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About Soula Mantalvanos

“I felt I had lost my independence, I could not communicate and express my personal experience and that no one understood me.” Soula combines her many years of chronic pain with her professional design experience to advocate about misdiagnosis and injured Victorian workers. Soula founded pudendalnerve.com.au and PainTrain My Health Summary to help raise the quality of care for those enduring and treating chronic pain.
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May 23rd, 2012 11:26 pm

A Dream Came True Today

By |2017-12-15T15:55:19+11:00May 23rd, 2012|Categories: About, Living, The pain|Tags: , |

What’s also revealed here is the origin of our Jack Russell’s name, Zephyr (who is actually more like a hurricane), but… back to my life moment, back to one of the big, completed circles of my life… I was moved completely. So moved I couldn’t move, stuck to the floorboards with only one way to go, closer, if only everyone else would get out of MY way!! I almost felt I had a special right after loving the piece for most of my life, painting her, drawing her over and over. I almost couldn’t understand why no one could see these facts, and why didn’t they all also know I was the one with the tattoo of Venus on my tail? I contained myself, I was in danger of setting off the alarm and for the life of me wasn’t about to live down to Theo’s expectations...

April 26th, 2012 1:07 pm

Now let’s get this straight…

By |2017-12-12T14:48:53+11:00April 26th, 2012|Categories: About, Blog, Living, The pain|Tags: , , |

So, you think you can see pain hey? Or rather your understanding is, if you don't see it then it's not there? Please read on because people like you drive me a little batty... "Pain is invisible!!!"... ...I know, I know, it's shocking and many won't believe it, ever, but it's true... Seen me smiling? It hurts. Seen me having coffee with a friend? It hurts. Seen me walking up the street? It hurts. Seen me having a glass of wine? It hurts. Seen my online social activity? It hurts doing that. Heard I went away for the weekend? It hurts... more. Did I email you? It hurt...

April 20th, 2012 3:01 pm

The Pudendal Neuralgia Masters and Their Support for my Website

By |2017-12-11T11:00:40+11:00April 20th, 2012|Categories: Help, Professional|Tags: , |

I can't adequately define the moment I was diagnosed, it's just too difficult to explain the 4.5 year scattered hunt that ended with a few seconds and just two words! Empathy and understanding however, are two words that do explain what I felt when seeking approval to use the research and names of the Pudendal Neuralgia Masters (as I like to call these specialists). Honestly, if words, thoughts and care from complete strangers could heal me I would have been healed twice over by now. These Masters really touched my heart (unfortunately not my stubborn pudendal nerve, but all in good time!). I wanted to share these comments, especially for anyone suffering with Pudendal Neuralgia as I feel its important that we all know who these incredible human beings are and that they are endlessly working towards our cure and international awareness every day. The other important thing is to know where they are.

April 11th, 2012 4:35 pm

Exercising the Brain

By |2017-12-11T13:02:22+11:00April 11th, 2012|Categories: Learn, Personal resources|Tags: , |

...I feel I'm exercising my brain when I read an article that sparks more thought and leads me on a hunt for more and more information and the process all results in gold! It might not necessarily be what I was looking for but a lovely surprise nevertheless... It made me think about another possible cure for my issue (I know, very far-fetched but imagine if my brain could be programmed to make me live/dream all the activities my pudendal nerve won't let me do by night?! Imagine?!). So I went to my favorite, most trusting online resource, no, not Google, Body In Mind...

April 10th, 2012 8:20 pm

Case Management Society of Australia… are WorkSafe Agents complying?

By |2017-12-11T16:14:01+11:00April 10th, 2012|Categories: Workcover|Tags: , , |

What would injured Australian workers do without the wonderful WorkCoverVictim'sDiary website, who alerted me to the Case Management Society of Australia(amongst some other goodies like 'the Deed' between WorkCover and all the Suppliers of delivery of the System!!! and The Ombudsman's report that shows the many breaches... hello, hello!)... One 'ethical' point:

  • The Case Manager will consider the best interests of the client as paramount at all times
In this point, is the 'client' the injured worker or WorkSafe? From my experience, it's clearly WorkSafe and when it comes to this ethical standard, my case managers are right on the money! No treatment for me, more dollars for WorkSafe...
March 23rd, 2012 6:31 am

Thanks Erin Brockovich for supporting injured workers

By |2017-12-11T15:59:44+11:00March 23rd, 2012|Categories: The pain|Tags: , |

It's starting to happen, there's a little stir... injured workers are speaking up. And they're getting noticed. Thank you to the brilliant WorkCoverVictim (and my cyber friend - well how else to injured workers meet!?), and your team for supporting injured workers through your brilliant website. You deserve your visit from THE Erin Brockovich... Erin Brockovich, you revived some injured workers today. THANK YOU.

March 21st, 2012 10:52 am

Flare up

By |2017-12-15T15:55:55+11:00March 21st, 2012|Categories: About, Living, The pain|Tags: , |

I have nothing nice to say about a flare up. It's nothing but my injury's hissy fit and a brutal check point that tells me I'm not my old self yet. But since I like to keep a positive outlook and focus on the good things, I will say that coming out of a flare up feels incredible. I feel I could fly, my brain gears up again...

March 7th, 2012 11:58 pm

Published and about to be heard!

By |2017-12-11T16:14:01+11:00March 7th, 2012|Categories: Advocacy, Creativity, Online, Workcover|Tags: , , |

Thank you Graphis, The International Journal of Visual Communication, for publishing my political poster.

Australia's WorkSafe system needs a serious update for the sake of Employers, Workers and Tax Payers. I'm hoping to get enough views to be published in the Graphis Annual and send a personally signed copy to our WorkSafe Minister.

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Soula Mantalvanos created pudendalnerve.com.au to advocate for people living with Pudendal Neuralgia and other invisible and chronic illnesses. Soula combines her years of living with chronic pain and her professional creative communication experience to advocate for a better quality of care. The website includes topics about chronic pain, pelvic pain, pudendal neuralgia, injured workers, workers compensation, inflammation, chronic illness, patient empowerment, self efficacy, better healthcare, nerve pain, various treatments such as nerve blocks, neurostimulation implants and the courage that is required for self management. All information on this website is a account of Soula's lived experience and should not be taken in anyway as advice or recommended treatment for any other person or healthcare professional. Chronic illness is a unique experience and therefore requires better understanding and tailored care. © Copyright 2023 -    |   pudendalnerve.com.au created by ooi   |
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