pain

What is Pudendal Neuralgia (PN)?
Most simply put PN is Carpal Tunnel in the pelvis/buttocks. Compression of the Pudendal Nerve occurs after trauma to the pelvis and is aggravated with pressure. The pain is often described as a toothache like pain, with spasms, sensations of tingling, numbness, or burning. It can be very debilitating.

What is Neuropathic pain?
Neuropathic pain is the result of an injury or malfunction in the peripheral or central nervous system. The pain is often triggered by an injury, but this injury may or may not involve actual damage to the nervous system. More…

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