I’m on Fire
I bet the first thing you thought was, ‘she’s having a flare’. But you know what? I’m using the word ‘fire’ in the way that people living with chronic pain only dream [...]
January 19th, 2022
12:29 pm
December 3rd, 2021
2:49 pm
Presenting My Pain Management Story and Vision at the Murray City Coast Country GP Training
It was wonderful sharing my story and vision at the Murray City Coast Country GP Training. AND especially presenting on a stage and in actual physical life to 50 general practitioners (GPs) who [...]
November 26th, 2021
1:12 pm
Presenting at the Murray City Country Coast GP Training Event
There are no formal qualifications for someone living with chronic pain but patients are considered 'patient experts' and our lived experience is very much valued. I've been invited to several seminars and training sessions relating to chronic pain over the course of my 14-year experience. It's of great significance for me to be able to use the lived experience – no other value for it really!
September 25th, 2021
3:11 pm
Laura Rathbone
I’ve met another astounding and inspiring human working in the complex pain world. This time my hunt for resources finds me in the Netherlands. I’m not physically [...]
August 12th, 2021
11:38 am
Say Goodbye to Covid-19 Lockdowns
That would be like me saying ‘goodbye flares’ in my undiagnosed years. You just don’t get to make those decisions when you don’t have explicit knowledge about the beast you are dealing [...]
May 7th, 2021
10:48 am
A Chat With Mandy Mercuri
Get the code to watchSign up (FREE) below or make any donation to support my advocacy and watch ALL my Vimeos.Lost your code? Mandy and I initially met [...]
March 25th, 2021
5:05 pm
Maddy Lock – My Alexander Technique Physiotherapist
Get the code to watchSign up (FREE) below or make any donation to support my advocacy and watch ALL my Vimeos.Lost your code? Alexander Technique is a very special [...]
March 23rd, 2021
1:13 pm
On Neurostimulation
Neurostimulation has been key in my management of pain. It's also satisfied my wish to find a way to be as self-sufficient with my management as I possibly can be. My first stim was a peripheral stimulation unit (leads under the skin) and that was implanted in 2011. I still have this unit as a backup. In 2015 I had a sacral stim implanted but that fizzed (in my opinion) within three years. So in 2019 I had the sacral stim removed and replaced with a spinal cord neurostim. WARNING: In the video, I talk about my experience and have a few Xrays pop up to demonstrate a little detail. If you're the squeamish type you may not want to see the images – they are small, however. Read key blogs about my stim implants experiences and adventures:
- My Peripheral Stimulation implant
- Peripheral Stim messing with my bone density score
- My pain management is turning into a thesis!
- Adventures of a stim controller
- Out With the Sacral, In With the Spinal (part 1)
- Out With the Sacral, In With the Spinal (part 2)
- Out With the Sacral, In With the Spinal (part 3)
- Spinal Cord Stim Trial Day 6
March 4th, 2021
9:36 pm
Perhaps Pain Isn’t my Brain’s Fault
Or my nervous system's fault either. Have you ever let your mind wander beyond the boundaries of chronic pain research? I can't help it, my mind flies around all over the place! Today, it's in Maroni, a village in Larnaca Cyprus. That's where my mum was born. I've been wondering alot about village life lately. And more specifically about my grandmother (Giagia) and her lifestyle in Maroni. I've visited Cyprus four times – each time without pain! I really love mum's village Maroni, it's beautiful. I always make a point of walking around the whole village when I visit so am very familiar with its nostalgic, stony, dry characteristics. I love the feeling of my feet on the ground in Maroni – not sure what that is. Perhaps a memory...
February 28th, 2021
9:34 am
Soula Chats With Amy Eicher
Get the code to watchSign up (FREE) below or make any donation to support my advocacy and watch ALL my Vimeos.Lost your code? There's so much to learn in [...]