My latest…
Out With the Sacral, In With the Spinal (part 1)
Then things got even more strange. There was heat, radiating heat where the IPG is, in my face and also other strange feelings that not only added to my pain issues but it made me turn my stim off, more than on! Weird.
Under Anaesthetic, However…
While you read this, I'm in total bliss under full anaesthetic having my spinal stim implanted and my sacral stim (which fizzed) removed. I've popped this poem in my head, and now yours too in the hope that Brain Plasticity, in all its madness as clarified so perfectly in Michael's poem and illustration, works its nonsense on me.
Wishing you Stitches of Laughter for 2019
If it weren't for my sense of humour, I'd be well and truly dead a long time now. I thought I'd kick off 2019 with something Theo found that is (not, IS, not, IS) so funny. Wishing you all stitches of laughter for 2019... xx Theo & Soula
Ho, Ho, Holidays
Can’t say I’m feeling festive. But my treatment glitch is [...]
Worksafe Agent Loses Call Recording
As long as WorkSafe and [...]
Spinal Cord Stim Trial Day 6
I'm not exactly enthused about health admin. There's already enough admin and digital filing to do in life. But I've found that my PT health summary is saving me, not only admin time, but alot of stress having to remember details of my experience. I've included a self portrait for my specialist today!
My New Friend, Freddie
I’ve never had much success [...]
Venezia!
There was no rushing to catch transport! And the sounds of Venice are soothing and happy. In the morning we woke to the sounds of the local's footsteps and the sounds of them working along the canal. Local chatter in the street, dogs barking and of course, the church bells. Sounds impact a person with a chronic illness. My mind was at peace, it felt rested, all was calming and gentle.
My GPADD18 Presentation
I'll deem my efforts a success. I managed. I learned a bundle. I made something of the chronic pain experience. And I believe I provided some insight. I arrived at Yarra Valley Lodge on Thursday night and left Sunday early morning to manage the presentation, question time and a short attendance at the dinner on Saturday evening. So that's 3 nights' sleep (and one nap Saturday afternoon) to get the focus I needed, and so I could appear in a way that I felt reflected my most Soula self. The presentation (below) took weeeeeeeeks to put together! Something that would have taken me a few short days previously. That might sound like a sacrifice to many of you, but with this approach, my pain levels remained low (if not off), and on my return to Queenscliff, I could resume my part-time work and the week ahead as per normal. It worked; I'm pacing up! I do have a niggle, though. We're not learning fast enough. We're not listening hard enough. I left disappointed I hadn't achieved enough. My presentation I couldn't film during the conference for obvious reasons, but I have put together the graphic presentation with my voice over. WARNING: This presentation contains calls for a new approach to managing chronic pain. It calls for bundles of learning for both professionals and patients and sacrifice and 100% commitment. It's a little boring and most disheartening for those searching for a quick fix. In this presentation: 0:28 Outline 0:43 About Soula 0:58 The accident 1:44 Chronic pain treatment & investigations 2:19 The peripheral stimulation implant 2:36 Diagnosis 3:00 Quality of life — More treatment 3:27 Communicating Pain 3:50 What is our understanding of Pain? 4:50 Resources for pain — pudendalnerve.com.au — The Hurting Strings Documentary — My book Art & Chronic Pain 7:14 Changing our ways — New definitions and more!
Managing chronic pain: Different approaches to a complex issue
(Article from the RACGP website) Neelima Choahan 26/07/2018 11:36:34 AM Chronic [...]
Pain Revolution Names PainTrain a ‘Best Resource’
PainTrain has followed Pain Revolution very closely over the years [...]
Fragile – I’ve hit a bump in the road
But I'm sure it'll all pan out ok. So much for looking after myself and preparing for potential weight gain as I approach my half decade milestone. The weight I've lost has potentially caused a shift in the position of my implants.