February 14th, 2022 3:05 pm

Rebrand Announcement: My Health Story

By |2022-11-26T20:58:47+11:00February 14th, 2022|Categories: Blog, Help, Manage, My Health Story|Tags: , , , , , |

I was so close to throwing the PainTrain My Health Summary idea out the window when COVID-19 hit.  There was no way I could be positive about pushing on with my little train startup while a pandemic was approaching. But as it turned out COVID-19 catapulted telehealth behaviour and with that came increased interest in health tech and a newborn... the digital patient!  My creative communication experience always encouraged me down this complex path – I found healthcare primitive! The way people manage their health and the way appointments are managed has not changed for eons. If you live with an ongoing medical condition, we know now that it takes teamwork to manage it and you have to be responsible for your own health information (or it all gets documented incorrectly!). Clearly, I believe that we need to step up and manage our health and all things relating to it. We especially need to do this because we all have such lengthy stories to tell! So on that note, here's my big news from my humble little train which is now planning to go way beyond its destination... if you help me, there's a lifetime subscription in it for you!

February 6th, 2022 3:31 pm

Evelyn Hecht’s Pelvic Sense

By |2023-01-02T11:05:05+11:00February 6th, 2022|Categories: Blog, Learn, Professional Resources|Tags: , , , |

Evelyn totally has PelvicSense! And thankfully, Evelyn made an online pelvic healing home program out of it. It includes an easy-to-understand book, calming audios with music, downloads, and many gently progressive pelvic exercise videos. I was thrilled to chat and meet Evelyn Hecht PT recently. It is refreshing to speak to a healthcare professional who has the care factor and exudes warmth and understanding.

December 3rd, 2021 2:49 pm

Presenting My Pain Management Story and Vision at the Murray City Coast Country GP Training

By |2022-11-26T20:58:48+11:00December 3rd, 2021|Categories: Advocacy, Blog, Events, My Health Story|Tags: , , , , , , |

It was wonderful sharing my story and vision at the Murray City Coast Country GP Training. AND especially presenting on a stage and in actual physical life to 50 general practitioners (GPs) who [...]

November 26th, 2021 1:12 pm

Presenting at the Murray City Country Coast GP Training Event

By |2022-11-26T20:58:48+11:00November 26th, 2021|Categories: Advocacy, Events, Learn, Professional Resources|Tags: , , , , , |

There are no formal qualifications for someone living with chronic pain but patients are considered 'patient experts' and our lived experience is very much valued. I've been invited to several seminars and training sessions relating to chronic pain over the course of my 14-year experience. It's of great significance for me to be able to use the lived experience – no other value for it really!

March 23rd, 2021 1:13 pm

On Neurostimulation

By |2023-02-17T10:32:00+11:00March 23rd, 2021|Categories: About, My treatment|Tags: , , , , , |

Neurostimulation has been key in my management of pain. It's also satisfied my wish to find a way to be as self-sufficient with my management as I possibly can be. My first stim was a peripheral stimulation unit (leads under the skin) and that was implanted in 2011. I still have this unit as a backup. In 2015 I had a sacral stim implanted but that fizzed (in my opinion) within three years. So in 2019 I had the sacral stim removed and replaced with a spinal cord neurostim. WARNING: In the video, I talk about my experience and have a few Xrays pop up to demonstrate a little detail. If you're the squeamish type you may not want to see the images – they are small, however. Read key blogs about my stim implants experiences and adventures:

Pain management is unique to all of us and the key to navigating the complex journey (I believe) is gathering as much information as possible. I hope this vimeo is of great help.
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