About Soula Mantalvanos

“I felt I had lost my independence, I could not communicate and express my personal experience and that no one understood me.” Soula combines her many years of chronic pain with her professional design experience to advocate about misdiagnosis and injured Victorian workers. Soula founded pudendalnerve.com.au and PainTrain My Health Summary to help raise the quality of care for those enduring and treating chronic pain.
March 21st, 2012 10:52 am

Flare up

By |2017-12-15T15:55:55+11:00March 21st, 2012|Categories: About, Living, The pain|Tags: , |

I have nothing nice to say about a flare up. It's nothing but my injury's hissy fit and a brutal check point that tells me I'm not my old self yet. But since I like to keep a positive outlook and focus on the good things, I will say that coming out of a flare up feels incredible. I feel I could fly, my brain gears up again...

March 7th, 2012 11:58 pm

Published and about to be heard!

By |2017-12-11T16:14:01+11:00March 7th, 2012|Categories: Advocacy, Creativity, Online, Workcover|Tags: , , |

Thank you Graphis, The International Journal of Visual Communication, for publishing my political poster.

Australia's WorkSafe system needs a serious update for the sake of Employers, Workers and Tax Payers. I'm hoping to get enough views to be published in the Graphis Annual and send a personally signed copy to our WorkSafe Minister.
March 5th, 2012 6:50 am

Five years on…

By |2017-12-12T15:14:29+11:00March 5th, 2012|Categories: About, Living|Tags: , |

  • It took five years for Facebook to make a dime and it took five years to reach seven hundred million worldwide users.
  • It would take 5.4 years at Mach 1 (0.34 km/sec) to get to Mars from Earth
  • Willow the cat went missing in Colorado during a house renovation. Five years later, miraculously, the feline was picked up stalking the pavement in Manhattan in New York City and is being reunited with his owners 1800 miles away.
But my point, folks, is that it's taken 5 years to find and shut my pudendal nerve up...
February 28th, 2012 3:19 am

Victorian Government: Don’t raid WorkSafe’s surplus

By |2017-12-11T16:14:01+11:00February 28th, 2012|Categories: Workcover|Tags: , |

The WorkSafe surplus is under threat from the Victorian Government. Premier Ted Baillieu wants to rip out $471.5 million over four years from the WorkCover Authority, known as WorkSafe, so he can balance the State Budget... Maurice Blackburn has been looking out for the best interests of injured workers for more than 90 years. We’ve started this petition to send a strong message to the Victorian Government: don’t raid the WorkSafe surplus... I signed it: "I can't believe Ted Baillieu found one more way to make the system worse than it already is! How about 'ripping' out shonky investigations and shonky Independent Medical Examiners, you'd gain more than 471.5 million!"

January 31st, 2012 10:04 pm

Chronic Pain Australia

By |2017-12-11T09:42:21+11:00January 31st, 2012|Categories: Help, Learn, Professional, Professional Resources|Tags: |

We are dedicated to reducing the social and other barriers to living with chronic pain.We are a group of people who are tired of the way things are for people in pain. You may be feeling quite isolated and 'over it' and feel that no one really understands your experience. You might even feel that people don't believe you. Many people tell us about these experiences. Don't despair, you aren't crazy! And you aren't on your own either. Over the years many volunteers have strengthened us so that we can work towards greater community understanding about chronic pain...

January 29th, 2012 5:31 am

Where do case managers go?

By |2014-06-15T08:49:24+10:00January 29th, 2012|Categories: Funnies, Workcover|

Considering the incensitivity, lack of understanding and respect, ignorance, judgemental chatter, poor support, endless pathetic excuses etc etc etc that I've had from my WorkSafe Agent's Case Managers, and I've had troves come and go in five years (some gone before they even appear!!!!), I feel I deserve to have a little fun on the back's of the poorest, which is all but two of them.

January 24th, 2012 3:51 am

How do I do it?

By |2017-12-12T15:12:29+11:00January 24th, 2012|Categories: About, Learn, Living, Personal resources, Tips|Tags: , , |

Absolutely nothing great about having to live by these rules but it certainly saves me alot of extra pain, I have more up time and, above all, I decided this is just temporary. I'll do what it takes to get by most comfortably (if I can dare to use such a word for a chronic pain site!): •I understand that everything I do counts, even a sneeze (ok they count alot!) so I make sure I pick and choose what I do •I learned and practice the word pace •I'm more selfish •I say "I can't" and recently I've even stopped apologising because "I can't"! •I let go of obligation (actually I need to work on that one) •Keep any visit short, close, soft (not too many parties unless you can walk away) •I email my WorkSafe case manager to eliminate hearing all unnecessary hogwash •I have a daybed and made a 'dayspace' no where near a television or my bedroom •I have a dog, he's one of my biggest aids

January 23rd, 2012 9:07 pm

My family, Theo, Origin of Image and Zephyr

By |2017-12-11T11:28:17+11:00January 23rd, 2012|Categories: About, Creativity, Living, The pain|Tags: , , |

There isn't one single reason I can give for 'coping', I think a few things play a role. The biggest of all, I believe is my own brain's chemistry and built in ability, something I don't believe I have control over and was born with (and how greatful I am for this ultimate survival gift!), but coming in second, or even on par, is my husbandly support, Theo. I don't know what I would have done if Theo hadn't understood my pain and my eratic injury and hadn't supported me 200%. Seriously there were days I thought I was crazy...

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