Pain Toolkit workshop For people with long-term persisting pain
APR 10, 2021: Pain Toolkit workshop For people with long-term persisting pain by Pete Moore
APR 10, 2021: Pain Toolkit workshop For people with long-term persisting pain by Pete Moore
In November this year, I was invited to present my pain experience to a group of 40 GP's. The topic was: An Approach to Chronic Non-Cancer Pain and the workshop was facilitated by Dr Paul Grinzi for Murray City Country Coast GP Training. Where does one start when asked to present to 40 pain interested GP's in 20 minutes? There's a great emoji to illustrate the look on my face when I ponder this question. You can well imagine. As an 'expert' in my 'field' 20 minutes to describe 13 years of living with chronic pain of which 4.5 years were spent lost in a forest is still a tough gig. However, this was a presentation to medical professionals. And they know everything, right? .... I've decided to make this video a paid resource. All proceeds go towards funding this website and PainTrain – My Health Summary. What do I talk about in my video? — O:43 My story — 2:50 Investigating pain, research & treatment — 4:26 Diagnosis — 5:55 Advocacy — 7:45 The experience of pain — 8:27 Medication — 9:35 Characteristics of Pain — 10:55 Planning life with chronic pain — 12:09 Pain management — 13:50 PainTrain
Aaahh, chronic pain! You bittersweet, endless orb of confusion! And this is why I say ‘good riddance and thank you’ to 2020 – the year of CV-19. From my very comfortable position [...]
And ladies can also benefit as well! I’m signed up to Dr Susie’s news – highly recommend you do so also as she is a wealth of information. Although Dr Susie specialises [...]
In what's becoming a life trek in the aim of defining my ongoing pain issue, there's a pattern I'm beginning to see. Most often when I read educational material and it feels like it's beginning to gell with my experience, I feel a suction begins to the words. I'm drawn into the paragraphs of the researcher/s and excitement kicks in. 'I'm going to find the definition, this person is speaking my language!' It gets wilder and wilder – think Willy Wonka's crazy boat ride (below, but hold on to your pelvis!) and the findings and resources amount to great support material. I begin to believe – 'this is IT!' But Like Willy Wonka's crazy boat ride, somewhere along the way it gets freaky, the definition starts to go off my track and as I keep reading I'm feeling that I'm coming unstuck.
I've gotten up on my feet only to find myself back down again a few thousand times in the past 13 years. I use my personal chronic health issue to try and understand the management of COVID-19. As mentioned in a few COVID-19 related blogs, there are similarities with chronic illness in the way the virus attacks a human. Qualities like its invisibility, the way it can affect life, the way it has affected livelihoods and the ongoing power over humans are all mountains I've had to get over. And over... and over. And will have to continue to get over.
When I started this website, my hope was to connect people living with pain with healthcare practitioners. At the time (2011), there was no online information or help for Pudendal Neuralgia and other such pelvic pain. I thought if I could provide the information in one place, it would help everyone connect and solve dreaded pain issues or at least speed up the diagnosis and treatment process. I didn't hope it would take nine years. Nine years...!!! But we have arrived and the point is that anyone can access this information session.
Would have been great if all injured workers labelled as 'complex cases' were notified of this survey participation call. Thank you to my twitter sister, Everyday AUSSIE @GalGeelong for letting me know. [...]
I'm closing the door on the 'reasoning rooms' and I'm not going to investigate what might have caused a sudden flare. 'Soula, let's not go there. Don't enter that routine. Don't walk towards the dead end. Don't waste your time... again!' 'You've wasted years, Soula. Over a decade in fact thinking in rooms that provided no answers. They are mostly empty – blank walls, no windows, no air to breath!'
Drug Interactions Checker This is a great resource for anyone taking medications. Perhaps if I had this during my medication experimentation phase, I wouldn't have felt so confused about my symptoms. All [...]