«Χρόνιος πόνος: η ύπουλη ασθένεια που κλέβει τη ζωή χιλιάδων ανθρώπων»

By |2019-09-26T17:14:15+10:00September 26th, 2019|Advocacy, Blog, My Health Story, Online|

(Excerpt from Neos Kosmos feature story, Chronic pain: the treacherous disease that steals the lives of thousands, MAΡΙΑ ΚΑΜΠΥΛH 25 September 2019) Η συγκλονιστική συνέντευξη – κατάθεση ψυχής της ομογενούς Σούλας Μανταλβάνου, που [...]

My GPADD18 Presentation

By |2022-05-17T10:35:37+10:00August 12th, 2018|Advocacy, Events|

I'll deem my efforts a success. I managed. I learned a bundle. I made something of the chronic pain experience. And I believe I provided some insight. I arrived at Yarra Valley Lodge on Thursday night and left Sunday early morning to manage the presentation, question time and a short attendance at the dinner on Saturday evening. So that's 3 nights' sleep (and one nap Saturday afternoon) to get the focus I needed, and so I could appear in a way that I felt reflected my most Soula self. The presentation (below) took weeeeeeeeks to put together! Something that would have taken me a few short days previously. That might sound like a sacrifice to many of you, but with this approach, my pain levels remained low (if not off), and on my return to Queenscliff, I could resume my part-time work and the week ahead as per normal. It worked; I'm pacing up! I do have a niggle, though. We're not learning fast enough. We're not listening hard enough. I left disappointed I hadn't achieved enough. My presentation I couldn't film during the conference for obvious reasons, but I have put together the graphic presentation with my voice over. WARNING: This presentation contains calls for a new approach to managing chronic pain. It calls for bundles of learning for both professionals and patients and sacrifice and 100% commitment. It's a little boring and most disheartening for those searching for a quick fix. In this presentation: 0:28 Outline 0:43 About Soula 0:58 The accident 1:44 Chronic pain treatment & investigations 2:19 The peripheral stimulation implant 2:36 Diagnosis 3:00 Quality of life — More treatment 3:27 Communicating Pain 3:50 What is our understanding of Pain? 4:50 Resources for pain — pudendalnerve.com.au — The Hurting Strings Documentary — My book Art & Chronic Pain 7:14 Changing our ways — New definitions and more!

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