The pain

//The pain

Back to life

By | 2017-12-09T15:38:36+00:00 October 23rd, 2012|About, Creativity, Living, The pain, Work / System|

...please gear up with me, imagine the drum rolls and the biggest mountain you can imagine with me standing on the tippy top yelling because this IS real, IT'S true, IT'S official: I'M BACK AT WORK!!!!!!!" No, I've not overdosed on my medication and the stress of a chronic pain issue has not damaged me enough to be hallucinating.., I. AM (wiggling heaps but all the same). SITTING. IN. A (very nice ergonomic). CHAIR. TYPING. THIS. POST!!!!

Awwwards Honorable Mention

By | 2017-12-15T15:54:49+00:00 September 26th, 2012|About, Creativity, The pain|

Oh happy day! Yes this website has been nominated for an Awwwards 'Site of the Day' with an Honorable Mention. Please help me say, 'thank you' to the wonderful team at Origin of Image who helped me put this pelvic pain resource together and in turn gain more awareness for pudendal neuralgia. All you need to do is visit this awwardswebsite link, log in with your facebook or twitter account (or register) and rate us from 1-10. To date, has had almost 10,000 visitors. It certainly isn't anything to be happy about, that's alot of people in pain, but if thats an indication the website is indeed becoming a resource, creating awareness and helping with the frustration of chronic pain, which in turn gives great relief and direction, then I'll be very happy. My chronic pain at least served a purpose.

Chronic Pain Info group on Facebook

By | 2017-12-11T09:42:20+00:00 July 17th, 2012|About, Help, Personal, The pain|

Chronic Pain Info is a Facebook group/page. A place to come and learn, share, vent and meet other likeminded individuals who share similar health conditions and concerns. Rachata Brown wrote: How to understand us... people who are dealing with the pain. 1. People with chronic pain seem unreliable (we can’t count on ourselves). When feeling better we promise things (and mean it); when in serious pain, we may not even show up. 2. An action or situation may result in pain several hours later, or even the next day. Delayed pain is confusing to people who have never experienced it. 3. Pain can inhibit listening and other communication skills. It’s like having someone shouting at you, or trying to talk with a fire alarm going off in the room. The effect of pain on the mind can seem like attention deficit disorder. So you may have to repeat a request, or write things down for a person with chronic pain. Don’t take it personally, or think that they are stupid. 4. The senses can overload while in pain. For example, noises that wouldn’t normally bother you, seem too much. 5. Patience may seem short. We can’t wait in a long line; can’t wait for a long drawn out conversation.

A Dream Came True Today

By | 2017-12-15T15:55:19+00:00 May 23rd, 2012|About, Living, The pain|

What’s also revealed here is the origin of our Jack Russell’s name, Zephyr (who is actually more like a hurricane), but… back to my life moment, back to one of the big, completed circles of my life… I was moved completely. So moved I couldn’t move, stuck to the floorboards with only one way to go, closer, if only everyone else would get out of MY way!! I almost felt I had a special right after loving the piece for most of my life, painting her, drawing her over and over. I almost couldn’t understand why no one could see these facts, and why didn’t they all also know I was the one with the tattoo of Venus on my tail? I contained myself, I was in danger of setting off the alarm and for the life of me wasn’t about to live down to Theo’s expectations...

Now let’s get this straight…

By | 2017-12-12T14:48:53+00:00 April 26th, 2012|About, Blog, Living, The pain|

So, you think you can see pain hey? Or rather your understanding is, if you don't see it then it's not there? Please read on because people like you drive me a little batty... "Pain is invisible!!!"... ...I know, I know, it's shocking and many won't believe it, ever, but it's true... Seen me smiling? It hurts. Seen me having coffee with a friend? It hurts. Seen me walking up the street? It hurts. Seen me having a glass of wine? It hurts. Seen my online social activity? It hurts doing that. Heard I went away for the weekend? It hurts... more. Did I email you? It hurt...

Flare up

By | 2017-12-15T15:55:55+00:00 March 21st, 2012|About, Living, The pain|

I have nothing nice to say about a flare up. It's nothing but my injury's hissy fit and a brutal check point that tells me I'm not my old self yet. But since I like to keep a positive outlook and focus on the good things, I will say that coming out of a flare up feels incredible. I feel I could fly, my brain gears up again...

My family, Theo, Origin of Image and Zephyr

By | 2017-12-11T11:28:17+00:00 January 23rd, 2012|About, Creativity, Living, The pain|

There isn't one single reason I can give for 'coping', I think a few things play a role. The biggest of all, I believe is my own brain's chemistry and built in ability, something I don't believe I have control over and was born with (and how greatful I am for this ultimate survival gift!), but coming in second, or even on par, is my husbandly support, Theo. I don't know what I would have done if Theo hadn't understood my pain and my eratic injury and hadn't supported me 200%. Seriously there were days I thought I was crazy...

My pre pain life…

By | 2013-10-14T11:20:27+00:00 December 15th, 2011|About, Creativity, Living, The pain|

I was active, I had capacity, boundless energy to execute my creative thoughts (and meet the expectations of a full social calendar!). I worked veeeeery long and wonderful days, I walked everywhere, lunching, dining, starting every day at a local cafe, picking up art materials, walking the dog, running the dog, to Carlton, the city, Fitzroy, I skipped through the streets of the great arrondissements of Paris when on annual holidays, and swore by my four day a week yoga routine that unravelled my body and had me feeling like Gumby warm to the ends of my extremities... There was no 'tired', 'sore', 'fatigued', 'have to rest', there was no 'pain'. Like I said, it was bliss.


By | 2017-12-15T15:56:11+00:00 November 29th, 2011|About, Advocacy, The pain|

No donations necessary but if you are a health org and would like to support the cause I would certainly appreciate the sponsorship. Everyone else just blab your head off if the site has been a help to you. If you can provide more information and new resources then please use the contact form and let me know. Quickly!